Canakinumab User Reviews & Ratings

• She...
• Taken for 5 to 10 years
• September 9, 2019

For Familial Mediterranean Fever "So thankful for this medicine, it is a godsend. My son suffered since he was 9 months old until they figured out he has Familial Mediterranean Fever (FMF) when he was 2.5. He had rashes all the time, severe stomach pain, swollen feet, monthly visits to the ER, he stopped growing and was on steroids all this time. When they diagnosed him and started him on Ilaris, it was like magic, everything went away and he was a normal boy again within days. He started growing and catching up, he had energy like a normal kid, no more rashes or fevers or visits to the ER and not even flares up. Can't be more thankful for this medicine!"

• Jam...
• Taken for 6 months to 1 year
• April 15, 2021

For Still's Disease "I went from daily injections of Anakinra to a once-monthly injection of Ilaris. Both medications work well, but I prefer the longer effective duration of Ilaris. Had to pause taking it to get the Covid vaccine, and my stills showed it's still very much there. Can't wait to take my first dose in over a month."

• Liz...
• April 4, 2018

For Familial Cold Autoinflammatory Syndrome "Been prescribed 50 ml of Ilaris for FCAS (Familial Cold Autoinflammatory Syndrome). I got prescribed 1 injection twice a month for 11 months so far. All of my rash/hives/welts have not reappeared, which I had a daily occurrence of for 55 years. My arthritis is gone, no gout, no fevers. Non-contagious conjunctivitis is gone, which occurred more than twice a week. Brain fog is gone! It was daily when outbreaks occurred. Energy returned to body and brain. Overall, this medication is a godsend, a lifesaver. I was ready to give up in my lifetime for any help. Thank you, Ilaris, for all your help in improving the quality of our lives. Love."

• mic...
• Taken for 2 to 5 years
• August 12, 2023

For Familial Mediterranean Fever "I had Familial Mediterranean fever, also known as TRAPS, for 28 years of my life. My brother and his daughter also have the sickness. It came from my father and his side of the family. We started doing the trials at the NIH, also known as the National Institute of Health, in 2001 when I was 7 years old. The children's hospital got us involved. My brother, father, and I tried Enbrel and Humira which burned. 10 years later, I tried Ilaris and it worked great. The rheumatologist department, run by Dr. Daniel Casner at the NIH, is great. He is the reason we have these medications. I was taking prednisone, a steroid, for years. I couldn't finish school and would snap out all the time, and I was always in the hospital sick. If I had this shot years ago, I would have had a way better life."

• SJI...
• Taken for 1 to 6 months
• April 16, 2022

For Juvenile Idiopathic Arthritis "My daughter switched to this from daily Kineret, and it treats the symptoms of systemic juvenile idiopathic arthritis just as well, but in a once-monthly injection."