Tacrolimus User Reviews & Ratings (Page 2)

Brand names: Prograf, Envarsus XR, Astagraf XL

Tacrolimus has an average rating of 8.1 out of 10 from a total of 48 reviews on Drugs.com. 76% of reviewers reported a positive experience, while 10% reported a negative experience.

Reviews for Tacrolimus

Nepro...
Taken for 5 to 10 years
April 20, 2018

For Nephrotic Syndrome "My son has been on tacrolimus for 5yrs he is 14 and has Neprotic syndrome never( had a transplant) and his urine always shows that he has protein leaking when results come back. When Dr sees him he looks fine.but when the labs come back they're not good. I read all the reviews and it looks like you all had transplants and it helps . I cant understand why this isn't working for him. The pills get bigger and smaller and its the same tacrolimus? Can anyone tell me if its the size of the pills ."

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r00sty
July 15, 2013

For Organ Transplant, Rejection Prophylaxis "Renal transplant 2000. No problems besides slight tremor in my hands. Cyclosporine caused terrible reactions for me, immediately post transplant. Had to have 6 plasma apheresis rounds to clear the cyclosporine and then smooth sailing on tacrolimus."

10 / 10

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Desiree
Taken for 6 months to 1 year
July 7, 2023

Envarsus XR (tacrolimus) for Organ Transplant, Rejection Prophylaxis "My mother is post-op 7 months liver transplant. She was switched to this medication after not tolerating Prograf. The nurse said that this was already FDA approved for kidney and heart transplant patients. But hadn't been approved for liver transplant patients. But they had a very promising trial going with recent liver transplant patients taking Envarsus and having awesome results. My mother was hospitalized for another issue and while she was there she mentioned how Prograf made her feel on a daily basis. They agreed to try her on Envarsus and she has tolerated it better than Prograf. She still experiences some of the same side effects but they are not as bad as when she was on Prograf."

10 / 10

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Kenzie
Taken for 1 to 2 years
February 18, 2021

For Graft-versus-host disease "The liquid form is sweet! Reminds me of a warm blue popsicle juice. It makes my skin sensitive and I get nauseous sometimes but that could be with any of the drugs I'm also on. It is not the worst ever.."

9 / 10

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Brian
Taken for 2 to 5 years
August 28, 2024

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Had two weeks to live before I received my new liver 2.5 years ago. Currently take 1 mg in the morning and 2 in the evening. My side effects are bad joint pain, fighting weight gain, very hard to lose. Ongoing anxiety. Hey, my feet hit the floor in the morning, so I have another day. Every day is great thanks to my unknown donor. Thank you."

10 / 10

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Anxiety
January 26, 2013

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Prograf seems so far to be a great Immunosuppressive medication . Bad - tremors and anxiety."

7 / 10

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22 Report

Anonymous
September 24, 2009

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "I have been using Prograf for 4 years now. 1 mg in the AM and 1 mg in PM. Last year or 3rd year into this treatment I had 2 episodes with squamous cell carcinoma, which were both removed."

8 / 10

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20 Report

JJOHN...
September 21, 2010

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Liver transplant 8 years ago. No Problems."

9 / 10

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19 Report

Anonymous
November 23, 2011

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "I'm taking Prograf since 2000. Was 7 seven back then, now I'm 19. Still no side effects, just wanted to check if there are any long term side effects."

10 / 10

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17 Report

Anonymous
August 29, 2009

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "I take it because I need it. If I did not have a transplant I would not want to take it because I have gained weight and have edema."

3 / 10

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19 Report

Anonymous
August 18, 2008

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "I have taken Prograf since my liver transplant eight years ago. Very few side effects. Nothing compared to dying with liver disease. Very blessed from the drug and my donor Spencer."

10 / 10

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19 Report

Anonymous
December 21, 2011

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Started taking Prograf in July of 2011 for my heart transplant, except for some slight itching and for a little fluid in my ankles, this drug has worked wonders. "

10 / 10

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13 Report

alexus
Taken for 10 years or more
October 18, 2018

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "No problems of liver reject from when I use Prograf (Tacrolimus), but I have some collateral effects like alopecia and tremors of hands and sometimes I feel buzzing in my ears. 9/10 !"

9 / 10

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7 Report

WD40
Taken for 6 months to 1 year
May 24, 2018

Envarsus XR (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Been using envarus XR for over a year. Started at 1.75 mg and now at 1.5 mg. The most notable side effects are the tremors. Hands noticeably shaking. I'm adapting."

8 / 10

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Anonymous
February 27, 2009

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "This has fewer and lesser side effects as compared to other medicines given after organ transplant, for my eight year old daughters heart transplant."

10 / 10

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10 Report

Sendy
July 7, 2018

For Crohn's Disease "tacrolimus has too many real side effects. Would the doctor prescribe this to someone they love in their family? I can't believe doctors prescribe this stuff to patients. This stuff is bad. Period."

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dondi...
Taken for 10 years or more
March 7, 2014

Hecoria (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Easy to take haven't felt any side effects. No secondary infection. 12.5 years experience used with CellCept and for a while with Prednisone."

10 / 10

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6 Report

badass
April 21, 2009

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "I have kidney disease, called IGA nephropathy disease. I am 14 years old, male, got diagnosed in July of 2008. I am finally in remission. I have not yet had a transplant."

9 / 10

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7 Report

jddsix
July 8, 2014

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Some side effects...they've been manageable. Keeping a positive attitude and having a support group has been beneficial."

7 / 10

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Anonymous
August 28, 2008

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Great drug, it lets me keep my new kidney, but it gives me terrible diarhea. Just got a kidney 7 weeks ago had my first one 12 years ago."

8 / 10

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7 Report

webio...
Taken for 1 to 2 years
August 15, 2021

Prograf (tacrolimus) for Organ Transplant, Rejection Prophylaxis "Gave me nausea, stomach pain, frequent stool, fatigue, kidney pain. I stopped it and now take only myfortic and Prednisolone"

4 / 10

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1 Report

delid...
September 4, 2009

For Organ Transplant, Rejection Prophylaxis "Prograf seems to have worked since my liver transplant 4 years ago, but it has also kept me broke, at $1641 for 60 5mg caps. I'm grateful to be alive but not happy about the what it has cost me."

10 / 10

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3 Report

milesjp
Taken for 1 to 6 months
September 1, 2015

Prograf (tacrolimus) for Organ Transplant, Rejection Reversal "Standard Postoperative Organ Anti Rejection / immune system suppressant treatment"

8 / 10

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2 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.