Lenalidomide for Multiple Myeloma User Reviews (Page 2)

• Mik...
• Taken for 5 to 10 years
• January 23, 2025

"Started on lenalidomide in 2017 after a stem cell transplant - 5 mg 21/28. This went well until early this year (2025). My main problem was chronic diarrhea and pain. I managed initially for many years with loperamide until I realized that the codeine in the Emtec I was taking for pain had a side effect of constipation. So I dropped the loperamide and take 2 to 4 Emtec 300-30 a day. It does double duty for pain relief (especially at night) and counteracts the diarrhea. Recently, my cancer specialist increased my lenalidomide to 10 mg 28/26 as a so-called maintenance dose (sic!). On Day 8 of my cycle, I started to experience chest pains (upper left) and went to emergency. Nothing could be found by cardiology or oncology, so I was released 36 hrs later (but still had occasional chest pains). I changed my intake of lenalidomide to 10 mg every other day, an effective average equivalent to 5 mg 28/28. I feel much better, it's now Day 15 of my cycle."

• fer...
• Taken for 2 to 5 years
• September 11, 2024

"On 10 mg lenalidomide capsules for 3 years, reduced paraprotein levels but now increasing. Some bowel problems but manageable. Possible side effects found: tremor, chills, depression, blurred vision. Not compatible with dexamethasone, psychological problems."

• Ano...
• Taken for 5 to 10 years
• March 30, 2025

Lenalidomide "First time I took Revlimid, I also took a steroid. I was taken off the steroid when my face turned red till it finally got up to my eyes. Taking Revlimid then on, I did not have any reactions. On it for 10 years, I was taken off when my m-protein was at 0.2 standstill. Off for 6 months, I was started on lenalidomide and had terrible itchiness! I waited to be able to get the next refill of Revlimid. I had such a good response till 2 capsules of Revlimid were taken this time, I have little spots rather than the large areas I had on lenalidomide."

• Mar...
• Taken for 1 to 2 years
• April 1, 2025

"I have been using Lenalidomide to keep MM remission. The major side effects are cramps and tinnitus, besides low blood, white counts, and low platelets. The transaminases are also high, and I had to diminish the dosage."

• Dem...
• Taken for 1 to 6 months
• March 30, 2022

Lenalidomide "Worked like a miracle when first diagnosed with multiple myeloma. Was in remission in a couple of months."

• Ano...
• Taken for 1 to 2 years
• April 19, 2025

"2 years now, paraprotein levels climbing to 15. Main side effect is breathlessness, also peripheral neuropathy."