Lenalidomide for Multiple Myeloma User Reviews (Page 2)

• Ano...
• Taken for 5 to 10 years
• May 22, 2025

"When the MM was first diagnosed, I took 1 x 10 mg daily. I came out in a red rash over my arms and body. The lenalidomide was reduced to 1 x 10 mg every second day and I have no skin complications. I have lived for 6 years and 3 months since the diagnosis. At the initial diagnosis, I was having night sweats, leg pain, and had lost 5 kg in 2 weeks."

• Mik...
• Taken for 5 to 10 years
• January 23, 2025

"Started on lenalidomide in 2017 after a stem cell transplant - 5 mg 21/28. This went well until early this year (2025). My main problem was chronic diarrhea and pain. I managed initially for many years with loperamide until I realized that the codeine in the Emtec I was taking for pain had a side effect of constipation. So I dropped the loperamide and take 2 to 4 Emtec 300-30 a day. It does double duty for pain relief (especially at night) and counteracts the diarrhea. Recently, my cancer specialist increased my lenalidomide to 10 mg 28/26 as a so-called maintenance dose (sic!). On Day 8 of my cycle, I started to experience chest pains (upper left) and went to emergency. Nothing could be found by cardiology or oncology, so I was released 36 hrs later (but still had occasional chest pains). I changed my intake of lenalidomide to 10 mg every other day, an effective average equivalent to 5 mg 28/28. I feel much better, it's now Day 15 of my cycle."

• fer...
• Taken for 2 to 5 years
• September 11, 2024

"On 10 mg lenalidomide capsules for 3 years, reduced paraprotein levels but now increasing. Some bowel problems but manageable. Possible side effects found: tremor, chills, depression, blurred vision. Not compatible with dexamethasone, psychological problems."

• Ano...
• Taken for 5 to 10 years
• March 30, 2025

Lenalidomide "First time I took Revlimid, I also took a steroid. I was taken off the steroid when my face turned red till it finally got up to my eyes. Taking Revlimid then on, I did not have any reactions. On it for 10 years, I was taken off when my m-protein was at 0.2 standstill. Off for 6 months, I was started on lenalidomide and had terrible itchiness! I waited to be able to get the next refill of Revlimid. I had such a good response till 2 capsules of Revlimid were taken this time, I have little spots rather than the large areas I had on lenalidomide."

• Ano...
• Taken for 1 to 2 years
• July 19, 2025

Lenalidomide "I have been on this for over one year now. In the past couple of months, I have had the 'black tarry stool' side effect. I have not mentioned this to my doctor because it has not bothered me, really, and I am fearful of not being able to continue on this medicine that I believe is to keep my multiple myeloma in check. Apart from that, I have general fatigue and arthritic-type pain in my joints, which I am unsure whether this is due to Revlimid or just growing older."

• Ano...
• Taken for 6 months to 1 year
• June 16, 2025

"I'm on a clinical trial and lenalidomide is part of the medication for my study. At that time, I was taking (25 mg) capsules once a day, but now I'm taking (10 mg) capsules. I have not had many of the listed side effects, but I have had some including: neuropathy in the fingers and toes, persistent sore throat, mood changes. However, now that my condition is in remission (thank God!), I'm taking this as a maintenance drug as I go throughout my days normally."

• Mar...
• Taken for 1 to 2 years
• April 1, 2025

"I have been using Lenalidomide to keep MM remission. The major side effects are cramps and tinnitus, besides low blood, white counts, and low platelets. The transaminases are also high, and I had to diminish the dosage."

• Dem...
• Taken for 1 to 6 months
• March 30, 2022

Lenalidomide "Worked like a miracle when first diagnosed with multiple myeloma. Was in remission in a couple of months."

• Ano...
• Taken for 2 to 5 years
• June 13, 2025

Lenalidomide "I have been fortunate in the four years that I have taken Revlimid for multiple myeloma to have not experienced any significant side effects."

• Ano...
• Taken for 1 to 2 years
• April 19, 2025

"2 years now, paraprotein levels climbing to 15. Main side effect is breathlessness, also peripheral neuropathy."