Ocrevus for Multiple Sclerosis User Reviews (Page 2)

• MSe...
• Taken for 1 to 2 years
• April 9, 2021

"Ocrevus did not work well for me at all. After the third full infusion, I spent months in bed, vitals all over the place, pulse between 37 to 127, laying flat and with activity. SATing 70-80's with activity. Fatigue, weakness, dizzy, lightheaded, fainting, brain fog, and MS hug that felt like my ribs were cracking. Paralysis a week after infusion. In all fairness, it was a different type of drug for me. I do better with MS meds like Copaxone, Gilenya, and Tecfidera."

• lim...
• Taken for 1 to 2 years
• February 18, 2021

"I started taking Ocrevus in 2019. I was able to walk into the infusion center for my first half dose. In less than two years, I have gone from using a cane to a walker, and now I am totally wheelchair-bound. I will not take another infusion and have decided to stay off of any medication for now."

• Rez...
• Taken for 1 to 2 years
• January 4, 2021

"I was diagnosed with PPMS in January 2018 and my neurologist put me on OCREVUS. At the time of diagnosis of MS, I just had a little numbness in my left hand and a little weakness in my right leg. Now, after two years and three OCREVUS infusions, which were supposed to help slow down the disease progression, unfortunately, I am using a walker for walking at home due to a lack of balance, too much spasticity, weakness, numbness, bladder issues, and low back and neck pains! I believe this drug has destroyed my life. I think if I hadn't used this drug, my MS disease would not have progressed to this level. But I felt I had no other choice because my neurologist said this is the only medication for PPMS! Please be cautious when considering this medication."

• Anonymous
• Taken for 6 months to 1 year
• September 29, 2020

"I have had the second Ocrevus infusion, will NOT be getting another. Ocrevus gave me depression, anxiety, worsening/weakening of my arms (that were fine before taking this poison), feet blowing up (never had this problem before), etc. - I thought these things were part of my body adjusting to this drug. All started about one month after the first infusion, and went away three weeks before the second infusion. So I thought the drug was starting to work. Now a couple of weeks after the second infusion, all the side effects are returning. Hopefully this damage isn't permanent."

• RBa...
• Taken for 2 to 5 years
• September 25, 2020

"After beating my head against a brick wall with the drug company and my neurologist about the consistent weight gain from the Solumedrol that is a prerequisite for Ocrevus, I’m ceasing it. It’s just NOT worth spending a boring 7 hours in an infusion center. No progression of MS is fine, but the cytokine response was very unpleasant also, along with feeling absolutely drained for a month post-infusion. I still have symptoms that required treatment. All my life my blood pressure has been low, but on Ocrevus it’s now high enough to require treatment. I’m afraid the drug reps do way too good a job of marketing this awful substance."

• Liq...
• Taken for less than 1 month
• September 9, 2020

"After just having one Ocrevus infusion, my experience is as follows: I will not take this drug ever again! Why? The two big toes on my feet are black and falling off, the joints on my hands, ankles, fingers, and knees hurt, I have extreme fatigue, the knuckles on both hands are black, and I can no longer bend my legs!"

• DMC...
• Taken for 1 to 6 months
• August 2, 2020

"This was my second try for Ocrevus because the doctor wanted me on a treatment for MS. Guess what? I quickly know and remember now why I didn't want to be on this or continue with Ocrevus! Since my infusion on 6/29/20, I have felt terrible: severe fatigue, on and off depression, severe muscle aches at the back of both upper legs... trouble walking, feet sticking to floor causing falls or slides on carpet, headaches, and some cognitive issues on and off. So tired even after some sleep at nighttime. MS stinks, but when taking something that's supposed to help causing worse issues than began with, it really is more than stinks, it sucks! I definitely will not go on this ever again... just hoping this gets out of my system soon!"

• Bet...
• July 21, 2020

"Ocrevus almost finished off my sister. After a second infusion, she was hospitalized in a near-catatonic state and suffering from severe neurological effects. She had hallucinations, a heart attack, and nearly died. FDA should never have approved this drug without more testing. Strongly advise against taking Ocrevus. The effects of MS are less severe than the effects of Ocrevus. Do not allow a physician to upsell you on this lethal treatment."

• PMC...
• Taken for 6 months to 1 year
• June 30, 2020

"Ocrevus has hastened my demise: one new lesion, intense tingling in my neck and no strength. All of these deficiencies occurred in one year - the same year I was on Ocrevus. What is going on? How did this happen? The drug was supposed to help me, not hurt me. I do not believe any of the data from the testing. I am angry."

• Nin...
• June 28, 2020

"Ocrevus is a monster!! I have RRMS that is very aggressive. Three treatments later, I have absolutely NO quality of life. Side effects from this poison were not in the 'brochure' I received from my neurologist. Only the ones regarding initial ones at the time of infusion. More common side effects, I have 18 out of 24, Less Common, 2 out of 3, More Common, 9 out of 11. I started out using a forearm crutch, now a wheelchair. My cognitive skills have plummeted. I have no interest in anything, my passion was my art. Painting, designing, I feel flat, void of emotion. The ironic part is that I have no new lesions. I have decided not to take it, I will be taking Copaxone. I hope and pray the side effects will go away. I don't understand how a medication that does this is even on the market. Four point five out of 10 is not good odds. I haven't found any group or site that has good reviews that outweigh the bad. MS IS BAD ENOUGH, now mine is WORSE!"

• Dad...
• Taken for 2 to 5 years
• June 7, 2020

"I work in the porn industry, and I have MS. As soon as I started getting the infusions, I immediately started feeling signs of erectile dysfunction, and now I can't control my bladder. I guess my porn career is over with because of this drug."

• Mrm...
• Taken for 1 to 2 years
• April 28, 2020

"This drug has destroyed my body and made me lose a good paying job. Ocrevus really sucks, smh. I don't want anyone with MS to go through what I went through with the infusions!"

• Ron...
• Taken for 2 to 5 years
• April 26, 2020

"I have started my second year on Ocrevus and have gotten worse by the day. I wish I had never taken this drug, but my neurologist said I should, so I did, and there has been no improvement with anything, just worsening of symptoms! I’m 46, and balance, fatigue, and weakness, among other things, have become so much worse! It did not help my PPMS, it has just made things far worse for me."

• Ais...
• April 11, 2020

"Diagnosed RRMS in 2011. Been on Rebif, Tecfidera. Started my first two halves of Ocrevus in May 2019. I had less fatigue. I did notice I became more clumsy. Told my doctor. He said to keep taking it, it will get better. First full dose in October 2019, the clumsiness got even worse. I can't lift my feet. I went from lightly walking with a cane before Ocrevus to using a rollator. It does work for a lot of people, but people need to realize that a small percentage of us are becoming more disabled. I called the company and asked them about their trial. They said there is a small few that have problems with walking. It took me forever to find this page to figure out that I was not going crazy, something was really wrong. I have a new neurologist now that wants to say that I have progressed to SPMS, but I'm telling him to hold on. Does this drug make you progress, or do you have to wait for this to wear off? Anyone, when you stop taking it, do you ever get better with walking, and how long does it take."

• DM1...
• March 7, 2020

"I am so happy that I came here because I needed to hear from someone who understood. 4 infusions, approximately 3 weeks ago. I have never felt worse in my life. Sudden aches out of nowhere. My mobility is not much better, not being able to control my bladder, and I am going every 20 minutes. Praying to God this time you make it without an accident. The 1/2 infusion, I felt great and thought, great, let’s pray this is the one. Not having the energy to do anything but Netflix, and Netflix, lol. I will be refusing that next dose and pray this is something that will wear off."

• Bid...
• Taken for 1 to 6 months
• February 23, 2020

"I was diagnosed in May last year with MS. I am 33 M. I suffered optic neuritis, then vertigo, then optic neuritis, loss of movement in my right hand, with optic neuritis being a constant even still now. My right hand is able to grab and move things now, but I have the weirdest sensation, like a tingling numbness. My back is aching, and I have now got a kidney infection that has kicked my symptoms off even more, and my mental health is at an all-time low. I had Ocrevus in November and have continued relapsing, no remittance since before May. Now I am worried as these reviews are terrible."

• boo...
• Taken for 1 to 2 years
• February 21, 2020

"I've lost my job because of this drug (Ocrevus), basically, walking and balance have gotten worse, blurred vision, and back pain ever since I've started getting the infusions."

• Cod...
• Taken for 1 to 2 years
• February 14, 2020

"The swelling for me has been unbearable. Depression as well. The company should be more clear on side effects. It was the latest and greatest. I hope it works for everyone better than me, but if you have a choice, steer clear. It’s horrendous. I’ve been on Copaxone, Avonex, Tecfidera, and Ocrevus. I wanted to give Ocrevus a try. Huge mistake for me. Tecfidera was fine. Going back as soon as the O is gone. Never again."

• Mob...
• Taken for 1 to 2 years
• December 29, 2019

"Feel a lot better since I stopped getting the infusion. I just work out a lot and try to stay as active as possible. Ocrevus is rubbish."

• JRa...
• Taken for 2 to 5 years
• December 22, 2019

"Going on 6 doses and getting worse. Like a former reviewer stated, 'chemo did more.' Ocrevus is extremely overpriced since it is the only product approved for PPMS. It would be better to be on a placebo for a tenth of the price, but praying on people's desperation is what drug companies do. It seems someone has Facebook bots writing positive reviews for Ocrevus because the social media hype does not match real-world experience - like on here."

• Itg...
• Taken for 6 months to 1 year
• December 15, 2019

"I have PPMS and have been using Ocrevus for about 1 year as of this Friday. I notice my walking is worsening, and I think I'm relapsing now. Ocrevus does not work, it's only made me worse. Don't believe what you hear, read, or see. Someone, please pray for and with me."

• DTT...
• Taken for 1 to 2 years
• December 10, 2019

"I just took my 4th dose of Ocrevus. I have had PPMS for 20 years now. I have done chemo/steroid treatments (those worked best for me) and many of the injections. I also used CellCept for a number of years but was prone to infection while on it. The first three infusions did nothing, but they didn't hurt either. Having PPMS and nothing happening is a good thing. However, this last infusion, anxiety and depression hit me like a ton of bricks. I hope it wears off because I take enough meds without adding antidepressants to it."

• Dyi...
• November 14, 2019

"Have PPMS and received 1 dose. Developed shingles. My physical disability has gotten progressively worse since the infusion. Seeing a different neurologist in March to discuss alternatives."

• sin...
• Taken for 6 months to 1 year
• October 3, 2019

"I am 63-year-old female, have MS for 31 years. Tried all the drugs. Was on Copaxone in the 90s until Shared Solutions called me and told me to pay $750.00 a month. Went off of it, tried Ampyra, and in 2 months my back was so painful, had to go off. Next Tecfidera, had to go off because I have the JC virus. Tried Plegridy, took my white blood cells down. So the neurologist talked me into trying Ocrevus. Took 2 half infusions, then 6 months later the full-blown one in January of this year. 3 weeks later, I got shingles and a week later sinus and upper and lower respiratory tract infections. I was so sick I just wanted to die. Wished I had never taken it. I walk with crutches, and now I am about totally in a wheelchair. The doctor removed my license. Wished I would have never taken Ocrevus. I think the longer you have MS, it will do more harm. But these neurologists are pushing the drug on everybody. I went back to Copaxone."

• SMA...
• Taken for 1 to 6 months
• September 28, 2019

"This drug has been a nightmare for me. I would never recommend it unless it's a last resort. To be fair, some may find this drug successful. However, I do not. It made my MS symptoms worse."