Teriflunomide and Hair Loss: What Users Say (Page 2)

• Gig...
• Taken for 1 to 6 months
• June 26, 2019

Teriflunomide for Multiple Sclerosis "Have had M.S. since 19 years. Now 60 years. Was on Tysabri for 7 years, no relapses. Then tested positive for C.J. virus. Have taken Aubagio for 6 months, lots of hair loss and upset stomach, also burning in feet. Haven't had MRI yet, hope it’s working."

• Sof...
• Taken for 2 to 5 years
• February 9, 2020

Teriflunomide for Multiple Sclerosis "I have been diagnosed with MS in 2004, and I haven't taken any medication until 2018, when I started on Tecfidera, and it was horrible. I had all the side effects and felt I wasn't living a whole month. The doctor decided that I try Gilenya, but that didn't work for me since my heartbeat was too low to be on it. Then I started on Aubagio and was on it for two years. At the beginning, I had hair thinning and loss, sometimes I have heavy legs, weakness, and fatigue. My vision is sometimes not clear, especially if I am stressed on that day. Recently, the doctor asked me to stop it since I started having bruises all over my body, and from my blood work, I have a bleeding disorder caused by the medication and alopecia. I am having my MRI tomorrow and will decide what to be on. As someone said, we are just poisoning ourselves."

• Lal...
• Taken for 1 to 6 months
• June 18, 2019

Teriflunomide for Multiple Sclerosis "I took Aubagio for 6 months. My hair started to fall out, and I was being billed for my blood work. I've stopped taking it for a little over a month now, and I think my skin looks yellow. If you decide to take this, you should do your homework and always get your blood work done."

• Bec...
• Taken for 2 to 5 years
• June 2, 2019

Teriflunomide for Multiple Sclerosis "I experienced a great deal of hair loss. I also had a lot of GI issues. Also, Aubagio has the worst customer service I have ever experienced. Because I moved, I had a new neurologist who had not been informed of a protocol for ordering a lab. The doctor stated an Aubagio rep has never even been to their office and they were unaware of the protocol. Well, I am stuck with an over $500 lab bill. Aubagio normally pays for this lab, but told me there was nothing they could do since the doctor did not know the protocol. Very poor customer service. I have stopped taking this med and will never take it again."

• ann...
• Taken for 6 months to 1 year
• March 9, 2021

Teriflunomide for Multiple Sclerosis "The medicine made me weak, always sick to my stomach. It affected my eyes, which the drug company said they had never heard of. Headache, skin was itchy all the time, and losing hair was not my cup of tea either. The doctor took me off. This drug is not for everyone."

• Tam...
• May 17, 2022

Teriflunomide for Multiple Sclerosis "Drug attempt number 3. I started Aubagio in January 2022. This is now May 2022. Since January, I have had an ear infection x2, chest infection, COVID (after being free of it for the whole 2 years), labyrinthitis, and now pelvic inflammatory disorder. It could all be a coincidence, however, my MS nurses seem to think that I may be one of the unlucky ones who have an increased risk of viral and bacterial infections due to this medication. No issues at all with my liver while being on this. The only other side effect is that my hair comes out in clumps almost, and my nails snap constantly, which is a bit of a bummer. I feel lately like my body is a punching bag and I am terribly done in and mentally exhausted while trying to remain positive. Looking at switching again, and if it doesn't work, I think I may go med-free for a while and work with vitamins and being strict with being as active as I can and eating healthy. Because I can't take much more."

• Ste...
• Taken for 2 to 5 years
• June 26, 2022

Teriflunomide for Multiple Sclerosis "2022 makes 34th year of MS. No meds available then for a few years. I started on Betaseron first for a few years. Switched to Avonex for 19 years, then finally got tired of harpooning myself and changed to Plegridy for 2 years. Had to try Copaxone to satisfy insurance for a month or two. Only with Copaxone, it felt like I had been hit with a baseball bat after each shot. Then switched to Aubagio 4 years ago, and other than hair thinning a little, I have had NO problems. Enjoy the single pill and NO NEEDLES. Copaxone was the only med that ever gave me PROBLEMS."

• Til...
• Taken for 2 to 5 years
• January 13, 2022

Teriflunomide for Multiple Sclerosis "I was diagnosed with MS in July of 2017. I started out with Tecfidera, which caused my lymphocytes to go too low. My neuro switched me to Aubagio, which I've been on for over 2 1/2 years. I did have hair thinning for the first 7 or 8 months, but no other side effects, and the thinning stopped. In fact, my hair has been growing in thicker and now has a bit of a wave to it. I don't know if it's the Aubagio or just coincidence, but I've always had naturally straight, baby fine hair. I have always taken my pill at night right before bed, so maybe that helps with not having other side effects. I had 8 lesions on my brain back in 2017, and since I've been on a DMD, I have had no new lesions. Is it the meds working or just my body fighting it? Who knows, but I'll keep taking Aubagio since it's not causing any problems and there is the chance that it is keeping me from progressing. Plus, my insurance covers it, and with co-pay assist, I don't pay anything. Time will tell."

• Esc...
• Taken for 1 to 2 years
• July 27, 2019

For Multiple Sclerosis "My diagnosis was in 2012, and my relapses were very frequent, just getting over one, then months later into another. I was started on Aubagio 20 months ago, firstly the hair thinning and burning feet, but after 6 months, the hair thinning became more bearable. Still have the painful feet, but not as bad. My first scan revealed bad lesions to my left. My scan 3 years later proved a 5% change, and 2 years after my last scan, the time from taking Aubagio showed no change and 3 relapses, but quite mild ones, only taking a few days to recover, not weeks. So yes, if you get the opportunity to give it a trial, go for it, but like most medication, it works for some and not others. Good luck to all of you with MS, and let’s hope for a cure. Love from the UK."

• Cub...
• Taken for 2 to 5 years
• June 27, 2018

Teriflunomide for Multiple Sclerosis "I’ve been on Aubagio for 2 years. I had some side effects: diarrhea and hair thinning. The hair thinning is starting to come back after 2 years. I love the ease of this versus injections."

• She...
• Taken for less than 1 month
• May 4, 2018

Teriflunomide for Multiple Sclerosis "My speech was slurring badly, and I had some hair loss."

• Aud...
• Taken for 6 months to 1 year
• July 14, 2021

Teriflunomide for Multiple Sclerosis "I permanently lost 80% of my hair and eyebrow."