Lenalidomide for Multiple Myeloma User Reviews

Brand names: Revlimid

Lenalidomide has an average rating of 7.7 out of 10 from a total of 20 reviews for the treatment of Multiple Myeloma. 70% of reviewers reported a positive experience, while 15% reported a negative experience.

Lenalidomide rating summary

7.7/10 average rating

20 ratings from 24 user reviews.

Compare all 67 medications used in the treatment of Multiple Myeloma.

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Reviews for Lenalidomide

Anonymous
January 19, 2013

Revlimid (lenalidomide) "Revlimid significantly reduced my cancer levels , also reduced my pains so I could stop taking my Percocet. At this time I just take extra strength Tylenol. The bad side effect was I developed a bad blood clot in my left leg. I am now on a blood thinner."

6 / 10

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70 Report

IowaP...
October 31, 2013

Revlimid (lenalidomide) "After several cycles of Velcade, Revlimid and a steroid, my doctor switched me to Revlimid alone. I have had no side effects of note. The Velcade really knocked me out. Shortly after a stem cell transplant, I had a small blood clot that caused double-vision, but that resolved itself in about a month. Now I take a blood thinner (Jantoven). Two-and-a-half years after my transplant, my myeloma is extremely well-controlled, and I'm guessing that Revlimid is a big part of the reason. The main issue I have with Revlimid is the astronomical price; my insurance pays 75% of the cost. A grant from a nonprofit foundation has been a huge help in covering the out of pocket."

10 / 10

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65 Report

Renee
Taken for 10 years or more
January 21, 2021

Revlimid (lenalidomide) "I have been taking Revlimid 10mg. as maintenance after my stem cell transplant in 2011. I have had some side effects such as fatigue and IBS. I am still in remission 10 years later. My Oncologist is considering taking me off. I'm nervous and haven't decided what to do. My fear is that my Cancer will come back without the Revlimid. I also realize the seriousness of the possibility of more severe side effects happening the longer I continue to take it."

10 / 10

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22 Report

Frequently asked questions

What is a biologic drug?

kregs
Taken for 1 to 2 years
October 20, 2014

Revlimid (lenalidomide) "I have been on Revlimid for about 2 years and the result is my cancer has been at a low level and controlled. I have no side effects that I am aware of. I do however think this medicine is terribly expensive."

10 / 10

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46 Report

Sam
Taken for 1 to 2 years
January 25, 2020

Revlimid (lenalidomide) "My daughter was taking Revlimid for 18 months with good results as that Kappa level went to almost zero. She looked so good, her hair had grown back, kept her job and was so happy. Suddenly, she became weak, was unable to stand and, tests in the ER indicated she had leukemia. She died in 4 months. I was told that her taking Revlimid led to the leukemia. How can this happen so quickly? It is listed as a side effect "

9 / 10

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23 Report

Are you taking this medicine?

Big_K...
April 27, 2018

Revlimid (lenalidomide) "I have been on Revlimid for about 5 years. Initially one 25 mg for 21 days with 7 days off and repeating 28 day cycles. For the first 3.5 I also took dexamethasone with it but stopped that with no ill effects after one more year my doctor cut the dose to one every other day with no negative result. So far so good all this followed a transplant about 14 years ago. While the Revlimid leaves my hands a bit shaky there is no real loss in quality of life."

9 / 10

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29 Report

Anonymous
Taken for 1 to 2 years
January 15, 2024

Revlimid (lenalidomide) "My experience seems to have been a good one. My doctor pronounced a complete response to the treatment for multiple myeloma. I haven't had any side effects that can be attributed to the drug, Revlimid."

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3 Report

VAja
Taken for 1 to 6 months
October 6, 2013

Revlimid (lenalidomide) "The first 21 day cycle went really well. No side effects or not feeling well. But when I started the second cycle within the first day I was getting severely ill. I couldn't get up from bed. Dizziness, not being able to focus. My whole body was covered in not a red rash, but a blood red raised welts. I stopped the treatment per my Doctor. "

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33 Report

Ellab...
November 4, 2015

Revlimid (lenalidomide) "My sister had multiple myeloma, she took this drug for about 2 months. She developed a blood clot in her heart and died 2 days ago from a cardiac arrest while she was at the hospital. Her quality of life before this was zero while taking revlimid."

2 / 10

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28 Report

Marilyn
Taken for 5 to 10 years
January 27, 2024

Revlimid (lenalidomide) "I have been taking it for 8 years now!! I'm currently in remission! I have to continue to take it to remain in remission! My dosage is 15 mg for 3 weeks then off one week per cycle! I have side effects especially when I first take it in the morning! No complaints as I realize how blessed I am to be in remission!!"

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2 Report

WGTE
Taken for 2 to 5 years
January 14, 2024

Revlimid (lenalidomide) "No real problems with the higher dose except fatigue. After stem cell transplant (2 years ago) and on the low dose for maintenance, I still have fatigue, brain fog, had a bilateral rash but that only lasted for a few months, constipation but is controlled by stool softeners. Lower chest upper abdominal tightness, especially when exerting myself. It limits the amount of walking I can do."

10 / 10

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2 Report

Jason...
Taken for 2 to 5 years
January 17, 2018

Revlimid (lenalidomide) "Even after induction chemo and 2 autologous stem cell transplants I had a good response but was not in remission. Within a few months myeloma started to worsen. Was started on 15 mg for 21/28 day cycles. I was in remission within 4 months. That was 3 1/2 years ago. Only side effect is irritable bowel and I think it is the cause of a metallic taste in my mouth. Anyway, thanks the affordable online pharmacy that sell the generic drugs prices only 2% of the brand one ."

10 / 10

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16 Report

Tri-Guy
Taken for 1 to 2 years
January 3, 2018

Revlimid (lenalidomide) "Diagnosed with Multiple Myeloma (MM) in October 2015. Starting in December I received radiation treatments plus Velcade along with Dex. In Summer of 2016 I received Auto SCT at MD Anderson (a truly wonderful hospital), and have been on maintenance dose (5 mg) of Revlimid ever since. I take it every day for three weeks, then off one week. My numbers have been slowly improving with every monthly visit to my Oncologist. So in that aspect, it appears the Revlimid is doing its job. One the down side (and this is only minor), I tend to experience a lot of fatigue for the last ten days of each "on" cycle."

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16 Report

conce...
Taken for less than 1 month
April 24, 2019

Revlimid (lenalidomide) "My dad has been taking this Revlimid drug for the last two weeks and his qualify of life has significantly decreased. The only thing that changed within the last two weeks was the Revlimid. He was much functionally when he was on Chemo!"

1 / 10

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11 Report

Bob
Taken for less than 1 month
October 10, 2021

Revlimid (lenalidomide) "Prior to MM diagnosis, 8 months extreme pain in R shoulder, moving to L shoulder, hips, shins. Very painful, constant moving from area to area. Was diagnosied with arthritis, prescribed Diclofenac Sodium 1% GEL (prescription) Instead, used small amount to area of pain, relief almost instant. Discovered CKD III disease, referred to Oncologist 7/27/21, Admitted to hospital same day, bone marrow biopsy, markers indicated confirmation of MM, On 8/2/21, 1st Chemo prior to discharge from hosp. weekly Chemo scheduled & started 200 mg twice daily of Acyclovir, Weekly IV mix of bortezomib & cyclosphamide. Velcade stomach injection. Oral 40 mg Dexamethasone on IV day. Stopped IV on 9/8/21. Continued Weekly Velcade stomach injection +10 mg Revlimid 9/11/21, take one caps for 14 days, stop 7 days, AND 40 mg Dexamethasone on days 1, 8, &15 of cycle. Now: Revlimid mid cycle # 2. Side affects some fatigue. Previous pain moving joint to joint is gone."

8 / 10

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6 Report

Virgi...
Taken for less than 1 month
August 21, 2016

Revlimid (lenalidomide) "I had 2 blood clots as a result of a hairline fracture in my ankle. Consequently, I was given Coumadin April 14. I started Revlimid May 7. May 25 I had a new blood clot even though my INR was 3.7 - in range to prevent clotting. I was hospitalized and missed a Memorial Day party. The doctors were baffled and thought the Coumadin was not effective. I disagreed, stopped Revlimid immediately and stayed on Coumadin. I flew to and from Italy this month with no blood clotting...the food was fabulous although I miss some eating great salads. (Kidney issues prevent the other blood thinning remedies)"

1 / 10

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9 Report

dontm...
Taken for 6 months to 1 year
January 25, 2019

Revlimid (lenalidomide) "Took revlimid 25 mg per day as maintenance after auto stem cell transplant for multiple myeloma. It worked to keep my spike down for about 12 months. I consider it to be less than satisfactory for me though it works longer for some."

5 / 10

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6 Report

Bob...
Taken for 1 to 2 years
December 17, 2022

Revlimid (lenalidomide) "See Previous comments; 10/2021; Taken for less than 1 month Kappa free lite chain was 5,774 8 July 2021. AFTER each cycle the numbers dropped, & on 6/28/22 Kappa numbers were 15.7. I have been in the mid-normal range since. Dosage adjustments 10mg to 15mg & due to Neuropathy. Currently monthly injection's Xgeva, Daratumumab (Darzelex) & 7.5mg Revlimid or Lenalidomide cycle 21/7. Goals not reached at this time, continuing with monthly injections & 7.5 mg 28-day cycle."

7 / 10

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2 Report

daysb...
Taken for 6 months to 1 year
April 27, 2024

"The medication has gone from 25mg to 10mg as I am now on maintenance. I have had quite a few weeks of bowel problems, but I have learned to take medication right away and am able to live a fairly normal life. It is easy to take, and so far seems to be working well. I do take my medication in the afternoon, around dinner time."

10 / 10

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0 Report

Cynthia
Taken for 2 to 5 years
April 11, 2024

Revlimid (lenalidomide) "I have been on 10 mg for 5 years. I recently started having atrial fibrillation. They just cut the dose to 5 mg. I don't know if that will change this. I had to get a pacemaker. I get sleepy from Revlimid and also get hot flashes. My platelets are at the bottom of the range. I struggle with anemia. I am usually tired. I also have amyloidosis. I never got to a complete response. I achieved a very good partial response after induction that included Revlimid. I had a stem cell transplant."

8 / 10

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0 Report

Susan
Taken for 2 to 5 years
April 25, 2024

Revlimid (lenalidomide) "I was diagnosed in my 70s. My treatment included Revlimid at 25 or 30 mg daily. Personally, I consider Revlimid a miracle drug. Within 6 weeks of treatment the pain went away almost overnight. My oncologist said the Revlimid was the drug that caused my pain to stop. I am talking about the stabbing, sharp pain that is the worst. Three years later that pain has not reappeared. I currently am taking 10 mg daily. Whatever the side effects of Revlimid, nothing is better than stopping that pain."

10 / 10

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0 Report

268377
Taken for 2 to 5 years
April 25, 2024

"I have been taking the drug lenalidomide since 2019. I am never sure of what drug causes what side effects. I have neuropathy in my feet that I assume is from the drug. I have 2 or 3 days a week with low energy that I assume is from the drug. I am aware of the pitfalls of this drug as it relates to handling etc. My blood test results reflect side effects from the drug."

9 / 10

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0 Report

Demo
Taken for 1 to 6 months
March 30, 2022

Revlimid (lenalidomide) "Worked like a miracle when first diagnosed with multiple myeloma. Was in remission in a couple months."

8 / 10

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5 Report

Sam
May 3, 2021

Revlimid (lenalidomide) "Working great for me"

10 / 10

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6 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.