Gammagard Liquid User Reviews & Ratings

• laurah
• January 7, 2014

For Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I was diagnosed in 2007 with Lewis-Sumner disorder a branch of Chronic Inflammatory Demyelination Polyradiculoneuropathy. I received a week of loaded doses of Gammagard then maintenance dose of 100 g and has been at 90 g for a few years now. This medicine is a great help for the atrophy in my legs but I do get side effects...moderate to severe back and muscle pain, cramping in my upper front main thigh muscle, foot and toes. Also a lot of hair loss and women should not get IVIG infusion when on their menstrual cycle. It causes more clots and a lot of increased flow than normally happens. Double up on your monthly femine products and be prepared to change them every 30 minutes. I also experience fatigue and frequent urination and headaches. Drink lots of water! I take Excedrine migraine."

• Orion
• Taken for 5 to 10 years
• August 3, 2019

"I had Stiff Person Syndrome and I was on this medication 80% of my last 9 years of IVIG. It did well over all. I grew tired of the ups and downs I would go through each month. 2 weeks of feeling great, 1 week of meh, followed my a week of horrible with all my symptoms feeling magnified. I finally switched to subq last year and haven't looked back."

• Sue
• August 23, 2020

For Primary Immunodeficiency Syndrome "I have Common variable immune deficiency (CVID). First time ever receiving this (gammagard) developed severe headache, N&V&D. Temp 100.2 and low back pain. I felt like I wanted to crawl out of my skin. Symptoms continued for 4 days. Second treatment gave me temp of 102, N&V, back pain, hypotension and lasted 3 days. 3rd dose was changed to phlebogard and I had headache , low back pain. & symptoms lasted 2 days, but did not start until 48 hrs post administration. Much better toleration."

• Brian
• Taken for 6 months to 1 year
• June 15, 2023

For Multifocal Motor Neuropathy "No side effects, and relatively immediate relief from pain and general wobbliness of legs. Did not improve hand function, it continued to slide. However, I recently switched to Gamunex-C and my hands became worse, so I believe Gammagard did slow the progression."

• jjrolfe
• Taken for 1 to 2 years
• December 5, 2013

For Primary Immunodeficiency Syndrome "The side effects are being down more than I am up. Headaches, fatigue, joint pain, nausea, diarrhea. "

• Miss...
• Taken for 6 months to 1 year
• December 14, 2019

For Primary Immunodeficiency Syndrome "Was on gammagard at the hospital for one year. Had terrible back pain after infusion and my numbers never got above 525 for IgG. Changed to Hizentra and my number are near 1200 for IgG."