Immune globulin subcutaneous User Reviews & Ratings (Page 2)

• Clo...
• Taken for 6 months to 1 year
• August 11, 2017

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I was on Hizentra and never felt well - ever! During infusion, I would immediately become nauseated. Shortly thereafter, I would experience a horrible headache. My pre-medications were Zofran, Zomig (for my migraine problems), Tylenol, and Benadryl. My trough level was at a decent level, so I was able to have my sinus surgery. I had post-sinus infections of 3 different bacteria. I just kept getting sicker and sicker. Hizentra was the worst drug interactions ever put into my body for 8 months!"

• Chu...
• July 20, 2013

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Three years at home has been a relief for me. Needle area sites take about 2 hours to disappear. Ten grams per week of Hizentra keep my level normal, and I have not had any infections or illness. The cream is applied 15 minutes before the needles and is very smooth going in."

• Hop...
• Taken for less than 1 month
• April 14, 2021

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I have not been well for the last 14 years: NTM infection, COPD, bronchiectasis, IGG2/IGG4 deficiency, sinusitis, many chest infections. I have started on Cuvitru, coming up on my fourth treatment. I have been hearing so many positive comments, and this is my last resort. I’m really hoping that this will give me some energy, something more of a normal life. My doctor is amazing, so happy to have crossed paths with this program, and the staff are absolutely fantastic, patient, and kind and understanding. Looking forward to sharing my positive stories. Will be in touch, till then, stay healthy, stay safe."

• She...
• Taken for 5 to 10 years
• June 14, 2023

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "At the age of 65, when we moved to Western MA, I began with a new allergist/immunologist who wanted to do allergy testing (yet again-but in different places-different allergies). I asked him to test my immune system, and was he shocked to learn I had/have the primary immune deficiency known as common variable immune deficiency (CVID). Choosing to get IgG via 'infusion' subcutaneously, I first was prescribed Hizentra. Within a year, I had a full torso allergic reaction with hives-so was changed to Cuvitru. I dose 10 grams once a week after putting lidocaine (prescription) in injection areas for 2.25 hours. Next, my husband inserts two needles in my upper arms, rotating between my left and right arms. I could infuse via the belly or upper thighs, but I'm too much of a softie to do so. THAT HURTS. IgG has changed my life-totally and for the better. Finally, when the world gets a cold, I get a cold, not an infection that might take two rounds of antibiotics to knock it out-LOVE IT."

• Pro...
• Taken for 2 to 5 years
• December 22, 2021

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I have had good success with this medication treating my immune deficiency. However, I am experiencing hair loss! I have found other patient testimonials discussing the same issue. I’m curious if other Cuvitru patients are noticing a similar side effect."

• Nev...
• Taken for 1 to 6 months
• February 29, 2016

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Switched from nurse-infused IVIG to Hizentra, with zero side effects on the former. Now, 2 months later, sinusitis and nasal misery move in at 5th day, maybe my dose is too low. These old symptoms disappear a day or so after weekly self-infusion. Otherwise, all is well."

• 2ol...
• Taken for 10 years or more
• May 9, 2022

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Daughter now 16 has been having weekly subcutaneous infusions since she was 5 years old. She has 40g a week in her thighs, not able to use stomach as she has a colostomy. This drug has been a life changer, thank you, everyone."

• Anonymous
• April 6, 2011

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I am a 41-year-old female, have been taking Vivaglobin for about 3 years now after immunoglobulin treatments weren't possible due to my veins not being able to take it anymore. I feel so much better since the treatments. I admit, I hate the idea of poking myself 3 times a week, but I can't rave about it enough. I went through most of my life as a sick person, and thought I was a hypochondriac. I would hate to see if I couldn't take it anymore, I am so much healthier. Thanks to all those donations of blood in order to make this wonderful drug."

• 998...
• December 27, 2010

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Medicare required patients to switch from Viva to globulin. The switch for me resulted in instant disability, numerous infections. It became evident that the same dosage of Viva was not equivalent to Hizentra. Hizentra had to be increased by a factor of 1.59 of Viva. The weekly grams infused outweigh any advantage of the 20% solution."

• Sof...
• Taken for 1 to 2 years
• March 5, 2022

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "(I am a 76-year-old female in Australia) 2 years 3 months of great IgG trough levels. Infusions initially weekly, but I shifted to twice weekly as it meant cupboard to cupboard time is just on an hour and much more convenient. Two needles, and I alternate thighs/belly with swelling down in 24 hours. 20 ml in avg 35 mins. No obvious side effects. Don't forget there is a fair area of both locations, so alternate sites and remember where you did it last time and shift a bit. 3 times I struck a nerve and knew it, and once a blood vessel on drawback check. Also possible to use four needles to reduce local volume. Sounds as if I am lucky and yesterday I discovered Hizentra will no longer be imported into Australia. Incidentally, I have had NO at-home clinical support to see I have not built in any bad practices, and my doctors only look to the trough levels. Use a checklist."

• Rum...
• Taken for 1 to 6 months
• September 28, 2020

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I just had my second Hizentra treatment of 6 injections, but this time in my arm. It has been about 8 hours since my treatment ended, and I have been in bed pretty much since then. My arm at the injection sites is hot and swollen, which I can deal with. I did better on gamma globulin despite having lousy veins. My sinus and ear infection symptoms returned mid-treatment. Not sure I will continue since I am feeling ill and vaguely drugged. I just had a kitchen accident and yelled at my hungry cats for jumping around."

• gab...
• Taken for 1 to 6 months
• June 3, 2023

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I've had Hizentra on and off for 4 months. Every time I start the treatment with only 2 grams, when I got to 4 grams, the symptoms were terrible: nausea, lack of appetite, high blood pressure, debilitating headaches, etc. The worst part was being told by my doctor that these symptoms could not happen with Hizentra and now reading all your reviews! Thank you for sharing!"

• Gir...
• Taken for 2 to 5 years
• August 23, 2015

For Primary Immunodeficiency Syndrome "Have been on and off Hizentra for a few years. It really works; however, my hair is thinning and my hairline is receding. I am tapering off now in order to save my hair, but I am exhausted and starting to feel sick again. So frustrating."

• lcr...
• February 16, 2011

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Have been using this medicine for several years, and it has made a great improvement in my quality of life. Much fewer infections since starting on Vivaglobin, but I'm facing the probability of stopping the use due to the increased cost of the medicine through my insurance company. It went from a normal co-pay to a percentage and cannot afford over $1000 a month. But it works great."

• Dee...
• Taken for less than 1 month
• June 8, 2020

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Horrible drug. Hizentra caused a severe site reaction, ended up in the ER. Severe blood pressure elevation to 180, normal is 120. Still elevated at 140 a week later. May have caused kidney damage. Going back to Gammaguard... way better! No reaction over 3 years."

• Cur...
• Taken for 1 to 2 years
• May 28, 2018

"I've been on Hizentra for 2 years after all my blood numbers tanked following chemo and Rituxan infusions for Waldenström's Macroglobulinemia, a bone-blood cancer. I've never had any negative reactions. I self-administer it at 50 ml/week. My gamma globulins are now in normal range and are the only thing keeping me (fairly) well, as my white counts, neutrophils, platelets, and hemoglobin are all in the borderline critical range. I've had a sinus infection for 18 months but will be starting Cuvitru after my current inventory of Hizentra is used up. Hopefully, it will help to clear up the infection. I live in Canada, so none of this costs me a dime."

• Sed...
• Taken for 1 to 6 months
• October 29, 2021

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I use the subcutaneous, 12 grams, once-a-week dosage at home. It seemed to help the first two weeks, but now I am back to the same round of taking antibiotics and getting the sinus problems back a day after stopping the antibiotic. I would like to know why it didn't work. I am tired of living on antibiotics."

• Ann...
• Taken for 10 years or more
• January 31, 2025

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I was diagnosed with CVID 30 years ago. IVIG infusions had so many side effects for me. Switching to SCIG (Hizentra) 15 years ago was life-changing. I infuse 12 grams (three sites) weekly, and the only side effect is mild swelling that lasts a few hours. I highly recommend researching infusion pumps. The Freedom 60 pump is ancient, and I feel it shouldn’t even still be on the market! The Crono50 pump is amazing! I can’t stress enough to others to research ALL the different kinds of infusion pumps! Hizentra is well worth a try for anyone considering switching to SCIG."

• whi...
• Taken for 1 to 2 years
• August 10, 2022

For Chronic Inflammatory Demyelinating Polyradiculoneuropathy "A complete game changer. I previously had IVIg for 5 days at a time every 6 weeks, now I infuse myself at home twice weekly. I can do this in my own time on my own schedule, and it takes less than an hour each time, rather than the 6 hours each time spent in the hospital. No side effects, and it keeps my CIDP under control."

• Jen...
• Taken for 5 to 10 years
• April 11, 2025

Immune globulin subcutaneous "Hizentra has allowed me to get out of bed, clean my home, work in my flower beds, and live. It's been 8 years, 14 grams since starting this weekly journey. Hizentra increased my IgG and my IgM finally on the lower end of the chart. My IgA will never be fixed. When I go out in public, early mornings for appointments, groceries, or errands, I still get sick...every time. My infusions go much better now, except when I'm starting to get a cold. My side effects are worse: nausea, vomiting, chills, and body aches. I may have side effects, but the medicine has truly helped. I do get small blisters in the mouth from time to time. Take the after meds within a couple of hours, and blisters are gone. Finding a doctor that listened to me was one of the largest obstacles. Over the past 8 years, all the positives finally outweigh the negatives with my condition. The day or two a week of discomfort from treatment stands above all the sickness before and the not knowing."

• Ree...
• Taken for less than 1 month
• November 5, 2020

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I was allergic to this drug Vivaglobin. I would get huge welts at my infusion sites. They would blister, and then the skin would come off and become very angry. Even worse, I would get projectile vomiting the third day after. It didn't matter if I ate or didn't, it felt like it was coming up from my toes. I was missing more work than being sick from all of the other infections."

• BPR...
• Taken for 6 months to 1 year
• January 5, 2013

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "The immune system is where it should be for the first time in 5 years! Actually had to reduce Hizentra by 20% after a 6-month blood check!"

• Ano...
• March 12, 2011

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Once you find a good site, it is relatively painless. Almost no severe reactions yet. I can't handle IVIG very well, so this is it for me."

• Ris...
• Taken for 1 to 2 years
• January 27, 2025

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "I have IMNM, and this medication is crucial to my care plan. Easy to administer SCIG, and I have not had any serious side effects. My dosage is 35 g once every week."

• Anonymous
• July 27, 2010

Immune globulin subcutaneous for Primary Immunodeficiency Syndrome "Easy to use and keeps my son very healthy. The only side effect he has is redness and swelling at the infusion site, but that clears up within a few hours."