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Tocilizumab and Weakness: What Users Say

Brand names: Actemra, Tyenne, Tofidence, Avtozma

Weakness: mentioned by 3 users (5.3%)

Based on user experiences from 57 Tocilizumab reviews, the following table shows the most commonly mentioned side effects.

All user comments are moderated by Drugs.com. Each review is verified for relevance and screened for inappropriate content. Side effects are user-reported and not clinically verified.

swelling 12.3%
pain 8.8%
fatigue 5.3%
stiffness 5.3%
tiredness 5.3%
weakness 5.3%

Reviews for Tocilizumab

Showing 3 reviews tagged with "weakness". Clear filters to view all 57 reviews.
Commonly mentioned side effects
  • Bec...
  • Taken for 1 to 6 months
  • August 18, 2019

For Rheumatoid Arthritis "I started Roactemra (tocilizumab brand in the UK) 4 months ago for RA, previously been on Humira and Enbrel, which did not work enough. I also tried methotrexate but can't seem to tolerate it, so then I got Roactemra. Started to work after the 3rd injection and has been working very well to control my RA. However, I now experience a feeling of not getting enough air, get very fatigued and feel weak, also some dizziness and headaches approx 2-3 days after injection. So IDK if I can keep on taking this drug. I'm not even sure if it is Roactemra causing this, but I might have to go off medication to find out, since I can't really function in my daily life - meaning I have no stiffness or joint pain, but can't breathe properly, so I can't enjoy it."

7 / 10
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  • Ano...
  • Taken for 1 to 6 months
  • April 7, 2025

For Giant Cell Arteritis "I started on high doses of prednisone, 100 mg, after going half blind in my left eye on 6/24! Weaned down to 60 mg and started on Actemra on 9/24! Weaned off prednisone in 6 mos. on 2/25! Now, after 6 mos. of Actemra, having swelling in my ankles and feet with weakness and stiffness! My experience so far is terrible!"

8 / 10
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  • Ano...
  • Taken for 1 to 6 months
  • April 7, 2025

For Giant Cell Arteritis "I started on high doses of prednisone, 100 mg, after going half blind in my left eye on 6/24! Weaned down to 60 mg and started on Actemra on 9/24! Weaned off prednisone in 6 months on 2/25! Now, after 6 months of Actemra, having swelling in my ankles and feet with weakness and stiffness! My experience so far is terrible!"

8 / 10
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