Tocilizumab and Fatigue: What Users Say

• Suz...
• Taken for 10 years or more
• October 6, 2016

For Rheumatoid Arthritis "I was diagnosed with RA over 15 years ago. At my worst, I sat on the couch with my pain pills in one hand and the TV remote in the other. I was unable to stand or walk without assistance. I was approved as a patient for the clinical trials for Actemra, and for me, this was a life-changer, a total reversal of what my life had become. I finished raising my two sons, work full-time, and even earned my degree in the last ten years since taking Actemra. While I still have some flares at times, my overall life has improved 100%. My SED rate dropped from 130's to under 5, the only thing I still struggle with is the insomnia and fatigue. I have been truly lucky as I have not experienced any side effects in the 10 years I have been on Actemra."

• Bec...
• Taken for 1 to 6 months
• August 18, 2019

For Rheumatoid Arthritis "I started Roactemra (tocilizumab brand in the UK) 4 months ago for RA, previously been on Humira and Enbrel, which did not work enough. I also tried methotrexate but can't seem to tolerate it, so then I got Roactemra. Started to work after the 3rd injection and has been working very well to control my RA. However, I now experience a feeling of not getting enough air, get very fatigued and feel weak, also some dizziness and headaches approx 2-3 days after injection. So IDK if I can keep on taking this drug. I'm not even sure if it is Roactemra causing this, but I might have to go off medication to find out, since I can't really function in my daily life - meaning I have no stiffness or joint pain, but can't breathe properly, so I can't enjoy it."

• She...
• Taken for 1 to 2 years
• January 7, 2018

For Rheumatoid Arthritis "Helped greatly but still suffered terrible fatigue and pain, along with upset stomach and weight gain."