Osimertinib and Mouth Sores: What Users Say

• Cha...
• Taken for 1 to 2 years
• November 17, 2020

For Non Small Cell Lung Cancer "I assume you are reading this because you or someone you know is or possibly will be taking Tagrisso. I have stage 4 non-small cell EGFR EXON 19 lung cancer. I am writing this a year after starting Tagrisso. This medicine is the magic pill. I now understand why my oncologist called it just that. After 3 months, my main mass shrunk by 60%, a number of the smaller lesions are no longer showing in the CT or MRI with contrast. The negative things with this medication are worth the positive things. One negative is how my digestive tract is not happy when I first started the medicine and when I was taken off of it for surgery and went back on it. I also lose weight and started to drink Ensure to help my weight stay above 169. As someone mentioned, I also get mouth sores more frequently than I did prior. And the last thing is adult acne on my face and shoulders."

• App...
• Taken for 6 months to 1 year
• December 22, 2020

For Non Small Cell Lung Cancer "Side effects can be very difficult and repetitive, but I believe I am saving my life. I have experienced almost all of them and am presently suffering from mouth sores for an extended period of time, i.e., several sores weekly, clear for two days, back for another two weeks, etc. I am, of course, very tired constantly but continue my positive, happy attitude of being a recipient of Tagrisso, which allows me to keep my life moving forward and let Tagrisso contend with lung cancer. I would appreciate reading other reviews. Thank you."

• luc...
• Taken for less than 1 month
• July 21, 2020

For Non Small Cell Lung Cancer "I have stage 4 non-small cell lung cancer with an EGFR mutation. I received Tagrisso for 15 days. My persistent cough and pleural effusion disappeared within those 15 days. However, I experienced severe side effects necessitating hospitalization. On my 2nd to 4th day, I had severe left arm pain radiating to the back, neck, and jaw. Then, I developed mouth sores and a high fever up to 103 degrees Fahrenheit. I had generalized weakness and body rashes. My doctor had to stop my treatment after 15 days. It was effective but had serious side effects on me."