Ocrelizumab User Reviews & Ratings (Page 2)

• Paul
• Taken for 2 to 5 years
• July 16, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I was diagnosed with MS in 2015. Had large attack. Was prescribed Copaxone. I liked it in the beginning but after awhile was skipping certain parts of my body because of reaction. When started Ocrevus I felt like a miracle has happened. Feel as good as I can feel. Started driving including on a freeway. Don't feel fatigue like I used to. And no shots. Just twice a year. Love it. The only BIG downside: over $100,000 per dose? Really? I think its way overpriced. Its a great medicine, but somebody is making billions of $ on it."

• slim...
• September 21, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I started Ocrevus in July of 2018 I have had three treatments and I am now worst then I have ever been with MS! My balance completely shot, I have pain I never had before, tightness and paralysis in left leg, stumbling much more can hardly pick my feet up, chest pain issues, headaches and cloudy thinking problems! This drug was push on me by my Neurologist despite me not wanted it, because he said it was the best thing out. Now I know it was the best thing for his pocket, and not my health! DONE with OCREVUS!!!!!!!!!!!"

• Summer
• Taken for 1 to 2 years
• July 25, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I had just turned 28, woke up one morning with my left hand numb. Over a few weeks it spread to my entire body and led me to get diagnosed in fall of 2018. I started out on gilenya but it seemed to fatigue me worse and I had more lesions since last scan. I switched to Ocrevus and it has been amazing. Since then I have had no side effects, a reduction in lesions, no enhancements and no new lesions. Nothing cures ms so of course fatigue and whatnot still happens, but I am a healthy and happy 30 year old living the good life thanks to ocrevus."

• Pik
• Taken for 1 to 2 years
• April 3, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "55, male, progressive multiple sclerosis since 2013. I've had Tecfidera, Gylenia, Plegrity, and started Ocrevus 7/17. The first dose lasted 3 months, second dose 2 months, third dose 5 wks. I'm worse now than ever. I've lost my job, I walk with cane, balance worse, pain worse. 2/2019 was fourth and last dose. It done nothing at all. "GARBAGE". At this moment I can barely walk, small step then stop. I'm so disgusted from all the hype about Ocrevus. It's good for RRMS people, not progressive. 6 months between doses it far apart. Mayzent just got approved, that's a daily DMT. Ocrevus ruined my life."

• Anonymous
• Taken for 6 months to 1 year
• September 29, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I have had the second Ocrevus infusion, will NOT be getting another. Ocrevus gave me depression, anxiety, worsening/weakening of my arms (that were fine, before taking this poison), feet blowing up (never had this problem before), etc.- I thought these things were part of my body adjusting to this drug. All started about one month after first infusion, and went away three weeks before the second infusion. So I thought the drug was starting to work. Now a couple weeks after the second infusion, all the side-effects are returning. Hopefully this damage isn't permanent."

• just...
• Taken for 1 to 2 years
• May 12, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "For my husband, it was a gift from God. April 2018, within two weeks, he went from a normal life to great difficulty walking, to being diagnosed .He was on Tysabri from June-October of 2018.He got weaker after each treatment, not knowing if it was the progression of the disease, the flare up, or the medication .He was using a four wheeled walker and falling. The day after his first half dose in January 2019, he was a bit stronger and by spring, he was only using a cane. He no longer uses a cane and is now able to drive a car, walk a distance, and take a shower without weakness. These results are not typical. There is not a lot of typical in MS, so don't be discouraged after trying one or more medications. I would suggest two things: have a neurologist for MS and to use a physical therapist who is certified in MS therapy soon after they are diagnosed. There are very specific exercises, it is not just about strengthening.There has been a decrease in a lesion after a year."

• Idaho
• Taken for 6 months to 1 year
• June 21, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I went from 2yrs taking Tecfidera to starting Tasabri for 5 months , then now 8 months in now on Ocrevus. Just has a brain MRI and no change . I am worse off since starting Ocrevus as Far as balance and now have to use my scooter 100% to get around, worse fatigue, balance, swelling in legs and use of arm/hand along with bladder issues. I am embarrassed to say I have wet my bed twice since taking Ocrevus and never before with other DMTs .This DMT might work for some , but It’s just not for me. I am bummed as I have to wait till it’s out of my system to try a different DMT and don’t know which one of if I want any"

• sindee
• Taken for 6 months to 1 year
• October 3, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I am 63 yr female have MS for 31 years. Tried all the drugs. was on copaxone in the 90's until shared solution call me and told me to pay $750.00 a month. Went off of it, tried amprya and in 2 months my back was so painful, had to go off. Next tecfidera , had to go off cause I have the JC virus. Tried plegridy, took my white blood cell's down. So the neuro talked me into trying Ocrevus. Took 2 half fusions then 6 months later the full blown one in January of this year. 3 weeks I got the shingles and a week later a sinus and upper and lower respiratory tract infections. Was so sick I just wanted to die. Wished I had never taken it. I walk with crutches and now I am about totally in a wheelchair. Dr. removed my license. Wished I would have never taken ORCREVUS. I think the longer you have MS , it will do more harm. But these Neuro's are pushing the drug on everybody. I went back to Copaxone."

• Queen...
• Taken for 1 to 2 years
• September 20, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I had my 4th infusion 1 week ago and I feel worse than I ever have. My legs feel like they're 2x4s anchored in concrete. I am in such a deep depression that I cry over everything (I've been on 2 antidepressants for years) and on top of that I am so exhausted, more so than normally, that I just want to stay in bed and sleep. (I still work full time in a desk job.) Every single struggle I have had since I became Secondary Progressive is enhanced by at least 4 times worse. I am going to talk to my Neurologist tomorrow, as I will be changing my course of treatment."

• Ron
• Taken for 2 to 5 years
• April 26, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "Have started second year on Ocrevus and have gotten worse by the day. I wish I never had taken this drug but neurologist said I should do I did and no improvement with anything just worsening of symptoms! I’m 46 and balance fatigue and weakness amongst other things have became so much worse! Did not help my PPMS it’s just made things far worse for me."

• Ksano
• Taken for 1 to 2 years
• February 28, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I have am 58 and have had MS for 35+ years, I am now SPMS. I have been on copaxone and Betaseron. I started Ocrevus in December of 2018, I was excited because it was only twice a year. It has worked well for me. Has lessened my fatigue and no progression ( which is a good thing). I am so sorry for all those people who have not had any success on it."

• Old...
• Taken for less than 1 month
• July 11, 2021

Ocrevus (ocrelizumab) for Multiple Sclerosis "Had just taken the 2nd initial dose. About a week later, all heck broke loose with my body. I can not say it was the Ocrevus, but it was the only new thing. Last time I had a seizure was 2016. About a week after 2nd initial dose, I experienced a raging UTI and started having seizures. Long story short, I was in the hospital for a week, rehab 5 days when they called my wife to say I was unresponsive then back to the hospital for 1 more week. During this 3 week period I experienced, that I knew of, 4 more seizures. Ocrevus is not for me."

• limber
• Taken for 1 to 2 years
• February 18, 2021

Ocrevus (ocrelizumab) for Multiple Sclerosis "I started taking Ocrevus in 2019. I was able to walk into the infusion center for my first half dose. In less than two years I have gone from using a cane to a walker and now I am totally wheelchair-bound. I will not take another infusion and have decided to stay off of any medication for now."

• KBae
• Taken for less than 1 month
• April 23, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I was having trouble walking—poor balance, stiffness, slowness, and super heavy feeling legs. I went in for my first Ocrevus treatment yesterday— half dose and second one in two weeks. Had a rough night sleeping...abdominal pain, headaches, and nausea. Woke up this morning and feel great! I don’t know if it’s a placebo effect or not, but I feel like a different person. I am walking without stiffness, lumbering, or heaviness in my legs. It could be the pretreatment of steroids I suppose, but my initial response is cautiously optimistic."

• JRano
• Taken for 2 to 5 years
• December 22, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "Going on 6 doses and getting worse. Like former reviewer stated "chemo did more." Ocrevus is extremely overpriced since it is the only product approved for PPMS. It would be better to be on a placebo for a tenth of the price, but praying on people's desperation is what drug companies do. It seems someone has Facebook bots writing positive reviews for Ocrevus because the social media hype does not match real world experience - like on here."

• Val
• Taken for 1 to 6 months
• June 17, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I have only had my first two halves of OCREVUS so far. First round in January and second in February. I like only having to do it twice a year but I really have not felt very well since starting it. I have had constant sinus issues and throat pain since I started it. Keep being put on steroids and antibiotics. Just days after finishing them it comes back. I have been noticing more stomach issues also."

• Silver...
• Taken for less than 1 month
• May 14, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "Due to the Covid -19 , there was a delay in taking my second Ocrevus infusion. I had the second attack on April 24, 2020, I suffered from vertigo, stiffness, and heavy leg . I had the second infusion on April 28, 2020, It went perfectly well . Also I did a second MRI for the brain , it shows there is an interval decrease in size of the largest lesion at the right frontal deep white matter now measures 1.3 x 1 cm (before it was: 2.2 x 1.6 cm) and no enhancement or fluid diffusion restriction. This drug works perfectly for me and I hope it works for you !"

• Sherly
• Taken for 6 months to 1 year
• March 31, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "I went on Ocuvus after the advice and "rave reviews" I read on r/reddit about Multiple Sclerosis. After the infusion I felt terrible but that was expected. I also thought I would expect a continual rebound and eventually get better but nope, it made no difference. I later learned that this could be fake? Ocrevus may work for some but not all. For me it made me worse not better and be careful what you read online. It's better to talk to someone you know in real life who has had this treatment."

• Erica...
• October 30, 2022

Ocrevus (ocrelizumab) for Multiple Sclerosis "My first dose I felt horrible and my MS progressed I had to stop driving. Second dose same feelings MS progressed to not being able to walk well even with walker. Doctor ask me to take another dose so I did I have been stuck in the bed ever since I have to use a wheelchair and a lift to be able to do anything. Please make sure if you are a natural redhead to really think about using this medication."

• Yorky...
• Taken for 1 to 2 years
• January 22, 2020

Ocrevus (ocrelizumab) for Multiple Sclerosis "I have been on Ocrevus for a total of four infusions! Tysabri prior kept me going until jvc test. My health has declined drastically. Diagnosed at 37 now 60. My vision is blurred. Dizziness is overwhelming. Balance shot. But, my cognition has plummeted! More weakness and pain also. Feeling weaker. Constant infections shortness of breath. Anxiety! Went from fairly clear minded to isolating idiot!"

• irulya
• Taken for 1 to 6 months
• September 23, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "My experience with Ocrevus is just bad. I have PPMS and had 3rd infusion in August. Conditions are getting worth with vision and walking. Doctor said third infusion can improve my condition, but it vice versa."

• GGG
• Taken for 1 to 2 years
• June 12, 2022

Ocrevus (ocrelizumab) for Multiple Sclerosis "Wish I had found this site before taking the infusions. Started feeling some worsening of the side effect symptoms during the 2nd infusion so googled patient reviews that confirmed to me it wasn’t my imagination as the neurologists say and refuse to listen! The worsening of my symptoms and some new ones includes reduced mobility and increased fatigue & sensations but what jumped out at me was the review on here about TMJ! That reminded me I had experienced incredibly painful TMJ after the first infusion but had never related it to the infusion as neurologists unanimous it wasn’t! I had forgotten about it until it returned immediately after infusion 2 even worse so despite not being keen on medicating I’ve had to resort to taking anti-epileptic Tegretol in addition to Pregabelin to try to manage excruciating pain.I’m never taking Ocrevus again but will the new/worse effects ever go away?"

• Anony...
• Taken for 6 months to 1 year
• September 22, 2022

Ocrevus (ocrelizumab) for Multiple Sclerosis "Only made it to second full dose of Ocrevus and the pneumonia bouts began. I was hospitalized constantly, 10 bouts of pneumonia later, sepsis in addition, twice. This drug nearly killed me and has weakened my immune system so much that I can't take anything for my MS. Developed pulmonary hypertension by 7th bout of pneumonia. Stay away from this drug. Other than MS, I was in good health. Spent 40th birthday in hospital. Now every time I get a fever I freak out. I have 40% I won't make it within 5 years now. Respiratory infections are a side effect, it's in the insert for it. ER doctor tried to argue with me about it, understandably so, as it isn't listed under side effects if you simply Google it. I found it buried in the insert under the study findings. Physicians need to be made aware of this. Guaranteed quite a few people have died from this and cause of death listed as covid. Beware."

• Wayne
• March 24, 2019

Ocrevus (ocrelizumab) for Multiple Sclerosis "Am 68 years old with relapsing-remitting MS multiple sclerosis (RRMS) for 23 yrs. Have taken Betaseron and Copaxone. Take Ampyra. No problems w injection site but discontinued BOTH Betaseron & Copaxone due to muscle cramps . MRI stable but neuro suggested OCREVUS. Only had one infusion. Didn’t return for 2nd half of first round. Neuro and I agree to discontinue Ocrevus for me for good. Side effects of Ocrevus immediate and severe. Six weeks in and still am recovering from infusion. Immediately after infusion which I slept through: I awoke unable to recognize my surroundings I did recognize family but I felt I was in a nightmare. Cognition was altered and diminished. I was also very weak especially my legs EXTREMELY frightening. Severe confusion resolved mostly in 24 hours .. slowly. The weakness has lingered requiring pulse steroids with partial resolution. Slowly improving with rest & exercise and prayer. The infusion was worse than any flare in my 20+ years of MS. Currently hesitant to start another DMD"

• shelly
• Taken for 6 months to 1 year
• October 21, 2018

Ocrevus (ocrelizumab) for Multiple Sclerosis "It did not work for me at all. I started the treatment on my 15th year of MS, and I got quite a bit worse. After being on it for one year told my doctor no more! Now I have trouble walking, fatigue is way worse. Another of the side effects that affects me is rapid heartbeat and faster breathing that still hasn't gone away and my last infusion was 7 months ago. I'm older, 57 and there are numerous cases where older people like me do not respond well to ocrevus. So if you're in my age range proceed with caution, but I would not recommend it!"