Neratinib for Breast Cancer, Adjuvant User Reviews (Page 2)

• Tou...
• Taken for 6 months to 1 year
• November 6, 2021

"I finished my year of taking this drug yesterday! Things I learned through keeping a food diary for a year: beef will trigger crampy diarrhea, as will too much fat, dairy, and fiber. (But ice cream is possible!) Do not eat fast food unless a small salad or light wrap is available. Small meals help. Soup and crackers. My appetite was reduced because of a low-key stomachache, which sometimes ramped up into major cramping. Plan to be near a restroom until you learn your triggers. Bad days meant I overate and had 6X diarrhea and gut pain. Good days meant I had 1X diarrhea, usually on a schedule. I took one Imodium with Nerlynx every day and added up to eight total in one day as needed. It worked better for me to control what I ate. To me, chemo was much worse than this, but I did have tiredness, slight muscle cramping, skin fissures on fingertips sometimes, mouth a little dry/sore, and my fingertips are wrinkly like after a bath. My nails are cracked, but that started with chemo. Time to travel again with less planning!"

• Wor...
• Taken for 1 to 6 months
• March 2, 2024

Neratinib "Started on low dosage from mid-Jan, minor diarrhea on 2/3 days due to increased dosage and a bit more severe diarrhea after heavy meals. Finger-crossed for remaining days on Nerlynx"