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Rituximab for Bullous Pemphigoid User Reviews

Brand names: Rituxan, Truxima, Ruxience, Riabni

Rating: 6.3

Rituximab has an average rating of 6.3 out of 10 from a total of 3 reviews for the off-label treatment of bullous pemphigoid. 33% of reviewers reported a positive experience, while 0% reported a negative experience.

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  • Pho...
  • Taken for 2 to 5 years
  • July 23, 2017

"I had 4 rituxan infusions last year. Discontinued all meds in Dec. 2016. Symptoms returned within 2 weeks. Blood work in Jan. 2017 showed my numbers were still as high as when I was first tested a year earlier. Started again with the azathioprine and have had 4 rituxan infusions this year. Will not know if infusions worked until I have more blood work. My infusions take approximately 5 hours to avoid most side effects."

5 / 10
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  • Pho...
  • Taken for 1 to 6 months
  • July 27, 2016

"I had 2 infusions in June, 2 weeks apart. Had a severe reaction with the first infusion and a mild reaction with the second infusion. Have not noticed any changes in my condition. I've read it might take up to 3 months to see the effects of rituximab. Am still taking azathioprine, prednisone, and doxycycline to manage symptoms."

5 / 10
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2 Report
  • Ano...
  • Taken for 2 to 5 years
  • March 29, 2025

"I started getting infusions in 2023. Started every 6 mos, two wks apart. I have rheumatoid arthritis, and then I got bullous pemphigoid. The medication worked great, I haven't had a flare-up since 2023. I haven't really had any side effects. I think it's a good medication, but the possible severe side effects do concern me."

9 / 10
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0 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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