Natalizumab and Hair Loss: What Users Say

• Day...
• Taken for 2 to 5 years
• April 13, 2016

For Multiple Sclerosis "I took Tysabri for about 4 1/2 years and had no problem. My biggest complaint was that it made my hair thin and fall out. But, my feelings have completely changed. The reason I originally went off of Tysabri was to try to have a baby. Now that I know what I know, I would have stopped using Tysabri as soon as possible. I am 35 years old and have to have a total hip replacement because of taking Tysabri. A side effect of Tysabri is Avascular necrosis, which killed the top of my femur bone. So, now I have to have a total hip replacement. This is absolutely horrible for me because I am such an active person who loves working out. I will have a hard time going back on any drug after this."

• Day...
• Taken for 2 to 5 years
• April 13, 2016

For Multiple Sclerosis "I took Tysabri for about 4 1/2 years and had no problem. My biggest complaint was that it made my hair thin and fall out. But, my feelings have completely changed. The reason I originally went off of Tysabri was to try to have a baby. Now that I know what I know, I would have stopped using Tysabri as soon as possible. I am 35 years old and have to have a total hip replacement because of taking Tysabri. A side effect of Tysabri is Avascular necrosis, which killed the top of my femur bone. So, now I have to have a total hip replacement. This is absolutely horrible for me because I am such an active person who loves working out. I will have a hard time going back on any drug after this."

• Mpa...
• December 30, 2016

For Multiple Sclerosis "I have to give it 10 out of 10, as it changed my life. After years of injecting other meds and continuing to relapse, I started on Tysabri in 2009. I can honestly say that I cannot work full time without it, as the fatigue is greatly improved while on it. I have come off to get pregnant and then continued back on after two babies. My last MRI showed that some of my lesions actually got smaller, and I have not had any brain atrophy while being on this drug. The only side effect I notice is slightly thinner hair. This is a drug that can have serious implications, and I think the choice to take it must be thought out carefully, weighing all the benefits and risks. But for me, it has saved my life for 7 years."