Eltrombopag for Immune Thrombocytopenia User Reviews

• Rus...
• September 19, 2011

Eltrombopag "My platelet count was dangerously low. After taking 50 mg Promacta daily, my count was 275 after one month. I have not had any side effects whatsoever. However, I am curious as to why dairy is prohibited for four hours before and after taking medication. The only other negative is the cost. Thank God for insurance help."

• Jes...
• September 18, 2023

Eltrombopag "I've been on this medicine for about 1 year. My platelets are finally up from 1 (yes, I typed 1) to 222! However, my body hurts so bad! My joints, my bones, low back pain, my muscles! Migraines are more frequent, fatigue varies."

• Anonymous
• Taken for 1 to 2 years
• May 28, 2022

Eltrombopag "My last entry dated December 17th, 2021. I am no longer taking Promacta due to it no longer working for me. I was admitted to the VA hospital in Puerto Rico on March 17, 2022, with a platelet count of 2000 ppm. I was released on March 23 with a platelet count of 100,000 ppm. My Promacta was changed from 25 mg every other day to 50 mg every day. The following day, I had a lab appointment for my primary care doctor. That evening, my doctor called, telling me to return to the hospital because my platelets had dropped to 20,000 ppm. When I arrived back at the ER, more blood was drawn, and the results were that my platelets had dropped to 6,000 ppm. I am currently still in the hospital with a platelet count of 49,000 ppm. Other treatments that worked before have also failed me or resulted in slow results. It worked for a while, just no longer."

• Rob...
• Taken for 1 to 2 years
• April 27, 2023

Eltrombopag "I have had a very positive experience with Promact. I have been taking it for over a year with no negative side effects. It took a while to find a dosage that will hold my count around 110 to 120. I am currently taking 50 mg a day."

• sac...
• Taken for less than 1 month
• September 27, 2023

Eltrombopag "I just started taking it 2 weeks ago, so far, I have had bouts of nausea in the middle of the day (no diarrhea). I have had headaches, but I'm prone to headaches anyway, so who knows if this caused them. I take it at night to avoid immediate side effects. I don't know if this is why I don't feel sick until hours later? I went for my blood work on Monday, 2 days ago, and my platelets had stayed up to 152, pretty good for me. Not sure if I will continue, if it keeps working it beats going to get blood work EVERY week, once they are stable, I can go in once a month."

• Pra...
• Taken for less than 1 month
• July 16, 2019

Eltrombopag "I have lupus and ITP, my platelets are in the range of 0-10k. Promacta was the only drug that raised the platelets to 100k. Then, after one month, I had renal failure and lesions in my brain. It didn’t work for lupus, I guess. :("

• Ano...
• Taken for 1 to 2 years
• May 19, 2022

Eltrombopag "Update for December 17, 2021. On January 18, 2022, my platelet count was 158,000 ppm. But on May 17, 2022, I checked into the VA hospital ER because I saw blood in my spit and blood on toilet paper after wiping. I know it's minor, but at the VA ER in Puerto Rico, they took blood samples and a COVID test. After a while, they came back with the results. The COVID test was negative, that's the good news. Platelet count not so good - 2,000 ppm - I'll be here for 5 days. They gave platelets and got my level to 69,000 ppm. Plus, raised my Promacta from 25 mg (which I was taking every other day) to 50 mg, which will be adjusted if needed. For now, I will not change my rating until I see what happens with the new dose. So, I will be adding results at a later date."

• Dav...
• Taken for 6 months to 1 year
• September 21, 2015

"I have ITP and my platelet count was below 10 before I was given Eltrombopag. I have now been taking 50 mg daily for 10 months, and my platelet count is in the 70 to 90 range. I have no side effects, my doctor expects me to be on Eltrombopag long term."

• Anonymous
• Taken for 6 months to 1 year
• December 17, 2021

Eltrombopag "Been taking Promacta since the start of January 2021. Started out with 50 mg, which raised my platelet count from 11,000 ppm to 409,000 ppm. After finding the right dosage, the doctors have me taking 25 mg every other day. Last platelet count was 105,000 ppm on December 6th, 2021. I am being treated by the VA."

• Moi...
• Taken for 10 years or more
• May 13, 2021

Eltrombopag "Bloating of stomach, serious thinning and hair loss, blurred vision with dry eyes and dry mouth. The co-pay got too expensive, and I told the doctor I need to switch to another medication for my low platelets."

• Bha...
• Taken for 1 to 2 years
• August 20, 2020

"My mother has ITP since her teens. She has been on steroids for long and then splenectomy. It was under remission, but the condition keeps coming back now and then. Now she is on eltrombopag. It comes with considerable side effects, obvious ones like fingertip tingling and pain, nausea, severe headache, loss of appetite. It costs a lot, and she is using it on a regular basis. I am not aware of the insurance support in India for the tabs. That would have helped us a lot."

• NYa...
• Taken for 2 to 5 years
• May 7, 2020

"Have been on Eltrombopag for 2.5 years. Platelet raised between 100-150, but the last 2 months, it's severely declining to reach 24,000. No reason recognized. Food precautions are restrictive and annoying. Cost is too much."