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User Reviews for Mycophenolate mofetil to treat Organ Transplant, Rejection Prophylaxis

Also known as: CellCept

Mycophenolate mofetil has an average rating of 7.8 out of 10 from a total of 12 ratings for the treatment of Organ Transplant, Rejection Prophylaxis. 67% of reviewers reported a positive effect, while 8% reported a negative effect.

Mycophenolate mofetil Rating Summary

7.8/10 average rating

12 ratings from 14 user reviews.

Compare all 25 medications used in the treatment of Organ Transplant, Rejection Prophylaxis.

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Reviews for Mycophenolate mofetil

3rd times the charm · Taken for 5 to 10 years May 15, 2014

CellCept (mycophenolate mofetil): “I have had 3 Kidney Transplants and I've been on Cellcept 2 different times. The last time I was on Cellcept, for 7 years it worked well until I developed Cellcept Colitis. I was extremely sick and found myself in the hospital. The doctors discontinued Cellcept and now I am on Imuran.”

6 / 10
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damandalyn · Taken for 6 months to 1 year June 6, 2020

CellCept (mycophenolate mofetil): “Cellcept is easier on your kidneys than Prograf so that is a plus. It can increase your risk of cancer which is scary. But if I had the choice I would be on Cellcept instead of Prednisone. It does cause depression and anxiety for some people and I am one of them. But almost all of the transplant drugs do. Prednisone seems to be the worst of the bunch though. Weight gain, blood pressure goes up some on this, insomnia, tiredness is a big one. But you have to take something. I don't know about all of the alternatives to this drug, but if it doesn't work then ask. I will say my biggest problem with the drug has been that I developed the BK virus which is dangerous and I had to come off of Cellcept to allow body to fight the virus. So that is something to watch. Take your pills - it is better than rejection or damage. But always ask for alternatives. Pricey so go with generic!”

7 / 10
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Anonymous March 29, 2010

CellCept (mycophenolate mofetil): “I had a liver transplant Feb '06 and have taken 1000mg twice a day now for a couple years. Before that dosage changed a bit to get correct dosage. I also take tacrolimus (prograf 1mg twice a day) I have had no side effects--expensive but luckily I have a plan.”

8 / 10
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Anonymous January 27, 2010

CellCept (mycophenolate mofetil): “I had a liver transplant in 2001 and was put on both CellCept and Prograf. When my creatine reached 2.1 I was taken off Prograf and put on 2000 mg a day of CellCept. I have had no side effects. I only problem is the cost, I am now on Medicare and will be in the donut hole after 4 months.”

9 / 10
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franz_Sadimm_Cellcept January 20, 2010

CellCept (mycophenolate mofetil): “I had a liver transplantation in 1997, and been on Sadimmun Neoral for 13 years. In 2009 my Doctor decided to switch to Cellcept because my creatinine level rose from 1,3 to 1,7 (Kidney). I have been on both Neoral and Cellcept over the whole Summer of 2009. I did not feel well and finally in Nov. 2009 I had a Hyper Blood-sugar shock of 1402, Was hospitalized, now I am slowly recovering with Insulin BS 100-200. Ii switched back to Sandimmun 25-0-50 but my Doctor wants to switch again to Cellcept. I'm afraid to get a Hyperglycemia again.”

6 / 10
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Upset September 7, 2018

“The Insurance company is stating that a drug I have been on for years "is that it’s not for my Heart Transplant". I’m taking Mycophenolate acid and they don’t want to pay for it !! Cigna part D is giving us a hard time. We have sent 3 appeals and had three denials. ”

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mishu · Taken for 1 to 2 years July 4, 2021

“I think this is the immunosuppressive drug with least side effects. Good to reduce prednisolone and tacrolimus. For stomach related issues can take psyllium husk. If you are fatigue try checking cmv infection.”

9 / 10
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Bad reaction · Taken for less than 1 month December 29, 2020

CellCept (mycophenolate mofetil): “I am having severe diarrhea on Cellcept which has my electrolytes out of whack to the point of having to go to the local ED for fluids and supplements. I'm taking 2g daily in 4 doses. The more I drink, the worse it gets so I am in a catch-22 situation. I am also on Envarsus and prednisone as anti-rejection meds. I'm also taking Septra which may be contributing to my problem.”

3 / 10
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Cobus · Taken for 5 to 10 years July 26, 2017

CellCept (mycophenolate mofetil): “Had heart transplant 8 years ago an have been on cellcept & prograf . 500mg cellcept & 1mg program a day and feeling excellent with no side effects . ”

10 / 10
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Anonymous July 22, 2009

CellCept (mycophenolate mofetil): “But too expensive. I'm 27 years old with no insurance and I'm paying close to $1000 a month.”

8 / 10
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Kay Geigh October 16, 2009

CellCept (mycophenolate mofetil): “I have had a heart transplant. This drug has kept me alive for the last 18 months. Thank you. Fortunately I have suffered no side effects.”

10 / 10
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jaymo November 2, 2009

CellCept (mycophenolate mofetil): “Had kidney transplant almost 3 years ago, seems to be working great for me.”

9 / 10
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Dogsbody · Taken for 2 to 5 years January 23, 2018

“Increase from 1g to 1.5g twice a day has given me indegistion. Otherwise OK”

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SR December 3, 2020

“No problem except diarrhea on the beginning”

9 / 10
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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.