Nivolumab for Non Small Cell Lung Cancer User Reviews
Brand names: Opdivo
Nivolumab has an average rating of 5.2 out of 10 from a total of 42 reviews for the treatment of Non Small Cell Lung Cancer. 45% of reviewers reported a positive experience, while 50% reported a negative experience.
Reviews for Nivolumab
- Lar...
- Taken for 1 to 6 months
- September 15, 2015
Opdivo (nivolumab) "I started on Opdivo 6 weeks ago because my chemo and radiation did not keep the cancer at bay. I decided to try it to build up my immune system. The first time I had it, as I was at the end of the IV, I started feeling cold and my blood pressure shot up. The nurses gave me shots to bring it down. The second time I had it, every other week, they gave me some steroids first so I wouldn't have a reaction, and I didn't. I did have some achy bones and breakthrough pain. The third time I had it, and last time, it went fine until I started having 103-degree fevers and my entire body broke out in a red itchy rash. I am on Prednisone IVs, and I'm weaning off it right now, but the rash is so itchy, and nothing takes it away! Too many reactions..."
- Dav...
- August 11, 2017
Opdivo (nivolumab) "My mom started this treatment after her oncologist suggested that it was an alternative to other chemo because it was not as harsh. Well, after her initial treatment ($27,000), she started swelling, couldn't eat, had no energy, was confused, basically confined to her bed, and then the second treatment, she developed pneumonia and was hospitalized 4 days later. Mom passed after 4 days, after numerous antibiotics, blood transfusions, and a lot of agony. I would not recommend this treatment to anyone. It's awful with life-threatening side effects. I think this is just a money racket to get cash from the dying and the government."
Frequently asked questions
- Bab...
- Taken for less than 1 month
- February 20, 2017
Opdivo (nivolumab) "My husband was diagnosed with NSCLC in late April 2016. Started on chemo treatments in May 2016. Received 6 rounds of chemo. His first scan, I believe it was after 2 rounds of chemo, came back 'great news', cancer had shrunk, and some spots disappeared (or were hiding). He continued with chemo and had another scan in November 2016, now there were some new spots. His oncologist said he could not receive any further chemo treatments and wanted him to start on Opdivo. The first infusion of Opdivo was November 23, 2016. By Thanksgiving, November 24, he was not feeling well, so Thanksgiving was canceled. On December 5, he had severe stomach pain, so he went to the ER and was admitted. He was discharged on December 8. He passed away Dec 14, 2016."
- Ter...
- July 20, 2017
Opdivo (nivolumab) "My dad started Opdivo in May 2017. By the second treatment, he was terribly sick, weak, no appetite, upset stomach, talking out of his head, and confused. By the third treatment, he had so much fluid in his feet and was so weak he couldn't even move himself in bed. They should have never done a third treatment but were more concerned about the price of the treatment. My dad died a week and a half later. In my opinion, he spent the last part of his life miserable because of this medicine."
Are you taking this medicine?
Your review helps others make informed decisions.- Ric...
- Taken for 1 to 6 months
- November 23, 2016
Opdivo (nivolumab) "My mom started on radiation and chemo, traditional chemo did not work because the cancer had spread to her bone marrow. Her doctor started her on Opdivo, and she went downhill from there. She had pneumonia and joint pain, diarrhea, etc. The side effects were worse than the cancer. I would not recommend this drug to anyone. Taking this drug was a HUGE setback for my mom, she passed away yesterday, 11/21/16. Please do your homework before taking it."
- gga...
- July 24, 2016
Opdivo (nivolumab) "Took it after chemo stopped working. After 2 years, first 2 infusions went okay. 3 days after the 3rd infusion, my legs/feet stopped working. Stayed in the hospital for 4 days, legs/feet slowly coming back. Ran every test known to man, all normal. Conclusion is a side effect of Opdivo. Now off all treatment, trying to resolve. Better but still some weakness and balance issues."
- hes...
- July 31, 2019
Opdivo (nivolumab) "I had NSCLC. I found out about April of 2018. The hospital I was going to tried radiation and chemo. The cancer had moved to the lymph nodes in my neck. The radiation shrank it some, but it came roaring back. My oncologist started me on Opdivo about October of 2018, and it has been smooth sailing so far. Here it is July 31, 2019, and I look forward to maybe only one or two more treatments. My last two PET scans have been good. There is no doubt in my mind that I am alive because of this treatment. I have had some shortness of breath, quite a lot of fatigue, a rash or two, some itching... Nothing unbearable, just uncomfortable. I am grateful for this technology. Having said that, I quite understand that people who have had negative experiences might even hate it, but how could I not give myself this chance?"
- Anonymous
- Taken for less than 1 month
- January 6, 2017
Opdivo (nivolumab) "My husband had 2 treatments. By the 3rd scheduled appointment, he had died. My husband's primary cancer was renal carcinoma, which spread to the lung after 3 years. He started having a stiff neck with a lot of pain, very low blood pressure, and later developed an intracranial bleed. That was it, over. I really believe the drug may have caused more problems than good. Like the previous reviewer said, do your homework."
- wol...
- August 29, 2016
Opdivo (nivolumab) "After chemo and radiation, started on Opdivo, had 8 treatments with the only side effect being sore mouth. Dr. took me off of it because my scans didn't show much progress, sent me to Cleveland Clinic, and they said to start back on it. Now have sore mouth and my skin is so itchy I can barely stand it."
- KKa...
- Taken for 1 to 2 years
- October 7, 2018
Opdivo (nivolumab) "I started Opdivo in 2010. From 2010 to 2012, I had stage IV lung cancer. It is now 2018, and I'm living a normal life. Thanks for this product, it saved my life. In 2010, the life expectancy was only 1 to 2 years on chemo."
- Bun...
- Taken for 1 to 6 months
- August 2, 2017
Opdivo (nivolumab) "My mother had ovarian cancer, then non-small lung cancer. This drug, in our family opinion, was terrible. We feel it hastened her death, and she would have been better off without it. Terrible side effect - she was covered with some type of horrible rash after the second round. And in the hospital. Every time she took it, she would get worse. She got to where she couldn't walk. I think she would have had a better end of life without this. It felt like they were using her for money. :("
- Jea...
- May 19, 2017
Opdivo (nivolumab) "My husband was diagnosed with non-small cell lung cancer in October 2012. He had surgery to remove 1/3 of his lung, chemo, and radiation. In July 2013, he had a double bypass surgery. In July 2014, it metastasized to the brain. Gamma knife shrunk the 2 tumors. In September 2014, he started another round of chemo, but 2 months later he had a TIA, they took him off the chemo. In September 2016, he started Opdivo. Doing well, no new tumors in the lungs or brain. Side effects are severe tiredness, sleeps all the time, body aches, depression. His quality of life is very bad. The depression really worries me. Has anyone else been dealing with depression and severe mood swings on this drug?"
- Hil...
- Taken for less than 1 month
- July 27, 2018
Opdivo (nivolumab) "My husband had stage 3B NSCLC with a small metastasis on his spine. Oncologist recommended Opdivo. Only had 2 treatments. After the first treatment, he ended up in the hospital with severe shortness of breath. He passed away a few days after the second treatment as the drug attacked healthy heart muscle. Don’t try this drug!"
- Fl ...
- Taken for less than 1 month
- May 29, 2020
Opdivo (nivolumab) "My husband was told he had 6-8 months to live. He had radiation and chemo and did well. After 14 months, his MRI showed an increase in size of his tumors. Six weeks before he died, we were on a cruise. Four weeks after this, his doctor wanted him to try Opdivo. He was dead within 7 days. Please read all you can about these drugs before making a choice."
- E S...
- Taken for 1 to 2 years
- December 7, 2021
Opdivo (nivolumab) "My father was diagnosed with stage IV lung and brain cancer back in 2015. He went through chemo and then 2 years of Opdivo. Now, 6 years later, he’s cancer-free. How does that even happen? He never complained about any side effects, but he also doesn’t share or just doesn’t feel things. I’m sorry for those that had bad experiences with this medication, but it seems to be a miracle for others."
- For...
- Taken for 1 to 6 months
- July 8, 2016
"My husband started on Opdivo in late January 2016 after just a slight change in his NSCLC adenocarcinoma. Almost immediately, he stopped eating, and it was like he went over a cliff. None of the doctors thought it was the Opdivo. They thought he was having stomach issues, and nothing made sense. He got so weak by the fourth treatment I was not going to let him have a fifth. When they checked him, he was almost in adrenal failure. Heartbreaking. He regained some strength, but not much. I lost my best friend, the love of my life, my husband, my partner on May 27, 2016, at 4:57 PM. This time last year, he was baling our hay for our farm on a rough chemo mixture. The toughest man ever. I hate Opdivo, and I hate cancer."
- KJa...
- Taken for 1 to 6 months
- May 6, 2018
Opdivo (nivolumab) "My husband was given Opdivo for stage IV non-small cell lung cancer. Three days after his third treatment, he became seriously ill (short of breath, fatigue, increased oxygen requirements) and was hospitalized. His oxygen needs increased from a baseline of 5L to 13L upon admission. Three days later, his oxygen needs increased to 30L, and he passed away 10 days after his third treatment. I believe that Opdivo contributed to his death at age 57. Looking back, he should never have started this medication."
- Jes...
- Taken for less than 1 month
- March 29, 2018
Opdivo (nivolumab) "My dad had lung cancer, and it had spread to his liver. His doctor recommended starting Opdivo because chemo was no longer an option. He got his first treatment on July 24, 2017. He began having constipation issues, severe stomach pain, no appetite, within a week of having the first treatment. He was admitted to the hospital on August 5th and died on August 14th. He was suffering and miserable his last few weeks of life. I believe this medication contributed to his death. I think a person's body needs to be in a specific state for it to be successful. By reading the reviews, it works wonders on some, and others die very shortly after starting treatment."
- Bro...
- Taken for 6 months to 1 year
- March 11, 2020
Opdivo (nivolumab) "My husband had been fighting this horrible disease (NSCLC) for two years. At one point, the doctor said he was in remission. But the doctor still wanted him to try Opdivo. I honestly believe the Opdivo was what finished him. He had been on the Opdivo for three months when the doctor said sorry, but you have three months left and we are not going to continue the Opdivo. Basically, he said go home and die. Unfortunately, he died two weeks later."
- Sis...
- Taken for 6 months to 1 year
- July 14, 2018
Opdivo (nivolumab) "I am sharing my sister's experience with Opdivo. She had stage 3 NSCLC (non-small cell lung cancer). She started Opdivo after a little over 2 years of chemo. The first year on it went great. All her scans showed no cancer. Then, all of a sudden, all her blood counts dropped. She was then diagnosed with AML (acute myeloid leukemia) due to the Opdivo. She lived a month after that. The doctors said the Opdivo gave her a year she wouldn't have had with chemo. There is that, but it's only a chance to live longer with Opdivo. I don't believe it is a cure now. We are thankful for that one good year."
- Zhi...
- December 20, 2017
Opdivo (nivolumab) "I would not be alive today without Opdivo. A year and a half ago, I was diagnosed with lung cancer. I weighed 95 lbs., and I already had radiation and chemotherapy. I had no appetite and was continuing to lose weight. My doctors put me on Opdivo in October 2016. It is now December 2017, and I feel fabulous! My scans have been great, and my weight is 145 lbs. I feel better and look better than I have in years. Thank you so much for saving my life."
- Gra...
- December 4, 2015
"36-40 hours after the 3rd treatment, muscles and legs were so weak could not support self or move feet. Could barely shuffle. 4 days in hospital and all tests and scans normal so had to be the Opdivo. Will not take that again, not worth inability to walk."
- Sca...
- Taken for 1 to 6 months
- October 12, 2018
Opdivo (nivolumab) "My mom is 78 years old with stage IV lung cancer. She has had 6 treatments with Opdivo so far; minimal side effects. She was on Pemetrexed for 2 years, then in remission for almost 18 months. Her oncologist wanted to try Opdivo. A 93-year-old gentleman who comes to the same cancer clinic biweekly has been on Opdivo for 2 years now for melanoma. His daughter stated that he has minimal side effects from the medication."
- Pat...
- Taken for 5 to 10 years
- February 13, 2021
Opdivo (nivolumab) "My husband, a smoker for 60+years, was diagnosed with nsclc in 2015. After several months of traditional ineffective chemo, his doctor recommended the newly discovered Opdivo. That was late 2015. It is now Feb 2021 and he is still going strong with no/minimal side effects. As I’m sure many fortunate patients can attest, every day is a blessing!"
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Opdivo (nivolumab) "Original diagnosis stage IV lung cancer, July 2013. Received chemotherapy every 3 weeks for two years. July 2015 PET test showed cancer had metastasized to liver. Started on Opdivo August 2015. I have been on Opdivo every two weeks since August 2015. Last CAT scan (June 2016) tumor in liver is shrinking AND NO LONGER ANY TUMORS IN EITHER OF MY LUNGS. Slight side effects: minimal, slight body aches, and tiredness."