Tecvayli for Multiple Myeloma User Reviews

• swe...
• Taken for 6 months to 1 year
• December 1, 2024

"From my first IV session with this drug, I absolutely had no negative reactions nor negative daily complications nor complaints but one: feet neuropathy. But taking 1000 units of liquid vitamin D-3 minimized the pain to about a 3 from a 7. From day one, my kappa and light chains dropped to 0 and stayed at 0 for one year while on monthly chemo of this drug. Then... they stopped it, and I was still at 0 for another year having monthly IVGA to suppress my immune system. Now, my count is 4 and rising every month. My doctor says to wait till it hits 19, but he has not given me any indication nor discussion of what the plan is after. I was able to think clearly and function. A lot of muscle pain and aches, which has been hard, but I had 3 surgeries in this period of time: 2 spine surgeries for stenosis and 1 complete shoulder replacement. I weathered all of this while on the chemo. This drug definitely, definitely saved my life, and I have had a great quality of life since then."

• Dou...
• Taken for 6 months to 1 year
• January 23, 2025

"I’ve been on this therapy since March 2024. Except for the tingling in my feet during the first step-up dose, I’ve had no side effects. I had some lower back pain, but that was ongoing prior to the start of this treatment. Now, the tingling in my feet still occurs, but not as often. I am now stronger and do not have to use a walker or a cane for mobility. I feel so much better, and my quality of life has improved immensely."

• Und...
• Taken for 1 to 2 years
• February 28, 2025

"I started on the Tecvayli regimen 12/2023. My dosing was a step up until once a week. Once my cancer was undetectable, I was given treatment every two weeks. As of 2/2025, I am still undetectable and will start just once a month treatment. I feel wonderful. Thank goodness for this wonderful drug. I am unable to undergo Car-T treatment because I don't have a family member or friend that can care for me during this treatment. I hope that cancer hospitals will change their protocol and allow hospital stays, so in the future I may get Car-T treatment if or when Tecvayli no longer works for me. My side effects were running high fevers in the beginning but I was given counteractive meds to get this side effect under control. I have had no other serious side effects except weight gain, low IGG levels, and platelets and ANC levels. These side effects have been remedied with other treatments."

• Tex...
• Taken for 5 to 10 years
• September 28, 2024

"Following 10 years of treatment, I was at a dead end. I was offered Tecvayli on a compassionate basis. Best treatment I have used in all the years. Currently, M-Peak is not measurable. Unfortunately, the cancer is not causing my challenges, the medication's side effects are. I guess I can live with those."

• Low...
• Taken for 1 to 6 months
• June 4, 2024

"So far, so good, my numbers are excellent and in remission!"