User Reviews for Protopic to treat Atopic Dermatitis
Protopic has an average rating of 6.8 out of 10 from a total of 65 reviews for the treatment of Atopic Dermatitis. 58% of reviewers reported a positive experience, while 26% reported a negative experience.
Reviews for Protopic
"Works wonders, but be prepared for a wild ride if you are one of the unlucky lottery winners of this side effect. I was perscribed 0.1% Protopic ointment. When I put on my first application, there was no immediate burning. The burning began about 8-10h later. And intensified with each progressive application. Two weeks in and there is no end to the burning. Its not as bad as the first few days, but boy, I have NEVER felt anything like it. By my second day I was on the floor in tears (which I got to find out first hand, makes things much worse because apparently tears become caustic when they make contact with protopic-laden skin). I don't know how I feel about protopic. I mean, 10/10, it definitely does what it claims to do... VERY effectively. It has cleared up almost 90% of my problems that I have been dealing with for over a year, in just two weeks. But I don't enjoy feeling like I've made a deal with the devil, having to trek through fire to get there."
"So after 18 months of pure agony on my eyes stinging and burning trying every known cream under the sun !!!! Can’t put make up on. Can’t be around strong fragrance or even cook with smells that burn my eyes !! I decided not to try anything for 4 months and they got worse and worse ! I was prescribed Protopic 0.1% I tried for a couple of days but the burning was just so bad!! So now on 0.3% terrified of having a reaction I was so desperate last night as every time I put it on the burning and the itching is so intense makes me feel sick !! But after reading the reviews on here I am going to stick with it I am just hoping that this helps as I am at the end of the road now and so depressed. Please, please tell me that burning goes away and can anybody suggest anything that would help with it ? X"
"A drug may work well for some, and not so well for others. I am happy to report that Protopic is pretty much a miracle drug for me. I had developed a severe case of blepharitis, or contact dermatitis, around my eyes. They were red, itching, flaking, burning, and swollen. I looked and felt like hell. Within 24 hours, I was 75% better. And a few days later, symptoms were pretty much gone. I continued to use it for approximately 3 weeks. Now, when a symptom starts to flare up, I apply it for only a day or so to control it."
"I have severe eczema on my face, which is not only embarrassing but very uncomfortable. I was so desperate I was putting steroid creams around my eyes, which everyone knows is not the best idea. My eyelids were so swollen I didn't have a choice. I saw a dermatologist who prescribed Protopic, but with all the warnings I was afraid to use it at first. I became so desperate I applied only a little bit, and was amazed at the results. After a day or two the inflammation is completely gone. The only major side effect is that it can make your skin feel very HOT, which gets worse with sun exposure or when consuming alcohol. But for me, it's worth it. This drug is a miracle for someone like me, I recommend it highly."
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"Hi I suffered a very bad reaction. I used Protopic only for a few days and suffered unbearable burning sensations in my eyes and around. I felt like my face was burning and tried everything to cool down from rosewater, ice and also took several cold showers it made no difference! My eyes continuously watery and sore. I also suffered headaches I immediately stopped the medication yesterday still suffering."
"I am in the same boat as harley7373. This ointment kept me up most of the night because it was burning my eyelids and it still is and it's been more than 12 hours since I put it on. If you have very sensitive skin and always have, this may affect you the same exact way."
"I’ve suffered very badly from atopic dermatitis on my face for about 18 months. I’ve used a lot of topical steroids on my face, particularly around my eyes. I became worried that I would start to get some of the side effects from them. I was extremely self conscious about my eczema and it had a negative effect on my confidence. I would avoid going out and seeing people. I was prescribed Protopic by a dermatologist and it has changed my life. When I first used it I didn’t experience any of the burning or itching but after taking a break for a few months it was very uncomfortable when I started to use it again. My face burnt and was very itchy for the first day or two of use but the side effects disappeared after that. I completely transformed my skin within 2/3 days. It’s amazing to finally have an option to treat eczema that isn’t a steroid cream. This is an expensive medication but worth every euro. It can also be used to prevent flares if applied twice a week."
"After years of having eczema flare ups all over my face and body - I did my Dr's regime - which worked wonders! However still get eczema only around my eye area - so my Dr prescribed me with Protopic. After reading some of the other experiences, I was scared to try it at first due to the burning sensation others had experienced. However I gave it a go after major anxiety - I put a thin layer around my eyes and about 2 hour after my skin felt slightly warm, not warm like a flare up - just felt like I was close to a heater, but it wasn't a horrible sensation and my skin didn't feel hot to the touch. It wasn't painful at all - thank goodness! This sensation lasted about 2 hours and didn't get any worse. I'm now on my 5th day and have not experienced that sensation since the first time and my eczema has disappeared - amazing! Wish I was given this as a teenager, would have saved a lot of upset about my skin around my eyes! Can't get over how quick and well it's healed!"
"Protopic has been awesome for my face and hands. My dermatitis started in my teens and left me with weepy/bleeding scales on my knuckles, upper lip, nose, eyebrows and eyelids. Protopic wasn't around and used Westcort cream, along with many stronger topical steroids. Flash forward to today. My skin is extremely thin all over my face, but thankfully no cataracts (applied steroids everywhere). Is Protopic a miracle drug? No, but it's the only thing available to stop my AD on the face. First application causes stinging/burning/HOT sensation. After you get past that first day, my symptoms go away. I continue applying until the skin has healed. Then, I stop it. When the eczema starts coming back, I start applying it again."
"I have struggled with flare ups for at least 5 years. Last couple of months I had rashes around my eyes and mouth. I was unable to show my face in public. I was feeling extremely depressed I have tried all possible treatments from eliminating all dairy and gluten. To eating all vitamins you can find and nothing have help until my doctor prescribed Protopic! It was a burning sensation when applying it for the first 2 times. And every time my skin would normally react (flare up) to something It would start burning as if the ornaments actually helped my skin to fight the reaction. After 2 days my skin cleared up and now after a week, my skin is the best it’s been in many years. Feels like I am cured. Why is my question doesn’t doctors prescribe this all the time? It will save people’s life’s"
"I developed eczema on my eyelids and originally treated it with a eucerin cream. While that moisturized the area well, my eyelids were still swollen and constantly itchy. My doctor later prescribed this to treat it and warned me about the burning sensation during the first 24 hours. As many people have mentioned after the first application the skin begins to feel like its burning and mine became very red, it was miserable. However, after the first day that goes away and within a week I had normal eyes again! I am so happy with this ointment, I honestly thought I would never have normal eyes again."
"I was suffering from eczema since 3 years of age. In and out of hospitals, all the creams and wraps, steroids and immunosuppressants. After 30 it got much worst on my face and eyes. Pregnancy and breastfeeding was hell. Actually, my eye dr recommended Protopic and I had all the burns and numbness in my mouth and lips and strange kinda high feeling for approximately 2 weeks. Protopic gave me my face and my life back!! I can not be grateful enough for it. It did make me more prone to cold sores on my lips and nose so I have to take drugs for that every now and then. I would get extremely red if I had alcohol and have to avoid the sun if I use it. U will learn how to use it, so just avoid protopic for a number of days before holiday or night out. I'm doing the eczema diet from Katie Fisher and it works for me, so I'm not using any drugs anymore, but I will always have protopic with me just in case."
"I have used this for a little over 2 months and every time I used it, it made me more itchy. My dermatologist just recommended me to put in fridge for 10 minutes and so far there is no itch, but is more difficult to get out of the tube."
"I have had intermittent eczema all my life. It mostly just occurs on face around my mouth and nose. I remember trying every type of moisturizer and prescription cream there was out there. I finally got prescribed Protopic by a physician and I was amazed! I have been using it the last 10 years and it has always made a big difference."
"I have used Protopic continuously for about 5 years for atopic dermatitis and all I can say is, this medicine does wonders for your inflamed skin - sure it burns a lot if the eczema flares, but the burning will fade away after a couple of hours. Recently I was diagnosed with guttate psoriasis as well (unlucky me, yup!), and since I wasn't so pleased with the topical steroid-creams, I tried Protopic on my psoriasis lesions. And this showed up to be a very good idea, since I have been in control of my psoriasis since I started using it. So all in all, I give this my best recommendations, although it is a bit expensive."
"My dermatologist gave me a sample of Protopic for itching eyelids. He did not caution me that it was not for eye use as i later read on the outside of the tube. I applied it one evening to both eyelids. I spent the next 3 hours in misery from burning and itching eyes before I finally fell asleep about midnight. The only way I could get any relief was to wash my eyes with baby shampoo and water.It was terrible."
"Probably the best Ointment I have ever used. I used to use Hydrocortisone but my Doctor took me off it due to the risk of atrophy. All I can say is my face is remarkably different compared to a year ago thanks to Protopic. It's safe to use too. I'm at the 12 month mark now so will need to see a Dermatologist soon to decide on using it long term but I really hope I never have to stop using it!"
"Protopic does the job. My intermittent atopic dermatitis affects small areas of my face along the nose, eyebrows, some hairline at eyebrow level, forehead, and patches on both sides of the chin. When redness shows up, light application of Protopic clears affected areas within 2 to 3 days without fail."
"My dermatologist prescribed Protopic 0.1% for a psoriasis related rash on my face. Steroid creams would give noticeable results after 1 application. The Protopic took about 2 days before I noticed a significant difference. By the 3rd day, I realized the Protopic was really working well. I am very happy with this medicine. It works better than the steroids without the side effects, and the effect seems to last longer. I can get by with one application every couple of days now. I do notice a little itching when using, but other than that, I have not noticed any side effects."
"After 5/6 trips to my local GP and getting no where with my skin, it was time to cave in and see a specialist and it’s the best thing I’ve ever done. After suffering with eczema and acne all on my face for 2 years now, within 2 days of using this cream it’s cleared up remarkably. Now I can’t lie and I will say the first few times it stings and burns you’re face like anything but the results are insane. This cream really is a miracle and I’m smiling for the first in years as I can finally see progress in my face. Again the only down sides are the price and the agony you’ll go through for the first few uses but I beg you see through it because you will not be disappointed."
"I started using Protopic on Dec. 1st and alternating it with Desoximetasone per my doctors orders. At first the dermatitis cleared up on my hands (that would crack and bleed and then the skin would get hard and peel off and once it peeled off the new skin was very tender and there was a lot of pain. Once I started using Protopic--the condition seemed to clear up 90% but never 100%--well here it is Feb 28th and I have spent the entire week since Sunday in bed. I have every side effect listed--my hands itch like crazy, have headache (worst I have ever had) my flu like symptoms are the chills, runny nose (have gone through 2 boxes of Kleenex, sore throat. Hurts to swallow, muscle pains. Absolutely no energy/unusual tiredness."
"I'm on Protopic 0,1% for only two days, and it has helped a lot, i think, in a week of daily usage two times per day, my AD will be gone. It has made HUGE improvement already. Only First time made my skin abnormaly itchy, as well as burning sensation followed, but in my second day, these bad sensations has decreased a lot, only itches a bit. I really am excited about this medication, very grayeful to doctor who prescribed Protopic. I feel really happy at the moment, after years and years of depressed mood and damaged skin."
"I had a severe skin infection on the head of my penis which was horrible. It hurt to pee, move around, even walking was a challenge. After trying to use a regular hand cream, that did not work, i paid a visit to the dermatologist. I was then given several samples of Protopic. After about a week of following dosage and prescription my penis was healed and ready. I recommend this product to people who have been prescribed it and advise to use as directed."
"I have had severe eczema just above my upper lip for three years. It has been awful and painful and I finally sought out a dermatologist after it started getting even worse recently. Protopic has changed my life! It did feel uncomfortably hot and itchy for the first few days but it’s not bad at all- very bearable. I recommend not reading up on it and scaring yourself and just trying it because chances are you will feel very mild side effects."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"An hour after put it on for the first time was the worst itching and burning I have felt in my life. The next day I used it didn’t feel anything and it started healing my eczema right away! If you can get through your first time using it, don’t stop keep going it’ll help you."