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User Reviews for Trikafta

Condition Avg. Rating Reviews Compare
Cystic Fibrosis  
1 reviews 104 medications

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

amurtagh February 5, 2020

For Cystic Fibrosis: “I am 42 yrs old with Cystic Fibrosis GENES: F508 & G542X (78% FEV1 pre-Trikafta) This drug is a GENE modifier, it's amazing! I haven't coughed in 2 months, it's like a dream! With that said, after about a week on Trikafta (although not coughing), I had shortness of breath & leg swelling. I've never had either of these symptoms prior to Trikafta. After an ER visit, they said I had Anemia ~ and very close to needing a BLOOD TRANSFUSION. I previously had a mild case of anemia but NEVER w/shortness of breath/ leg swelling, or sheer exhaustion. Digging further, I know of 2 other CF patients that have experienced leg swelling/anemia since Trikafta. After taking IRON, my symptoms went away EXCEPT my legs still swell. I also called VERTEX to report it. Also, just an FYI... you COULD GET PREGNANT. Trikafta also could cause your reproductive system to operate more efficiently...SO BE CAREFUL ~ this may be a blessing for some wanting kids but it could be a disaster for others.”

9 / 10

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