Budesonide for Ulcerative Colitis, Active User Reviews

• john
• Taken for 1 to 6 months
• March 21, 2013

Uceris (budesonide) "I was excited when I 1st heard about Uceris' approval for ulcerative colitis. I started taking it and the 1st few days I felt pretty good with minimal bathroom trips/stomach upset, etc. After about 3 days things got worse and worse each day I took the medicine. It started as constant cramping and stomach pain, and slowly having very urgent bathroom needs. I had to stop taking Uceris because it made all my symptoms worse. So know that going in, that it can help you, but it also might make your situation worse. "

• Ole...
• Taken for 6 months to 1 year
• November 23, 2013

Uceris (budesonide) "Outstanding results after the fourth day using Uceris. Has none of the typical prednisone major side effects. Works in the lower colon. I used it for 8 weeks. Held the Ulcerative Colitis in remission for an additional 5 months."

• Paunch
• Taken for less than 1 month
• May 13, 2019

Uceris (budesonide) "This drug Uceris may have initially helped but as time went (2nd week or earlier) on it caused so much, cramping, gas, bloating, pain & throwing up each day with my urgent other reasons for trips to the bathroom (and I had to have a bucket on my lap while dealing with the aftermath on both ends being violently ill). To have so much added pain to my already active flare was horrifying. I believe the time release part of the drug is to blame, as I’ve taken busidione in the form of Entocourt prior with decent results. I know it works for some people & that’s great, but others can’t tolerate the time release which was toxic to me."

• Anonymous
• Taken for 1 to 6 months
• July 8, 2019

Uceris (budesonide) "I didn’t notice a difference until the 5th week on Uceris. My symptoms finally went away and it looked like I was heading into a remission after a year of an active flare. I finished my 6th week of meds and then stopped the foam (since I was prescribed the foam twice/day for 4 weeks and once/day for 2 wks). After one week off the med, symptoms returned. The dr has me taking it every other day now. My symptoms are gone. We will see if this is another bandaid or if I’m able to get into a healthy remission."

• Hopef...
• Taken for less than 1 month
• December 31, 2014

Uceris (budesonide) "I have faithfully taken 4 Lialda 1.2mg everyday for 8 years. I tried all medicines such Asacol, 6-mp, etc. and had to discontinue due to side effects. I also use the Rowasa enemas/suppositories temporarily and when stopped, the rectal bleeding starts again and worsen everyday. I have never been in remission with Lialda. I started the Uceris on 12/04/14 and I felt better than I had ever felt since the diagnosis in 2003. Two weeks into Uceris, legs and ankles swelling. Continued Uceris and praying swelling was temporary, Then had shortness of breath and fluid buildup in my chest. The swelling was unbearable. I stopped the Uceris; swelling subsided in 5 days. I do not want Remicade or Humira due to side effects. Why Lialda; no remission for 8 yrs."

• Dano
• Taken for less than 1 month
• November 30, 2018

Uceris (budesonide) "I’ve been using this for almost 2 weeks, 2 times a day. Will continue for 4 more weeks, once a day. Diagnosed with UC 15 months ago; was in remission 8 months and then daily bleeding and pain for past 5 months. CANASA hasn’t worked; hydro cortisone suppositories have not worked and so far, the Uceris foam seems to have reduced the number of trips to the bathroom, but still active daily bleeding. Hoping that the next 4 weeks will show that this is effective. Terrified of taking biologics, which would be the next step... 61 year old female who was in perfect health prior to UC"

• Ali
• Taken for less than 1 month
• March 22, 2019

"I have had diarrhea for months, they put me on bentyl but did not help I had a endoscopy and colonoscopy and my biopsies were all negative but diagnosed with collagenous colitis. My GI doctor prescribed budesonide 9mg a day. My insurance said they did not cover it! I checked my prescription handbook and it said it was covered. But only at 3 mg, so my doctor prescribed the budesonide 3 mg and take three each morning. And my co pay was 8$! Today is my first day taking three 3 mg of budesonide. Can anyone tell me how soon you felt it working. Thank you"

• Chill...
• Taken for less than 1 month
• February 2, 2018

Uceris (budesonide) "I’ve battled this illness off and on for 16 yrs and have pretty much tried it all. I’m usually in full remission when I’m just on remicade and lialda (unsure how effective this really is), but I recently was forced to postpone my scheduled bi monthly remicade and promptly fell ill. I was able to get the remicade at about week 11, but by then was in a full blown flare so it didn’t throw me back into full remission as I was still bleeding, had rectal pain, and frequent trips to the bathroom. I was prescribed this foam and within 2 days noticed a substantial improvement without all the side effects of oral steroids like prednisone (horrible drug). Highly recommend this is your pain and inflammation is in your rectum / sigmoid. You can ask for lidocaine lubricant too to apply on the applicator for peace of mind."

• UCWar...
• Taken for 1 to 6 months
• January 22, 2019

Uceris (budesonide) "This is my last week using the Uceris foam. I have not noticed any significant differences over the past 6 weeks while using this. So unfortunate because I thought since the foam was going right to my ulcers it would really heal them, but instead I’m still going to the bathroom 6-10 times a day with fresh blood, painful gas and pressure. Doctor said my next choices are switching my diet drastically, prednisone or a biologic. Scared of biologics but think prednisone and a different enema will really help. Wish me luck!"

• Wpano
• Taken for 2 to 5 years
• July 9, 2021

Uceris (budesonide) "A Mayo doc prescribed Uceris foam in April 2019 after several months of severe tenesmus controlled primarily with bentyl. The medicine started working rather quickly and all was good for about a year. Experience told me I had another attack coming a year after first use and I had doctor prescribe another round of treatment in May of 2020. It knocked our the symptoms again quickly. Here I am again about 14 months later and I think the symptoms are coming back. I will try again as it beats getting on the infusion treadmill for the rest of my life"

• Fpghost
• August 14, 2021

Uceris (budesonide) "I have been on a asacol then switch to liadla past 10 years. I have Ulcerative colitis when I first got diagnosed I was in very bad shape. Everything was inflamed two months ago I have had a colonoscopy. I had put it off for 10 years so I was fearing the worst anyway only a small area was active huge improvement my doctor recommended what I want to try Uceris. I said sure so I started it after the third week of taking the medication I called my doctor and we decided to stop it as I had no firm bowel movements since my colonoscopy five days after stopping the medication I return to my normal bowel movements. The medication did not work for me it made me have urgent use the bathroom I can see the medication what it says it does sound good to me just I didn’t work for me I was hoping it would"

• Awetumn
• Taken for 1 to 6 months
• March 9, 2023

"I am able to consume food and liquids without vomiting or experiencing blood in the toilet. This is the first time in nearly ten years that I have been able to maintain a weight of 85 lbs or above. However, there are several side effects that come with this accomplishment. These side effects include a persistent runny nose for the past three months, mood swings and suicidal thoughts that make it difficult to sleep and enjoy life, constipation that lasts for 4-7 days, and unbearable bloating, cramping, and gas pains. Despite taking 290 mcg of Linzess, my irritable bowel syndrome with constipation (IBS-C) remains the only condition left to plague me. Other unpleasant side effects include adult acne, migraines, Bartholin cysts, skipped periods (despite having gained weight), unexplained bruises and cuts that refuse to heal despite not being anemic, thin skin on my face resulting in bleeding lines around my mouth and eyebrows if I try to groom them. During a recent out-of-town trip where I was without my medication for three days, I suffered a full-body edema attack that lasted for ten days. The process of tapering off my medication is also incredibly difficult and not to be taken lightly. I am counting down the days until I no longer have to endure these side effects, as they are taking a severe toll on my mental and physical health. I will never subject myself to this medication again."

• GoodT...
• Taken for 1 to 6 months
• May 5, 2021

"I took 8 weeks of the Oral Budesonide and absolutely ZERO change. I have taken all the different meds, suppositories, prednisone etc. I'm going to try Chinese herbs first - if no luck - I guess its biologics but they scare me. I have had this illness for over 30 years with much of it spent in remission ;however, this last year has been worse than ever!"

• NikaBoo
• Taken for less than 1 month
• July 22, 2016

Uceris (budesonide) "Had bleeding, diarrhea, frequent trips to the bathroom...Started to notice a difference within a day and a half of taking this. Not as many bathroom trips...actually starting to feel normal again."