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User Reviews for Nivolumab to treat Non-Small Cell Lung Cancer

Also known as: Opdivo

Nivolumab has an average rating of 4.8 out of 10 from a total of 35 ratings for the treatment of Non-Small Cell Lung Cancer. 40% of those users who reviewed Nivolumab reported a positive effect, while 54% reported a negative effect.

Nivolumab Rating Summary

4.8/10 average rating

35 ratings from 37 user reviews.

Compare all 75 medications used in the treatment of Non-Small Cell Lung Cancer.

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Reviews for Nivolumab

Pat · Taken for 5 to 10 years February 13, 2021

Opdivo (nivolumab): “My husband, a smoker for 60+years, was diagnosed with nsclc in 2015. After several months of traditional ineffective chemo, his doctor recommended the newly discovered Opdivo. That was late 2015. It is now Feb 2021 and he is still going strong with no/minimal side effects. As I’m sure many fortunate patients can attest, every day is a blessing!”

10 / 10
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Fl Shopper · Taken for less than 1 month May 29, 2020

Opdivo (nivolumab): “My husband was told he had 6-8 months to live. He had radiation and chemo and did well. After 14 months, his MRI showed an increase in size of his tumors. Six weeks before he died we were on a cruise. Four weeks after this his doctor wanted him to try Opdivo. He was dead within 7 days. Please read all you can about these drugs before making a choice.”

1 / 10
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Anonymous · Taken for 2 to 5 years May 24, 2020

Opdivo (nivolumab): “My mom has stage 4 nslc on year 7. She started Opdivo 4 years ago and at age 74 she’s still going strong. Minimal side effects cancer is almost non existent.”

10 / 10
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Frequently asked questions

Larrk · Taken for 1 to 6 months September 15, 2015

Opdivo (nivolumab): “I started on Opdivo 6 weeks ago because my chemo and radiation did not keep the cancer at bay. I decided to try it to build up my immune system. The first time I had it as I was at the end of the IV I started feeling cold and my blood pressure shot up. The nurses gave me shots to bring it down. The second time I had it, every other week, They gave me some steroids first so I wouldn't have a reaction and I didn't. I did have some achey bones and breakthrough pain. The third time I had it and last time It went fine until I started having 103 degree fevers and my entire body broke out in a red itchy rash. I am on Prednisone IV's and I'm weaning off it right now but the rash is so itchy and nothing takes it away! Too many reactions...”

1 / 10
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Adla1889 · Taken for 1 to 2 years September 17, 2016

Opdivo (nivolumab): “Original diagnosis stage IV lung cancer, July 2013. Received chemotherapy every 3 weeks for two years.July 2015 PET test showed cancer had metastasized to liver. Started on Opdivo August 2015. I have been on opdivo every two weeks since August 2015. Last CAT Scan (June 2016) tumor in liver is shrinking AND NO LONGER ANY TUMORS IN EITHER OF MY LUNGS. Slight side effects minimal, slight body aches and tiredness.”

10 / 10
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Davidkiser August 11, 2017

Opdivo (nivolumab): “My mom started this treatment after her oncologist suggested that it was an alternative to other Chemo because is it was not as harsh. Well after her initial treatment ($27,000) she started swelling, couldn't eat, no energy, confused basically confined to her bed, and then the 2nd treatment, she had developed pneumonia and was hospitalized 4 days later, mom passed after 4 days, numerous antibiotics, blood transfusions and a lot of agony. I would not recommend this treatment to anyone. Its awful with life threatening side effects. I think this is just a money racket to get cash from the dying and the government.”

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hesees July 31, 2019

Opdivo (nivolumab): “I had NSCLC. I found out about April of 2018. The hospital I was going to tried radiation and chemo. The cancer had moved to the lymph nodes in my neck. The radiation shrank it some but it came roaring back. My Oncologist started me on Opdivo about October of 2018 and it has been smooth sailing so far. Here it is July 31 2019 and I look forward to maybe only one or two more treatments. My last two PET scans have been good. There is no doubt in my mind that I am alive because of this treatment. I have had some shortness of breath, quite a lot of fatigue, a rash or two, some itching.. Nothing unbearable, just uncomfortable. I am grateful for this technology. Having said that, I quite understand that people who have had negative experiences might even hate it, but how could I not give myself this chance?”

10 / 10
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More FAQ

Babe, as my husband called me · Taken for less than 1 month February 20, 2017

Opdivo (nivolumab): “My husband was diagnosed with NSCLC in late April 2016. Started on chemo treatments in May 2016. Received 6 rounds of chemo. His first scan, I believe it was after 2 rounds of chemo, came back "great news", cancer had shrunk & some spots disappeared (or were hiding). He continued with chemo and had another scan in November 2016, now there were some new spots. His oncologist said he could not receive any further chemo treatments and wanted him to start on opdivo. First infusion of opdivo was November 23, 2016. By Thansgiving, November 24, he was not feeling well, so Thanksgiving was cancelled. On December 5, he had severe stomach pain, so he went to ER and was admitted. He was discharged on December 8. He passed away Dec 14, 2016.”

1 / 10
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Riccigirl · Taken for 1 to 6 months November 23, 2016

Opdivo (nivolumab): “My mom started on radiation and chemo, traditional chemo did not work because the cancer had spread to her bone marrow. Her doctor started her on Opdivo and she went down hill from there. She had pneumonia and joint pain, diarrhea etc, the side effects were worst then the cancer. I would not recommend this drug to anyone, taking this drug was a HUGE set back for my mom, she passed away yesterday 11/21/16. Please do your homework before taking it.”

1 / 10
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Terri73 July 20, 2017

Opdivo (nivolumab): “My Dad started Optivo in May 2017, by the second treatment he was terrible sick, weak, no appetite, upset stomach and talking out of his head and confused. By the third treatment he so much fluid in his feet and was so weak he couldn't even move himself in bed..they should have never done a third treatment but was more concerned about the price of the treatment, my Dad died a week and a half later, in my opinion he spent the last part of his life miserable because of this medicine.”

1 / 10
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ggasd July 24, 2016

Opdivo (nivolumab): “took it after chemo stopped working.after 2 years...first 2 infusions went ok...3 days after 3rd infusion..my legs/feet stopped working..stayed in hospital 4 days legs/ feet slowly coming back..ran every test known to man,,,all normal..conclusion is a side effect of OPDIVO now off all treatment trying to resolve...better but still some weakness and balance issues”

2 / 10
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Bunnyclover · Taken for 1 to 6 months August 2, 2017

Opdivo (nivolumab): “My mother had ovarian cancer then non small lung cancer. This drug in our family opinion was terrible. We feel it hastened her death and she would have been better off with out it. Terrible side effect - she was covered with some type of horrible rash after the second round. And in hospital . Every time she took it - she would get worse. She got to where she couldn't walk . I think she would have had a better end of life without this. It felt like they were using her for money. : (”

1 / 10
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KK · Taken for 1 to 2 years October 7, 2018

Opdivo (nivolumab): “I started Opdivo in 2010 to 2012 had stage IV lung cancer it is now 2018 and living a normal life. Thanks for this product it saved my life . In 2010 the life expectancy was only 1 to two years on chemo .”

10 / 10
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Anonymous · Taken for less than 1 month January 6, 2017

Opdivo (nivolumab): “My husband had 2 treatments, by the 3rd scheduled appt. he had died. My husbands primary cancer was renal carcinoma which spread to lung after 3 years. He started having a stiff neck with a lot of pain, very low blood pressure, and later developed an intracranial bleed, that was it, over. I really believe the drug may have caused more problems than good. Like the previous reviewer said, do your homework.”

1 / 10
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wolfcook2005 August 29, 2016

Opdivo (nivolumab): “after chemo and radiation started on opdivo,had 8 treatments with the only side effect being sore mouth,dr took me off of it because my scans didn`t show much progress,sent me to cleveland clinic and they said to start back on it,now have sore mouth and my skin is so itchy i can barley stand it”

6 / 10
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Jeannr May 19, 2017

Opdivo (nivolumab): “My husband was diagnosed with non small cell lung cancer in October 2012. He had surgery to remove 1/3 of his lung, chemo and radiation. In July 2013 had a double by pass surgery. July 2014, it matastised to the brain. Gamma knife shrunk the 2 tumors In September 2014 started another round of chemo, but 2 months later he had a TIA, they took him off the chemo. In September 2016 started Opdivo. Doing well no new tumors in the lungs or brain. Side effects are severe tiredness, sleeps all the time, body aches, depression. His quality of life is very bad . The depression really worries me. Has any one else been dealing with depression and severe mood swings on this drug?”

8 / 10
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Hill · Taken for less than 1 month July 27, 2018

Opdivo (nivolumab): “My husband had stage 3B NSCLC with a small metastasis on his spine. Oncologist recommended Opdivo. Only had 2 treatments. After the first treatment he ended up in hospital with severe shortness of breath. He passed away a few days after the second treatment as the drug attacked healthy heart muscle. Don’t try this drug!”

1 / 10
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Broken hearted · Taken for 6 months to 1 year March 11, 2020

Opdivo (nivolumab): “My husband had been fighting this horrible disease (NSCLC) for two years. At one point the dr. said he was in remission. But the dr. still wanted him to try opdivo. I honestly believe the opdivo was what finished him. He had been on the opdivo for 3 months when the dr. said sorry but you have 3 months left and we are not going to continue the opdivo. Basically he said go home and die. Unfortunately he died 2 weeks later.”

1 / 10
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KJ · Taken for 1 to 6 months May 6, 2018

Opdivo (nivolumab): “My husband was given opdivo for stage IV non-small cell lung cancer. Three days after his third treatment, he became seriously ill (short of breath, fatigue, increased oxygen requirements) and was hospitalized. His oxygen needs increased from a baseline of 5L to 13L upon admission. Three days later, his oxygen needs increased to 30L and he passed away 10 days after his third treatment. I believe that Optivo contributed to his death at age 57. Looking back, he should never have started this medication.”

1 / 10
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For My Husband · Taken for 1 to 6 months July 8, 2016

“My Husband started on Opdivo in late January 2016 after just a slight change in his NSCLC Adinocarcinoma. Almost immediately he stopped eating and it was like he went over a cliff. None of the dr's thought it was the opdivo. They thought he was having stomach issues and nothing made sense. He got so weak by the 4th treatment I was not going to let him have a 5th. When they checked him he was almost in Adrenal Failure. Heartbreaking. He regained some strength, but not much. I lost my best friend, the love of my life, my husband, my partner on May 27, 2016 at 4:57 pm. This time last year he was baling our hay for our farm on a rough chemo mixture. The toughest man ever. I hate Opdivo and I hate cancer.”

1 / 10
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Sister · Taken for 6 months to 1 year July 14, 2018

Opdivo (nivolumab): “I am sharing my sisters experience with Opdivo. She had stage 3 NSCLC (non-small cell lung cancer). She started opdivo after a little over 2 years of chemo. The first year on it went great. All her scans showed no cancer. Then all of a sudden all her blood counts dropped. She was then diagnosed with AML (acute myeloid leukaemia) due to the opdivo.S he lived a month after that. The Doctors said the opdivo gave her a year she wouldn't have had with chemo. There is that but is only a chance to live longer with Opdivo. I don't believe it is a cure now. We are thankful for that one good year.”

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Jessicap85 · Taken for less than 1 month March 29, 2018

Opdivo (nivolumab): “My Dad had lung cancer, and it had spread to his liver. His doctor recommended starting Opdivo because chemo was no longer an option. He got his first treatment on July 24, 2017. He began having constipation issues, severe stomach pain, no appetite, with in a week of having the first treatment. Was admitted to the hospital August 5th, and died August 14th. He was suffering and miserable his last few weeks of life. I believe this medication contributed to his death. I think a persons body needs to be in a specific state for it to be successful. By reading the reviews it works wonders on some, and others they die very shortly after starting treatment.”

1 / 10
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Zhill December 20, 2017

Opdivo (nivolumab): “I would not be alive today without Opdivo. A year and a half ago I was diagnosed with lung cancer. I weighed 95 lbs. and I already had radiation and chemotherapy. I had no appetite and was continuing to lose weight. My doctors put me on Opdivo in October 2016. It is now December 2017 and I feel fabulous! My scans have been great and my weight is 145 lbs. I feel better and look better than I have in years. Thank you so much for saving my life.”

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Gramps44 December 4, 2015

“36-40 hours after 3rd treatment muscles and legs were so weak could not support self or move feet could barely shuffle. 4 days in hospital and all teatsand scans normal so had to be the Opdivo. Will not take that again not worth inability to walk”

2 / 10
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einarf · Taken for 1 to 6 months September 15, 2015

“Been on Nivolumba since July 31, every 2 weeks. As of Sept.14 I've lost about10 lbs, have loss of appetite, cough, and fatigue. I will be starting acupuncture today (9/15) and believe this will help me. I went through 6 weeks (every day)of radiation and chemo last year and started acupuncture at the very beginning of treatments and never had any side effects except loss of hair and I walked 2 miles every day while under going treatments. I'm very encouraged and believing that Nivolumba will eliminate my cancer. I can't compare the side effects of my treatments last year with Nivolumba because of the timely maner of acupuncture.”

9 / 10
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Powder2016 January 19, 2017

Opdivo (nivolumab): “I have been taking Ondivo since March 2016. My cancer is now in my liver and the medicine seems to be keeping the cancer strictly in my liver, due to a PET scan in 12-2016. I have developed a red rash and found that lotion and creams do help. Lately I have noticed my nails looking strange and the thumb nails look like they may come off. Have not discussed with my doctor, and will do so at the next appointment. My cancer started in a knot on my neck and in my lung as stage 4. I only have the cancer in my liver. I am unsure as to what I will do considering that cancer has been contained to my liver only. I have had cancer since August 2013.”

7 / 10
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Jnetk2190 December 27, 2017

Opdivo (nivolumab): “My husband has Stage 4 non-small cell lung cancer. He is 82 years old. He has been on Opdivo for 18 months. It has kept his cancer in remission with no new metastasis. He has some itching but no other side effects. It has been a wonder drug for him.”

10 / 10
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Scarlett · Taken for 1 to 6 months October 12, 2018

Opdivo (nivolumab): “My mom is 78 years old with stage iv lung cancer. She has had 6 treatments with Opdivo so far; minimal side effects. She was on Pemetrexed for 2 years, then in remission for almost 18 months. Her oncologist wanted to try Opdivo. A 93 year old gentleman who comes to the same cancer clinic biweekly, has been on Opdivo for 2 years now for melanoma. His daughter stated that he has minimal side effects from the medication.”

8 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

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