Ofatumumab and Dizziness: What Users Say

• Kan...
• Taken for 1 to 2 years
• March 18, 2021

For Multiple Sclerosis "I was included in the clinical trials for this med. I was on it for a little over 2 years. My experience wasn't great, although I didn't develop any new lesions. Despite that, my MS still progressed to me needing a cane to assist with walking most of the time. My immune system was completely affected but I didn't develop common illnesses, instead, I developed shingles 4 times in less than two years, cellulitis on my face and ear, meningitis, and I was hospitalized twice - once for three days and the second for almost two weeks. I was unable to stand up quickly for most of the two years due to dizziness and fainting upon doing so. I suffered from throat issues and loss of voice several times as well."

• Ano...
• Taken for 2 to 5 years
• May 4, 2025

For Multiple Sclerosis "Before I started Kesimpta, I read a lot of the horror stories on here, so I decided to write a positive review to help others who might feel overwhelmed and scared like I initially did. Kesimpta is amazing! It's really given me my life back. I had a nasty relapse where I couldn't walk, couldn't use the bathroom, I had the MS hug, sixth nerve palsy, and facial weakness. I also had vertigo, complete loss of taste, shooting pains down both arms, numbness from my torso to my feet, and several more. The first dose hit me really badly, however, I just slept through it, and since the first dose, I have had 2 MRIs which have been stable. It's so convenient to inject from home, and it really has given me my quality of life back."

• MSw...
• Taken for 1 to 2 years
• September 3, 2025

For Multiple Sclerosis "I love Kesimpta. Was upset to stop due to so many UTIs, but that possibly was from other issues, and since surgery, no UTIs. But I asked to go back on Kesimpta, as my worst relapse was when I was 60. I just turned 63 and feel I need a few more years of Kesimpta to kick it. I prefer not to have it progress and feel with this it is under control. I love the 1x a month frequency. I took the titration doses the first time, and this time pharmacy filled full dose after not being on it a year. I was scared to do it, but doctor said okay. I noticed dizziness and very tight chest pain, but nothing major. I am reminded to avoid those who are sick, as I will have difficulty fighting any illness."

• Gro...
• May 1, 2023

For Multiple Sclerosis "I just finished my initial doses. All were different, the first dose I got a sore throat, itchy without a rash, went to bed, and woke up with the most excruciating muscle and joint pain I've ever experienced. Dose number two hurt more than the first, my throat was sore and I was again itchy all over without a rash, but no body aches. Dose three was only the itchiness, but I just didn't feel good for about a week. I had all my injections on a Sunday. For the first two, on Thursday, I had some minor vertigo and a short-lived temp increase to about 101 F. I rotated my injections on my thighs, however, with each injection, I felt like I received an injection in my left upper arm. Very weird."