Ocrevus for Multiple Sclerosis User Reviews (Page 3)

• iru...
• Taken for 1 to 6 months
• September 23, 2019

"My experience with Ocrevus is just bad. I have PPMS and had the 3rd infusion in August. Conditions are getting worse with vision and walking. Doctor said the third infusion can improve my condition, but it is vice versa."

• sli...
• September 21, 2019

"I started Ocrevus in July of 2018. I have had three treatments, and I am now worse than I have ever been with MS! My balance is completely shot, I have pain I never had before, tightness and paralysis in my left leg, stumbling much more, can hardly pick up my feet, chest pain issues, headaches, and cloudy thinking problems! This drug was pushed on me by my neurologist despite me not wanting it because he said it was the best thing out. Now I know it was the best thing for his pocket and not my health! DONE with Ocrevus!"

• Que...
• Taken for 1 to 2 years
• September 20, 2019

"I had my 4th infusion 1 week ago, and I feel worse than I ever have. My legs feel like they're 2x4s anchored in concrete. I am in such a deep depression that I cry over everything (I've been on 2 antidepressants for years), and on top of that, I am so exhausted, more so than normal, that I just want to stay in bed and sleep. (I still work full-time in a desk job.) Every single struggle I have had since I became Secondary Progressive is enhanced by at least 4 times worse. I am going to talk to my Neurologist tomorrow, as I will be changing my course of treatment."

• Jan...
• August 24, 2019

"Weird: I was RRMS (relapsing-remitting multiple sclerosis) and my neuro was so giddy about this drug that she even used the big C word (cure) with it. I did 4 infusions and what did I get for my loyalty and trust of my neuro: I am now Secondary-progressive multiple sclerosis (SPMS). I declined so fast and drastically after taking this poison that I was re-diagnosed and I said 'What the... you promised me this would basically cure me'. Tough luck, they said. I also learned that the 'neuro' in question received 260K in 'appearance' fees from Biogen. Just google openpaymentsdata and see how much your doctor is getting paid! AWESOME!!! He makes money. I suffer. Go in fully woke on this one folks."

• Mik...
• Taken for 1 to 2 years
• August 8, 2019

"I am the caregiver for a progressive MS patient. My client has had 4 total infusions of Ocrevus. My client has continued to progress and, in my opinion, more rapidly than before taking Ocrevus."

• She...
• Taken for 1 to 2 years
• April 8, 2019

"I went on this DMD after my neurologist suggested I read the 'glowing reviews' on YouTube and this place on Reddit called /r/Multiple Sclerosis. I did all the infusions, and a year later, I went from mild RRMS to a very aggressive RRMS. What happened? Why did this happen? The smug doctor said 'it can happen to a small percentage of people'. What? You tell me after I take this horrible treatment? I should have been informed before. Is it true that neurologists are paid 'appearance fees' by this manufacturer to push this drug? I also learned that in /r/Multiple Sclerosis on some of the comment sites (but not this one), people are paid to push this drug, so be careful what you read. Talk to people you meet at the clinics for advice."

• Pik...
• Taken for 1 to 2 years
• April 3, 2019

"55, male, progressive multiple sclerosis since 2013. I've had Tecfidera, Gilenya, Plegridy, and started Ocrevus 7/17. The first dose lasted 3 months, second dose 2 months, third dose 5 weeks. I'm worse now than ever. I've lost my job, I walk with a cane, balance is worse, pain is worse. 2/2019 was the fourth and last dose. It did nothing at all. 'GARBAGE'. At this moment, I can barely walk, take a small step then stop. I'm so disgusted from all the hype about Ocrevus. It's good for RRMS people, not progressive. 6 months between doses is too far apart. Mayzent just got approved, that's a daily DMT. Ocrevus ruined my life."

• Mom...
• Taken for less than 1 month
• April 3, 2019

"I had 2 half doses of Ocrevus, and I am now in my multiple sclerosis worse than I have been in 20 years. I am 69 and have had MS for going on 31 years. I had been on Copaxone for 20 years, and for over 15 years, it worked very well for me. Then I started going slowly downhill, so I switched to Ocrevus. I was due for my full dose 2 days ago, but I put a hold on it. I see my neuro tomorrow, and I will tell him I do NOT want it again. I have been off Copaxone close to a year, so I may ask to try it again. Between the Copaxone and starting Ocrevus, I had to wait because I was getting a shingles shot, and then I had to wait again because they kept sending the Ocrevus to the wrong hospital, so it has been a roller ride trying to get it. Now I just want Copaxone again. It was so much easier and no side effects."

• Pik...
• Taken for 1 to 2 years
• April 2, 2019

"Diagnosed with multiple sclerosis in 2013. Taken Tecfidera, Gilenya, Plegridy, & Ampyra. I'm 55, with PPMS (primary progressive multiple sclerosis) and started Ocrevus 7/2017. The first dose lasted 3 months, second dose 2 months, and the third dose 5 weeks. The fourth dose in 2019 has done nothing at all. Lost my job, now walk with a cane, balance & pain worse. Six months is too far apart for my condition. I am worse now than when I started it. I'm totally finished with it. Mayzent will be next, a daily pill for SPMS (secondary-progressive MS)."

• Way...
• March 24, 2019

"I am 68 years old with relapsing-remitting MS (multiple sclerosis) for 23 years. Have taken Betaseron and Copaxone. Take Ampyra. No problems with the injection site but discontinued both Betaseron and Copaxone due to muscle cramps. MRI is stable, but my neuro suggested Ocrevus. Only had one infusion. Didn’t return for the second half of the first round. My neuro and I agree to discontinue Ocrevus for me for good. Side effects of Ocrevus were immediate and severe. Six weeks in and I am still recovering from the infusion. Immediately after the infusion, which I slept through, I awoke unable to recognize my surroundings. I did recognize family, but I felt I was in a nightmare. Cognition was altered and diminished. I was also very weak, especially my legs-extremely frightening. Severe confusion resolved mostly in 24 hours, slowly. The weakness has lingered, requiring pulse steroids with partial resolution. Slowly improving with rest, exercise, and prayer. The infusion was worse than any flare in my 20+ years of MS. Currently hesitant to start another DMD."

• Lul...
• Taken for 6 months to 1 year
• February 26, 2019

"First treatment, my fatigue was horrible, didn't feel like getting out of bed. Told the doctor I wasn't sure I could deal with another infusion, he convinced me the second one would be better. Wrong! After the second one, both of my legs are very weak, not just one, and I can no longer drive and take care of my children. It has taken the most special time with my kids away."

• she...
• Taken for 6 months to 1 year
• October 21, 2018

"It did not work for me at all. I started the treatment in my 15th year of MS, and I got quite a bit worse. After being on it for one year, I told my doctor no more! Now I have trouble walking, and fatigue is way worse. Another of the side effects that affects me is rapid heartbeat and faster breathing that still hasn't gone away, and my last infusion was 7 months ago. I'm older, 57, and there are numerous cases where older people like me do not respond well to Ocrevus. So if you're in my age range, proceed with caution, but I would not recommend it!"

• Ser...
• Taken for 1 to 2 years
• September 13, 2022

"Had 3 infusions already. Not saying it's a bad drug in general, but sure didn't work in my case, so the doctor canceled it and recommended me stem cell therapy, which appears to be my last chance. What I liked about it - 6-month gap between infusions, no need to think about it too often. Therefore, 2/10 instead of 1/10."

• Hol...
• Taken for 2 to 5 years
• November 10, 2021

"Diagnosed with advanced RRMS in 2016 at age 30. Started Aubagio and took that daily for a year or so. No help whatsoever, neurologist recommended Tysabri. Didn't mind the monthly infusions, and my body tolerated it well. No new lesions, but I tested positive for the JC virus a year in, so the doctor switched me to Ocrevus. Have been taking this for the last 2 1/2 years. Have also been tested for the JC virus 1-2 times a year. It was nice to only have infusions twice a year, but the headaches and horrible acid reflux I would get afterward kept me up for days. Noticed thinning hair and major depression, irritability, mood swings lately. The weeks leading up to my infusions, I have daily headaches, dizziness, and fatigue. It has kept my lesions at bay, I don't feel much better. I'm always tired. Keeping tabs on the JC, the doctor was sending me for the wrong tests. The new test shows JC+ again at 2.4, way over. He says stay on Ocrevus, but I'm discontinuing so as to not get PML."

• Tcm...
• Taken for 2 to 5 years
• October 31, 2021

"I started this after 5 years of Tysabri. Being JC+, we were worried about PML. At first, it seemed good, but I started noticing my walking and endurance were getting worse. I went from using a cane for long distances to all the time and contemplating a walker most of the time. Also, foot drop is really bad, it went from occasional to all the time. My hand is becoming clumsy, and I'm experiencing numbness. I went in for my 5th full dose and to speak to the neurologist about other options, but he told me I couldn’t take the dose because my T cells were too low. It works well for some, but be aware that these types of reactions are happening for others."

• Ida...
• Taken for 6 months to 1 year
• June 21, 2020

"I went from 2 years taking Tecfidera to starting Tysabri for 5 months, then now 8 months in, now on Ocrevus. Just had a brain MRI and no change. I am worse off since starting Ocrevus as far as balance and now have to use my scooter 100% to get around, worse fatigue, balance, swelling in legs, and use of arm/hand along with bladder issues. I am embarrassed to say I have wet my bed twice since taking Ocrevus and never before with other DMTs. This DMT might work for some, but it’s just not for me. I am bummed as I have to wait till it’s out of my system to try a different DMT and don’t know which one or if I want any."

• Amy...
• Taken for 1 to 2 years
• December 29, 2019

"Ocrevus has done nothing to stop the progression of my MS. I talk to several other people who are taking it, and nobody has had success past the initial optimism. I have one friend whose wife decided not to take it because her doctor informed her she could stop her heart, and he does not believe the reports that it is worth the risk. She said the drug companies have to charge so much to create shareholder value and stockpile money for lawsuits when things go wrong. I am getting ready for a new year, with new insurance and all the authorizations. I am looking for alternatives because I want to skip it in 2020."

• She...
• Taken for 6 months to 1 year
• March 31, 2019

"I went on Ocrevus after the advice and 'rave reviews' I read on r/reddit about Multiple Sclerosis. After the infusion, I felt terrible, but that was expected. I also thought I would expect a continual rebound and eventually get better, but nope, it made no difference. I later learned that this could be fake? Ocrevus may work for some, but not all. For me, it made me worse, not better, and be careful what you read online. It's better to talk to someone you know in real life who has had this treatment."

• One...
• Taken for 1 to 6 months
• January 29, 2019

"I only had one Ocrevus infusion so far, and in my opinion, it is not going well. Several months later, I am still battling extreme fatigue, weight increase, blurry vision, a strange skin rash, and more anxiety than when I was on Gilenya. The first therapy I was on was Betaseron, and it was the absolute worst. Even with the MRI, more lesions were found on my brain and, believe it or not, on the nerves leading to my ears. I resolve to stay positive throughout the entire ordeal. This is something I must do daily. One day at a time :)!!"

• Man...
• Taken for 2 to 5 years
• April 15, 2023

"I was on Ocrevus for 3 years, so essentially 6 infusions, I believe. I was diagnosed with MS in 2005 when I was 21 years old and failed most of the baseline MS drugs due to side effects. I had a stint of no medications for 7 years with stable MRIs, but my neurologist convinced me to try Ocrevus since it seemed convenient to just 2 infusions a year. The first few infusions were rough; I experienced really bad inner bone aching. My arms and legs just felt like a toothache. My neurologist said he never heard of this and said it was unrelated. I disagreed. 2 years in, I had 3 teeth randomly crack while eating, needing crowns. Again, my neurologist said it was unrelated to the Ocrevus. By year 3, the hair loss, fatigue, and overall feeling of body weakness have gotten worse, so I decided to skip an infusion to see if it is the Ocrevus making me feel sickly… 8 months since my last infusion and I’m finally starting to feel human again, like I did before starting."

• Joh...
• Taken for 1 to 2 years
• June 2, 2022

"I have had one year on Ocrevus after being railroaded into it. Side effects include stiffness of lower limb joints, swelling to both legs, cystic acne to both sides of my chin just below the edges of my mouth. It's difficult being 50 and having to fight acne. I don't think I will carry on with it, as the side effects are not good and are present 24/7."

• Yor...
• Taken for 1 to 2 years
• January 22, 2020

"I have been on Ocrevus for a total of four infusions! Tysabri prior kept me going until JVC test. My health has declined drastically. Diagnosed at 37, now 60. My vision is blurred. Dizziness is overwhelming. Balance shot. But, my cognition has plummeted! More weakness and pain also. Feeling weaker. Constant infections, shortness of breath. Anxiety! Went from fairly clear-minded to isolating idiot!"

• Ann...
• Taken for 2 to 5 years
• November 20, 2019

"My sister has been on this a few years, and it hasn’t helped. She is worse than when she started and will soon need a wheelchair. I think I will discuss with her doctor at the next appointment. She has been on Copaxone and then Gilenya but was taken off both for various reasons. She is always very dizzy, and her cognition has gone from bad to worse."

• Val...
• Taken for 1 to 6 months
• June 17, 2019

"I have only had my first two halves of Ocrevus so far. The first round was in January and the second in February. I like only having to do it twice a year, but I really have not felt very well since starting it. I have had constant sinus issues and throat pain since I started it. I keep being put on steroids and antibiotics. Just days after finishing them, it comes back. I have been noticing more stomach issues also."

• Eri...
• Taken for 6 months to 1 year
• January 19, 2022

"I got diagnosed with MS in 2016. I was on Copaxone first, but I just kept getting new lesions. Lost full control of the right side of my body. I got it back mostly via steroids. I switched to Ocrevus for about a year. In that time, I had UTIs more often than not. I even got a gum infection from a routine dental cleaning. I was absolutely miserable. I switched to Tysabri and haven’t had a UTI since. I hope this helps someone."