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Tocilizumab for Juvenile Idiopathic Arthritis User Reviews

Brand names: Actemra, Tyenne, Tofidence, Avtozma

Rating: 6.4

Tocilizumab has an average rating of 6.4 out of 10 from a total of 5 reviews for the treatment of juvenile idiopathic arthritis. 60% of reviewers reported a positive experience, while 40% reported a negative experience.

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  • lau...
  • August 11, 2016

Tocilizumab "Actemra is the best medicine! I was diagnosed with polyarticular JIA when I was 13 years old. Now I am 19 years old. I tried many medicines: methotrexate, sulfasalazine, leflunomide, Enbrel, Remicade. And my arthritis was always active... But after my first Actemra infusion, I felt the difference. Now I get these infusions since May. And I don't feel any pain, stiffness, or swelling. I remember that I have arthritis not because my joints hurt but just because I need to go to the hospital for IV infusions. Now I feel like a healthy person! And I feel like that just because of Actemra! Oh, and I also want to say that I don't have any side effects! P.S. Sorry, I can write with some mistakes because English is not my first language, I'm from Europe."

10 / 10
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29 Report
  • ALE...
  • Taken for 1 to 6 months
  • January 2, 2015

Tocilizumab "I started on this after failing treatment with two other injectables. At 4 weeks, I felt great! Like I had nothing wrong with me. Now, at three months, I still feel better than before, but I definitely begin having pain for a couple of days before my injection. This is better than any other medication I have been on for this."

9 / 10
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20 Report
  • OhT...
  • December 9, 2015

Tocilizumab "Switched from Kineret, which I was on for 9 years, and it wore out. Then switched to Actemra and was on it for 3 months. It did nothing for me, very little relief, and 40% of my hair fell out. I'm only 20 years old, and I've had JIA since 7 years old, still trying to find a remission drug."

3 / 10
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12 Report

Frequently asked questions

  • Lou...
  • Taken for 1 to 6 months
  • May 15, 2019

"Had tocilizumab intravenous monthly. After the 3rd month, I had a grand mal seizure and was diagnosed with epilepsy. I now have absence seizures, grand mal seizures, and focal seizures. I blame this medication."

1 / 10
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1 Report
  • Anonymous
  • Taken for 6 months to 1 year
  • April 26, 2014

Tocilizumab "After many different medicines, this medicine worked the best! Happy with results."

9 / 10
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19 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.