Tacrolimus User Reviews & Ratings (Page 2)

Brand names: Prograf, Envarsus XR, Astagraf XL

Tacrolimus has an average rating of 7.9 out of 10 from a total of 49 reviews on Drugs.com. 71% of reviewers reported a positive experience, while 12% reported a negative experience.

Reviews for Tacrolimus

Nep...
Taken for 5 to 10 years
April 20, 2018

For Nephrotic Syndrome "My son has been on tacrolimus for 5 years. He is 14 and has Nephrotic syndrome, never had a transplant, and his urine always shows that he has protein leaking when results come back. When the doctor sees him, he looks fine, but when the labs come back, they're not good. I read all the reviews, and it looks like you all had transplants and it helps. I can't understand why this isn't working for him. The pills get bigger and smaller, and it's the same tacrolimus? Can anyone tell me if it's the size of the pills?"

3 / 10

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Hol...
Taken for 10 years or more
August 26, 2021

For Organ Transplant, Rejection Prophylaxis "I’ve been taking Prograf/Tacro for a long time. Maybe started the pill when I was 5 years old? Cyclosporine made me look like an animal-from the pictures I've seen of myself! I’ve had my transplanted liver for just about 28 years, never had any complications. Glory to God! No side effects for me with this medication-taking 1 mg/2x day (both pills at night). That’s not how the meds were prescribed, but I had poor habits as a teen taking this, and the routine stuck. I do not recommend anyone else to follow suit! Haha, just giving my experience. I’m thankful for this medicine!"

10 / 10

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r00...
July 15, 2013

For Organ Transplant, Rejection Prophylaxis "Renal transplant 2000. No problems besides a slight tremor in my hands. Cyclosporine caused terrible reactions for me, immediately post-transplant. Had to have 6 plasma apheresis rounds to clear the cyclosporine and then smooth sailing on tacrolimus."

10 / 10

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Des...
Taken for 6 months to 1 year
July 7, 2023

Tacrolimus for Organ Transplant, Rejection Prophylaxis "My mother is post-op 7 months liver transplant. She was switched to this medication after not tolerating Prograf. The nurse said that this was already FDA approved for kidney and heart transplant patients. But hadn't been approved for liver transplant patients. But they had a very promising trial going with recent liver transplant patients taking Envarsus and having awesome results. My mother was hospitalized for another issue and while she was there she mentioned how Prograf made her feel on a daily basis. They agreed to try her on Envarsus and she has tolerated it better than Prograf. She still experiences some of the same side effects but they are not as bad as when she was on Prograf."

10 / 10

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Ken...
Taken for 1 to 2 years
February 18, 2021

For Graft Versus Host Disease "The liquid form is sweet! Reminds me of a warm blue popsicle juice. It makes my skin sensitive, and I get nauseous sometimes, but that could be with any of the drugs I'm also on. It is not the worst ever."

9 / 10

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Anx...
January 26, 2013

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Prograf seems, so far, to be a great immunosuppressive medication. Bad - tremors and anxiety."

7 / 10

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Anonymous
September 24, 2009

Tacrolimus for Organ Transplant, Rejection Prophylaxis "I have been using Prograf for 4 years now. 1 mg in the AM and 1 mg in PM. Last year, or 3rd year into this treatment, I had 2 episodes with squamous cell carcinoma, which were both removed."

8 / 10

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20 Report

Anonymous
August 29, 2009

Tacrolimus for Organ Transplant, Rejection Prophylaxis "I take it because I need it. If I did not have a transplant, I would not want to take it because I have gained weight and have edema."

3 / 10

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19 Report

Anonymous
August 18, 2008

Tacrolimus for Organ Transplant, Rejection Prophylaxis "I have taken Prograf since my liver transplant eight years ago. Very few side effects. Nothing compared to dying with liver disease. Very blessed from the drug and my donor, Spencer."

10 / 10

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19 Report

Anonymous
November 23, 2011

Tacrolimus for Organ Transplant, Rejection Prophylaxis "I'm taking Prograf since 2000. Was seven back then, now I'm 19. Still no side effects, just wanted to check if there are any long-term side effects."

10 / 10

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JJO...
September 21, 2010

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Liver transplant 8 years ago. No problems."

9 / 10

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19 Report

ale...
Taken for 10 years or more
October 18, 2018

Tacrolimus for Organ Transplant, Rejection Prophylaxis "No problems of liver rejection from when I use Prograf (Tacrolimus), but I have some collateral effects like alopecia and tremors in my hands, and sometimes I feel buzzing in my ears. 9/10!"

9 / 10

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Anonymous
December 21, 2011

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Started taking Prograf in July of 2011 for my heart transplant. Except for some slight itching and for a little fluid in my ankles, this drug has worked wonders."

10 / 10

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WD4...
Taken for 6 months to 1 year
May 24, 2018

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Been using Envarsus XR for over a year. Started at 1.75 mg and now at 1.5 mg. The most notable side effects are the tremors. Hands noticeably shaking. I'm adapting."

8 / 10

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Anonymous
February 27, 2009

Tacrolimus for Organ Transplant, Rejection Prophylaxis "This has fewer and lesser side effects as compared to other medicines given after organ transplant for my eight-year-old daughter's heart transplant."

10 / 10

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10 Report

bad...
April 21, 2009

Tacrolimus for Organ Transplant, Rejection Prophylaxis "I have kidney disease, called IGA nephropathy. I am 14 years old, male, diagnosed in July of 2008. I am finally in remission. I have not yet had a transplant."

9 / 10

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don...
Taken for 10 years or more
March 7, 2014

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Easy to take, haven't felt any side effects. No secondary infection. 12.5 years' experience used with CellCept and for a while with Prednisone."

10 / 10

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jdd...
July 8, 2014

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Some side effects... they've been manageable. Keeping a positive attitude and having a support group has been beneficial."

7 / 10

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Sen...
July 7, 2018

For Crohn's Disease "Tacrolimus has too many real side effects. Would the doctor prescribe this to someone they love in their family? I can't believe doctors prescribe this stuff to patients. This stuff is bad. Period."

1 / 10

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4 Report

Anonymous
August 28, 2008

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Great drug, it lets me keep my new kidney, but it gives me terrible diarrhea. Just got a kidney 7 weeks ago, had my first one 12 years ago."

8 / 10

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7 Report

del...
September 4, 2009

For Organ Transplant, Rejection Prophylaxis "Prograf seems to have worked since my liver transplant 4 years ago, but it has also kept me broke, at $1,641 for 60 5 mg caps. I'm grateful to be alive but not happy about what it has cost me."

10 / 10

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3 Report

web...
Taken for 1 to 2 years
August 15, 2021

Tacrolimus for Organ Transplant, Rejection Prophylaxis "Gave me nausea, stomach pain, frequent stool, fatigue, kidney pain. I stopped it and now take only Myfortic and Prednisolone."

4 / 10

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mil...
Taken for 1 to 6 months
September 1, 2015

Tacrolimus for Organ Transplant, Rejection Reversal "Standard postoperative organ anti-rejection/immune system suppressant treatment."

8 / 10

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Joh...
Taken for 10 years or more
January 7, 2025

For Organ Transplant, Rejection Prophylaxis "I have taken this medication twice a day for eighteen and a half years, for my kidney transplant (from sister), with no side effects, complications, or issues whatsoever."

10 / 10

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.