Canakinumab for Familial Mediterranean Fever User Reviews

• She...
• Taken for 5 to 10 years
• September 9, 2019

"So thankful for this medicine, it is a godsend. My son suffered since he was 9 months old until they figured out he has Familial Mediterranean Fever (FMF) when he was 2.5. He had rashes all the time, severe stomach pain, swollen feet, monthly visits to the ER, he stopped growing and was on steroids all this time. When they diagnosed him and started him on Ilaris, it was like magic, everything went away and he was a normal boy again within days. He started growing and catching up, he had energy like a normal kid, no more rashes or fevers or visits to the ER and not even flares up. Can't be more thankful for this medicine!"

• mic...
• Taken for 2 to 5 years
• August 12, 2023

"I had Familial Mediterranean fever, also known as TRAPS, for 28 years of my life. My brother and his daughter also have the sickness. It came from my father and his side of the family. We started doing the trials at the NIH, also known as the National Institute of Health, in 2001 when I was 7 years old. The children's hospital got us involved. My brother, father, and I tried Enbrel and Humira which burned. 10 years later, I tried Ilaris and it worked great. The rheumatologist department, run by Dr. Daniel Casner at the NIH, is great. He is the reason we have these medications. I was taking prednisone, a steroid, for years. I couldn't finish school and would snap out all the time, and I was always in the hospital sick. If I had this shot years ago, I would have had a way better life."