Rituximab User Reviews & Ratings (Page 3)

• Ach...
• Taken for less than 1 month
• November 16, 2018

Rituximab for Rheumatoid Arthritis "Did not finish first treatment, had scratchy throat reaction. I was there about 4 1/2 hours, getting the medicine for about 50 minutes. I think I could have tolerated it longer, but they quit. What I really don't understand is why this has to be such a massive, expensive procedure. I could feel the achiness dissipating in the 50 minutes. Why isn't there a shorter, simpler method/option? I would be willing to continue if it were given, say once a month, in a smaller dose and simpler, less expensive procedure, probably causing less reaction. Why? Why? Why?"

• 27 ...
• Taken for 10 years or more
• May 2, 2020

For Rheumatoid Arthritis "I have been using Rituxin for the last ten years, getting approximately a year and a half between infusions. Previously, I tried every possible group of medications. Nothing worked well. Rituxin gave me my life back. I am 70 and skiing 2-3 marathons a year."

• Sha...
• Taken for 2 to 5 years
• November 10, 2021

Rituximab for Rheumatoid Arthritis "I have been receiving infusions for a few years and am very pleased with my results. I have 2 infusions every four months, 15 days apart, reduced from originally every six months. The speed that it takes to get into my system required a shorter space of time between sessions. The only side effect I have is not sleeping the night after the infusion. I know it's working as I can feel when I am nearing the end of the medicine. It has slowed the effects like swelling in my hands and feet, my knees hurting, and shoulder pain."

• joc...
• Taken for 2 to 5 years
• August 23, 2024

Rituximab for Rheumatoid Arthritis "I used it very successfully following Mabthera and was in remission for 2 years after my last treatment. I then had a big flare-up and have had the two infusions but still suffering with pain. Hoping the Rituxan will kick in soon. It's been 9 weeks since the first infusion. If it works like before, it's fantastic as it lasts a long time, and I didn't really have any side effects. Just wish it wasn't so expensive as insurance doesn't cover me, so it's a huge expense."

• Ber...
• Taken for less than 1 month
• October 15, 2018

For Immune Thrombocytopenia "Treated for ITP with a high dose of dexamethasone short burst and then 120 mg of prednisone daily for months...platelet counts varied from 9,000 to 60,000, and the side effects of prednisone became unacceptable. Then received rituximab weekly for 4 weeks (4 doses), except for the first initial dose, which caused intense itching (treated with Benadryl and slowing the infusion rate), the treatment was relatively benign. Nineteen months later, my platelets have stabilized at 141,000 (low normal). This treatment is definitely worth a try, with (at least for me) a much better side effect profile than steroids."

• Gin...
• February 6, 2016

For Rheumatoid Arthritis "Had my first infusion yesterday. It had to be stopped just after an hour and a half due to a rash that developed on my face and spread to my chest and back and severe itching. The doctors took the decision to stop the treatment altogether. Waiting to see my rheumatologist next week to look at options. Have had to stop methotrexate, Enbrel, and Humira due to side effects. Not sure what is left! At 4:40 am and I have been up since 2 am with severe itching. The joys of this lovely disease and the side effects of the meds. But can't fault the medical team for their support and efforts."

• Ann...
• Taken for 2 to 5 years
• February 22, 2024

Rituximab for Granulomatosis with Polyangiitis "I’ve been receiving Rituxan infusions for granulomatosis with polyangiitis (GPA) for almost four years. Induction started with one infusion per week for four weeks. Six months later, I was given two more infusions, two weeks apart. I was then switched to one maintenance infusion every six months. Labs showed that I was in remission after infusion #7. Currently, I receive one maintenance infusion every six months. I have had no side effects from Rituxan, and have not had a relapse of the GPA."

• Hea...
• May 19, 2016

For Rheumatoid Arthritis "Yesterday - 5th course Rituximab infusions. 2016, last 18 months ago, I thought I was in remission. Despite a complete removal of processed foods and a very healthy diet and exercise 'plan' (self-motivated), I had a big flare-up. I have refused Methotrexate for 2.5 years, having tried for 3 years. I'm happier and healthier. The first ever infusion was stopped due to an allergic reaction in the throat, mouth, and rash on the face and chest. But Piriton was given, and the infusion continued. Piriton is now given to everyone now (UK Chester), before infusion, and advice to take to combat further reactions: rash, sore throat, etc., for 3 days after. This works. I feel washed out, headache 3-6 days, steroid shakes, lack of sleep, flushes, but no ill effects between courses, 7 months apart."

• dub...
• March 26, 2011

For Rheumatoid Arthritis "I have had 2 Rituximab infusions for rheumatoid arthritis, the last one 2 1/2 months ago. I sailed through the infusions with no problem, but 3 or 4 days later, I had extreme edema and burning pain in both lower legs, muscle pain all over my body, felt like I have the flu, and some loss of coordination. I was on 40 mg Lasix for another problem, and my doctor increased it to 80 mg daily, along with Zaroxyl, extra potassium 4 weeks ago, and for the first time today, my legs are normal size. I'll probably discontinue the extra diuretics when I see my doctor tomorrow."

• She...
• April 19, 2016

For Rheumatoid Arthritis "I am waiting to get final approval for this drug. I spoke to a lady who has been on it for 4 years, and she said that it takes a few days to get over an infusion, but it's just a headache and tiredness. She says this drug has given her life back, so a small price to pay. Can't wait to get this drug!"

• Luk...
• Taken for 2 to 5 years
• December 15, 2016

For Rheumatoid Arthritis "I was diagnosed with juvenile arthritis as well as vasculitis when I was 5. I'm 38 now and still move remarkably well. I've had my ups and downs through the years, but these disease-modifying drugs are miracles. I've been on Rituxan for 4 years now. My infusions do take longer than usual since I do experience a cold sweat trembling reaction if the medicine is stepped up too fast. Actually, I find the pretreatment meds more difficult than the Rituxan. The Benadryl puts me to sleep for most of it, however, the Medrol makes me bounce off the walls later in the evening. Usually, by the next day, all is well. I can live 8 months to a year virtually arthritis-free."

• Sis...
• Taken for 6 months to 1 year
• June 10, 2017

For Rheumatoid Arthritis "This is for my rheumatoid vasculitis. This first dose caused a reaction, but the staff was right on the first indication, adjusted the drip, and we continued. It took around 7 hours. The Benadryl made me fall asleep. The second one, two weeks later, went without incident, about 4 hours. Five months later, I have been able to reduce my prednisone intake without a flare-up of RA, and the nerve pain from the vasculitis has remarkably dwindled from lasting and unbearable to very manageable. It doesn't reverse damage, but my sed rate is around 11 (from 30), and if I didn't have to worry so much about the ghastly cost of this med, at this point I have to say it's been most amazing. There is financial help available, I think."

• RAf...
• April 12, 2015

For Rheumatoid Arthritis "The steroid push with the first dose gave me a whirlwind of energy. I am using it to help CIPD - a dying nerve disease. My body started attacking my nerves and I now have fast-moving, dense neuropathy in my feet, legs, hands, and forearms. Mayo Clinic decided that this would be a good treatment since I suffer from RA as well. I take methotrexate once weekly with the Rituxan. The crash came 3 days later, and I felt the effects of the chemo on my body hard. I threw up a few times, felt like the worst hangover ever for the rest of the week (had infusion Tuesday, now is Sunday). I am still fighting nausea. I really, really liked the steroid energy a lot. Now my joints and bones are screaming narcotics. Sleep is not very good for me yet. It's only been 6 days, though."

• nan...
• Taken for 1 to 6 months
• January 19, 2016

For Rheumatoid Arthritis "I'm still waiting for this drug to really kick in, had infusions September 2015, not yet as well as I was on Enbrel, but had to change due to new rheumo team. Not impressed really-lots of infections, got to the point of wheelchair use in December, previous to Sept never required a stick. Very slowly starting to regain life-possibly am near 40% of the real me. I'm not at work, not driving, am worried for my job. It's been 19 weeks since the treatment, and I want my life back."

• Mic...
• Taken for 5 to 10 years
• April 22, 2020

For Rheumatoid Arthritis "I was 46 when I was diagnosed with RA, and my health plummeted. In 3 years, I was in a wheelchair. I tried all the major RA drugs with little or no effect. When I finally received my first infusion, I was up and walking within 3 days. Rituxan has saved my life. I get an infusion every 6 months and feel like anyone else my age."

• Ram...
• February 3, 2017

For Rheumatoid Arthritis "I suffer from pulmonary fibrosis and acquired hemophilia as well as RA. Rituximab has almost completely knocked out RA and has assisted the other two. I don't take methotrexate, but 10 mg of prednisolone per day. Interestingly, I had a sweating disorder pre-infusions, but the drug seems to help alleviate. I started with four infusions a week apart, which became ineffective after six months (Factor 8 levels dropped and RA flared), and my latest dose was given over two infusions at a different hospital six months ago and hasn't yet become ineffective (I am being primed for further infusions). I had absolutely no problems during or after infusions."

• Lin...
• January 15, 2016

For Rheumatoid Arthritis "I had my first infusion on 12/21/15 and the second on 12/31/16. To date, I have seen no improvement in pain. The only side effect from the first infusion was a severe headache and tiredness for 2-3 days. I have not been so fortunate with the second. I have no energy or appetite and feel terrible. I am shaky and dizzy, and joint pain is horrible. I was on Remicade and Humira for years without complication. Not sure this is worth it or if it is going to work for me. Still hopeful."

• Hel...
• October 13, 2016

For Rheumatoid Arthritis "I had my first rituximab infusion treatment a year ago and think it worked well. But I've felt symptoms coming back for a while now, but after a year, I just had my second treatment. I'm in tomo for my second infusion and hope to God it works because I'm in a bad way, and my pain in my wrist is at the worst I've known them to be! Tiredness never really ever gone for long, but fingers crossed! I feel I should have had it months ago, but what do I know... I'm from Nottingham, England."

• Nee...
• Taken for less than 1 month
• November 16, 2019

Rituximab for Non-Hodgkin's Lymphoma "I had my first treatment two days ago for NHL, and other than flu-like symptoms once or twice a day, I feel good for at least 6 hours, and then I will take Motrin and feel good another 6 hours. I feel great in the morning and go downhill in the afternoon. What's odd is that my hip and leg pain on my left side is going away. I don't know if Rituxan can work that fast, but I feel better already. I have the infusion once a week, so we'll see how I continue to do. But so far, I'm only missing one day a week of work, and that's my infusion day. The next day is a little tough from feeling so tired, but then I feel back to my old self for a few hours."

• Jus...
• November 16, 2017

For Rheumatoid Arthritis "I have been on Rituxan therapy since January of 2009. My first infusion included 8+ hours in that chair with immediate shortness of breath. My doctor and the RN stayed with me as they put me on oxygen immediately. A few minutes later, it was as if it hadn't occurred. Suffice to say, it was a long day. Went back 2 weeks later for my second round and no problems at all. I was troubled with insomnia the 2 days after. The RN asked the doctor to lower the dose of saline in the infusion and increase the dose of Benadryl in the infusion. Worked like a charm! So now, 8 years later, I have been receiving Rituxan therapy approximately twice a year with no problems. My RA has not progressed. Just wondering if it is time for a change or if it's not broken..."

• HrT...
• Taken for 6 months to 1 year
• November 29, 2024

Rituximab "First dose of Truxima in early May 2024, followed by a 2nd dose 2 weeks later for Dermatomyositis. After 10 weeks from my first dose, I started to feel relief. Muscle inflammation pain and stiffness receded, energy level increased, and mood improved. (No side effects) Started to feel symptoms creep back in early November, so 5 months of relief! Looking forward to my 2nd round of Truxima in early December. I am happy with the results after taking a number of drugs over the past 10 years. I am also on IVIG treatment on a monthly basis."

• Eva...
• Taken for 1 to 6 months
• April 12, 2016

For Rheumatoid Arthritis "I have undifferentiated spondyloarthropathy, MCTD, and SLE. I started Rituxan at the end of December 2015 after Enbrel lost efficacy. I am also on MTX and Plaquenil. My rheum explained that Rituxan works in a different manner from the TNF inhibitors, and because of this, it takes longer to work. While I began noticing Enbrel's efficacy within 2 weeks and was in remission by 3 months, with Rituxan, I didn't even notice any difference until about 10 weeks in. I have slowly improved, but I am not in remission. Prior to Rituxan, most of my joints were painful; after 14 weeks, I am down to about 15. My daily pain level has gone from about an 8 to 4 or 5. My rheum said sometimes patients will see a better response after dose #4. I hope for remission. I will redose in 6 months following the RA guidelines."

• Chi...
• Taken for 2 to 5 years
• February 12, 2016

For Granulomatosis with Polyangiitis "I have had Wegener's since April 2008. Medications of prednisone, cyclophosphamide, and methotrexate were successful in slowing down the disease. However, I still had flare-ups two to three times per year, requiring hospitalization and the resumption of heavy doses of prednisone until better, then had to taper back off. In June 2013, I again was back in the hospital, and in September 2013, I started on Rituxan, getting two doses two weeks apart and again six months later. I only take 5 mg of prednisone a day and remain on methotrexate 20 mg once per week. I have eliminated hospital visits and have enjoyed life much more. I am just finishing this month my two dose shots and am now looking to reduce it to one dose every six months and reducing my methotrexate to 15 mg. Side effects: minor."

• Ste...
• November 17, 2015

For Chronic Lymphocytic Leukemia "I was diagnosed with CLL in 2009. My WBC (White Blood Cell Count) when diagnosed was 11k. By 2013, my WBC was 50k. In 2015, my rate of increase jumped, and a CAT scan confirmed that deeper lymph nodes had grown 50% in size, so my oncologist wanted to start chemo right away. I had no other symptoms associated with the CLL other than increasing WBC. In October, I started treatment with a 'cocktail' of Rituximab and Bendamustine. My WBC at the start of treatment was 120k. At the end of the first month (prior to my second chemo session), my blood tests came back with totally normal numbers! My WBC was 7k! It was as if I did not have CLL. My blood was clean! Few side effects (constipation/heartburn) & about a 20% reduction in energy."

• Mam...
• October 5, 2017

For Rheumatoid Arthritis "Have had RA for just under 25 years. Developed rheumatoid vasculitis, and over the past 4 years have been in so much pain, it's like my body completely gave up. Even bedridden for 4 or so months. Finally started the rituxan a little over a year ago. On prednisone and methotrexate as well. I am curious to know if anyone else is taking the same amount as I am? I currently go in every 4 months and get 4 infusions in a row (weekly) each time. I don't sleep for 2-3 days after each infusion, then crash a couple of days. Back pain and achiness for a couple of days. Having memory problems and balance issues. Other than that, it has been a lifesaver, still some pain, but vasculitis has improved. If you can't pay, see if the drug company can assist."