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Nivolumab for Head and Neck Cancer User Reviews

Brand names: Opdivo

Rating: 6.1

Nivolumab has an average rating of 6.1 out of 10 from a total of 7 reviews for the treatment of head and neck cancer. 43% of reviewers reported a positive experience, while 29% reported a negative experience.

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29%
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14%
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14%
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29%
  • Lta...
  • Taken for 1 to 6 months
  • July 8, 2018

Nivolumab "My father was on Opdivo for 77 days. He became sick with all of the side effects (pneumonia, inflammation of the brain), as well as ultimately losing the use of both of his legs. In my opinion, the drug only increased his life by 77 painful days, and it did nothing effective at all. I do not recommend using this drug at all."

1 / 10
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10 Report
  • Pad...
  • Taken for 1 to 2 years
  • September 26, 2019

"Nivolumab has provided hope. With no more surgeries or radiation, this drug has stabilized my reoccurred tumor in my neck. Aside from some itchiness, fatigue, achy muscles, and joints, I tolerate the regimen. 18 months later, after being told not much can be done, I'm fortunate to respond. Grateful!"

9 / 10
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6 Report
  • CJL...
  • Taken for 1 to 2 years
  • January 22, 2021

Nivolumab "When I was about to start Opdivo, I was told it was not a cure but a life extender. I prepared myself by taking natural immune boosters one month before the start of Opdivo and during treatment. The tumor in my mouth started shrinking after 10 days from the start of treatment. After 25 doses (4-week schedule) and two years, I stopped my treatment. The tumor was gone by the first year. Hospice was my option before Opdivo saved me. Side effects were a rash on my face for a week every three weeks out from my dose. Natural immune boosters, Chaga tea, Astragalus, and Boswellia serrata."

10 / 10
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3 Report

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  • Jen...
  • Taken for less than 1 month
  • July 11, 2018

Nivolumab "Just started Opdivo last week. Will have it every two weeks. Had to have a full laryngectomy seven months ago because of a tumor in the back of my throat. Was hoping to get a voice prosthesis to talk again, but they discovered two small cancerous tumors on my tongue. Surgery, of course, is not an option. Hoping Opdivo will shrink these tumors at the very least, if not destroy them altogether."

7 / 10
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4 Report
  • Buc...
  • Taken for 1 to 6 months
  • July 24, 2023

Nivolumab "Well, it seems to work. I had squamous cell cancer in my left sinus, and after three treatments, the cancer is resolved, apparently. The side effects are brutal, though - diarrhea, constipation, weight loss, skin issues, sleep issues, and fatigue. Don't know how long they're going to go on."

5 / 10
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1 Report

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  • J J...
  • April 8, 2025

"If I rated it, it would be more effective than chemo in my opinion. No side effects."

10 / 10
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  • JJa...
  • Taken for less than 1 month
  • February 13, 2021

Nivolumab "These drugs poisoned my best friend. He had been doing well, and after 2 treatments with these drugs, he is a dying vegetable."

1 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Head and Neck Cancer

Symptoms and treatments