Mycophenolate mofetil for Organ Transplant, Rejection Prophylaxis User Reviews

• dam...
• Taken for 6 months to 1 year
• June 6, 2020

Mycophenolate mofetil "CellCept is easier on your kidneys than Prograf, so that is a plus. It can increase your risk of cancer, which is scary. But if I had the choice, I would be on CellCept instead of Prednisone. It does cause depression and anxiety for some people, and I am one of them. But almost all of the transplant drugs do. Prednisone seems to be the worst of the bunch, though. Weight gain, blood pressure goes up some on this, insomnia, tiredness is a big one. But you have to take something. I don't know about all of the alternatives to this drug, but if it doesn't work, then ask. I will say my biggest problem with the drug has been that I developed the BK virus, which is dangerous, and I had to come off of CellCept to allow my body to fight the virus. So that is something to watch. Take your pills - it is better than rejection or damage. But always ask for alternatives. Pricey, so go with generic!"

• 3rd...
• Taken for 5 to 10 years
• May 15, 2014

Mycophenolate mofetil "I have had 3 kidney transplants, and I've been on CellCept 2 different times. The last time I was on CellCept for 7 years, it worked well until I developed CellCept colitis. I was extremely sick and found myself in the hospital. The doctors discontinued CellCept, and now I am on Imuran."

• Mom...
• Taken for less than 1 month
• April 14, 2023

Mycophenolate mofetil "CellCept gave me just severe diarrhea that I ended up back in the hospital with severe dehydration and anemia. Was switched to Envarsus XR with Zortress and prednisone. Envarsus was switched to Prograf. A biopsy showed thrombotic microangiopathies (TMA) (very small blood clots), which can be caused by tacrolimus, so I was switched to cyclosporine. Everolimus caused my cholesterol to go very high, so was switched to Imuran. Imuran messed up my blood with an extremely low platelet count. So now I am just on cyclosporine and prednisone, with fingers crossed and prayer."

• Anonymous
• March 29, 2010

Mycophenolate mofetil "I had a liver transplant in Feb '06 and have taken 1000 mg twice a day now for a couple of years. Before, that dosage changed a bit to get the correct dosage. I also take tacrolimus (Prograf 1 mg twice a day). I have had no side effects-expensive, but luckily I have a plan."

• Ano...
• January 27, 2010

Mycophenolate mofetil "I had a liver transplant in 2001 and was put on both CellCept and Prograf. When my creatinine reached 2.1, I was taken off Prograf and put on 2000 mg a day of CellCept. I have had no side effects. The only problem is the cost, I am now on Medicare and will be in the donut hole after 4 months."

• fra...
• January 20, 2010

Mycophenolate mofetil "I had a liver transplantation in 1997 and have been on Sandimmun Neoral for 13 years. In 2009, my doctor decided to switch to CellCept because my creatinine level rose from 1.3 to 1.7 (kidney). I have been on both Neoral and CellCept over the whole summer of 2009. I did not feel well, and finally, in November 2009, I had a hyper blood-sugar shock of 1402, was hospitalized. Now I am slowly recovering with insulin BS 100-200. I switched back to Sandimmun 25-0-50, but my doctor wants to switch again to CellCept. I'm afraid to get hyperglycemia again."

• Bad...
• Taken for less than 1 month
• December 29, 2020

Mycophenolate mofetil "I am having severe diarrhea on CellCept, which has my electrolytes out of whack to the point of having to go to the local ED for fluids and supplements. I'm taking 2g daily in 4 doses. The more I drink, the worse it gets, so I am in a catch-22 situation. I am also on Envarsus and prednisone as anti-rejection meds. I'm also taking Septra, which may be contributing to my problem."

• mis...
• Taken for 1 to 2 years
• July 4, 2021

"I think this is the immunosuppressive drug with the least side effects. Good to reduce prednisolone and tacrolimus. For stomach-related issues, can take psyllium husk. If you are fatigued, try checking CMV infection."

• Ups...
• September 7, 2018

"The insurance company is stating that a drug I have been on for years 'is that it’s not for my heart transplant.' I’m taking mycophenolate acid and they don’t want to pay for it!! Cigna part D is giving us a hard time. We have sent 3 appeals and had three denials."

• Cob...
• Taken for 5 to 10 years
• July 26, 2017

Mycophenolate mofetil "Had heart transplant 8 years ago and have been on CellCept & Prograf. 500 mg CellCept & 1 mg Prograf a day and feeling excellent with no side effects."

• Anonymous
• July 22, 2009

Mycophenolate mofetil "But too expensive. I'm 27 years old with no insurance, and I'm paying close to $1,000 a month."

• Kay...
• October 16, 2009

Mycophenolate mofetil "I have had a heart transplant. This drug has kept me alive for the last 18 months. Thank you. Fortunately, I have suffered no side effects."

• jay...
• November 2, 2009

Mycophenolate mofetil "Had kidney transplant almost 3 years ago, seems to be working great for me."

• Dog...
• Taken for 2 to 5 years
• January 23, 2018

"Increase from 1g to 1.5g twice a day has given me indigestion. Otherwise, OK."

• SRa...
• December 3, 2020

"No problem except diarrhea in the beginning."