Venofer for Iron Deficiency Anemia User Reviews (Page 2)

• GUI...
• Taken for less than 1 month
• January 21, 2013

"I have had 1 dose of 200 ml IV Venofer administered over a 2-hour period. I have noticed that this week I am very tired, have muscle aches, and a few episodes of intestinal pain. At the time of administration of my first dose, I got a headache about 15 minutes after the start of the transfusion and also about 5 minutes before the end of the session. Up to 15 minutes after, I felt sick to my stomach and like I was going to vomit. Sure hope this works, I have 4 more sessions to go."

• Anonymous
• Taken for 1 to 6 months
• March 20, 2023

"I was injected with Venofer in January this year, a day after I delivered my baby. I was told nothing of this drug, so I didn’t want it. They insisted that I get it, and since then, even now still, I have been experiencing terrible headaches, dizziness, muscle aches and joint pain, hives, edema, blurry vision, shortness of breath, excruciating pain around the injection site, and then some. I never experienced any of these symptoms before in my life, and now my body is screwed up. I don’t know for how long. Hope it goes away soon."

• tra...
• Taken for less than 1 month
• March 24, 2023

"My iron was severely low. They started me on Venofer. 5 treatments every other day. My BP was normal before the treatments. I have no other health issues. After the treatments, my BP is high. I sure hope this levels out and my BP goes back to normal. Anyone else experience this?"

• Nan...
• December 4, 2020

"Had 1 and only 1 treatment. I could only walk about 25 steps, felt faint, collapsed in the middle of the lobby of the clinic. An ambulance came, then I really got scared. The men could not pick me up! I had lost all muscle control, my body was like a water balloon. I had no control, I couldn't hold my head up. They couldn't keep my head up, it just flopped on my shoulder. I was so scared I'd stay that way. It took 4 big men to put me in a wheelchair, my body flopping like a water balloon. Once in the gurney, my legs and arms were falling out of the restraints. But the worst, omg, was that I was thinking, ok, pretty normal, but my mouth-I was swearing like a drunk sailor, a really bad sailor. Everybody was laughing, but I couldn't stop, and I normally only swear when mad. I was so scared, so scared. Once at the hospital, they thought I did drugs. I don't, so they put me in the glass room. I couldn't stop the vulgar language, this lasted about 7 hours. Never ever again."

• Anonymous
• Taken for 1 to 2 years
• January 23, 2024

"Right after my infusion of Venofer, I stood up and both legs felt extremely wobbly. After the nurses checked it, they said I could leave, but if no improvement in two hours, to call the doctor. I just got on the elevator to leave, and I got heart palpitations, sweats, tremors, and extreme weakness feeling as if I was going to pass out right there in the elevator. Luckily, I was still in the hospital, so they wheeled me to the ER and ran fluids through me, and after a couple of hours, I recovered. I had this infusion once before and all that happened was nausea and muscle aches. It helped me tremendously, so much so, that I'll put up with the side effects just to get to feeling better."

• Mar...
• Taken for 1 to 6 months
• January 28, 2023

"I have a disorder that causes me to lose lots of blood. I was given Venofer, and I still have several side effects, so why can’t someone be accountable for this? I was not told about any side effects. I have a severe headache, I can’t eat without running to the bathroom with diarrhea, I had hair loss, I have an awful cough, heart pains, blurred vision, and worse bloody nosebleeds, so why can’t something be done."

• RL6...
• Taken for less than 1 month
• January 7, 2023

"I underwent my first infusion this morning, which took 4.5 hours to complete. Upon leaving the infusion center, I noticed that my urine was very dark. After returning home, I started to feel cold, with chills and body aches. I took a nap, and after getting up, my temperature was 100.2°F. My second infusion is scheduled for two weeks from now, and I will evaluate the situation to determine if I should proceed with another infusion, depending on how quickly these symptoms pass."

• jen...
• Taken for less than 1 month
• March 5, 2024

"I’ve had 3 iron infusions of Venofer. First round I had it alongside a steroid. I had no reactions and no side effects. Infusion took a few hours with 30 mins of observation at the end. Not sure what rate it was infused at, but I know the speed really can make a lot of difference. Mine were definitely on the slow side. First one took close to 5 hrs in total. The second and third I didn’t need the steroid and I was out in under 3 hrs. I’m a couple weeks out of number 3, so 5 weeks from the first infusion, and my VO2max is steadily climbing. I feel pretty good overall. Not out of breath as I have been in the past. I can’t tell if my endurance / stamina is greatly improved as I’m on other meds that cause fatigue. But all in all the iron infusions were easy peasy. Only side effect I noted, and not sure if this is normal, but my urine went from clear (well hydrated) to a brown hue by mid infusion. This went away shortly, but thought it was interesting anyway."

• Ane...
• Taken for 1 to 6 months
• December 15, 2021

"I’m a dialysis patient who is receiving Venofer through injection in treatments. I experience nausea, a vomiting sensation as soon as one drop hits my system. It sends a signal to my smell sensors, which makes me smell old pancake syrup and then begins to turn my stomach into a violent expulsion machine. If this is a side effect that could be harmful, I would like to know what to do."

• Mic...
• Taken for less than 1 month
• February 28, 2021

"My daughter just finished her 5th 200 mg dose of Venofer. She completed the 5 doses in 21 days. After the first two doses, a slight headache. She drank water and laid down for an hour. The last 3, she said she felt fine. We are just waiting now for the 4 weeks for new labs to be taken."

• She...
• Taken for less than 1 month
• May 15, 2023

"Have had iron infusions in the past every 4 years since having a gastric bypass. I suspected Venofer was not what I was given in the past, but was assured it was what I needed and did so reluctantly. Wish I had not! Was given Venofer for an hour and a half. I was not observed for any length of time. Hours later at home, chills, sweating, pain in every joint. Back pain and throbbing in my kidneys that lasted a day and a half. A week later, I'm still dizzy and have fallen 3 times! Still feel tired and weak. Labs next week to see if I need another infusion. It won't be this!"

• ano...
• Taken for less than 1 month
• March 24, 2023

"In January 2023, I had this iron injector and was told it was what I had in the past, but it was not. Within three weeks, I had constipation, then chest pain, feeling a lump in my throat, shortness of breath, headache, and back pain that won't go away. Is anyone else having these issues?"

• Flo...
• Taken for 1 to 6 months
• March 21, 2023

"9 a.m. today was my first Venofer IV infusion. I was nervous, but the staff was amazing. Almost immediately, I started getting itchy. My arm was covered in red blotches. The infusion stopped, and IV Benadryl was given. Almost immediately, a sense of relief. Re-hooked up Venofer and had no reaction. I was continuing to drink fluids throughout treatment. Once in the car, I wasn't driving, I grabbed a granola bar and was asleep before I finished it. Got home and slept on the couch. Woke up overheating and sweaty. I feel nauseous, restless, and hungry. This was 1 of 6 doses. Will be one week apart."

• Nik...
• Taken for 5 to 10 years
• July 16, 2025

"Venofer for me caused painful spasms and redness of my hands, abdominal cramping, joint pain, and nausea. These symptoms would start within 15 to 30 minutes after the infusion ended without fail. What helped? Running the infusion twice as long, one dose every 1-2 weeks, taking Benadryl, Prednisone, Buscopan, Gravol, and Tylenol as soon as the IV is about to begin, and a follow-up dose of everything 4 to 6 hours later, REST for the rest of the day, and continue to take some Tylenol as needed for the joint pain. I tried Monoferric for the first time most recently and decided to try winging it with only Tylenol at the start of the infusion, which was run for 2 hours. No issues with my hands, did have some mild abdominal cramping and nausea afterward, but it was tolerable for the first day or two afterward. 3 days later, extreme joint pain in my knees and extreme fatigue, well more than the norm anyway. I received 1500 mg."

• MNi...
• Taken for less than 1 month
• November 5, 2021

"Worst experience ever. I was fine during the infusion. I had the reaction during the observation time. Hands swelled up, vomiting, pains in leg that I couldn't walk. I will never get that again."