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Macitentan User Reviews & Ratings

Brand names: Opsumit

Macitentan has an average rating of 7.5 out of 10 from a total of 11 reviews on Drugs.com. 73% of reviewers reported a positive experience, while 27% reported a negative experience.

Condition Avg. Rating Reviews Compare
Pulmonary Arterial Hypertension
7.5
 11 reviews for Pulmonary Arterial Hypertension 19 medications

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Reviews for Macitentan

  • Nin...
  • Taken for 2 to 5 years
  • December 31, 2019

Macitentan for Pulmonary Arterial Hypertension "I have had so much success with using Opsumit/Tadalafil combo for pulmonary hypertension, I cannot imagine my life without them. I am so scared of being laid off my job and no longer having health insurance! I don't know what I will do if that happens, but Lord help me - the script works very well!"

10 / 10
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15 Report
  • don...
  • April 25, 2021

Macitentan for Pulmonary Arterial Hypertension "I tried this med for a week, and it damn nearly finished me off. My O2 is usually 90-95% without use of a home concentrator or the POC, this stuff knocked me on my butt, knocking it way down to just under 60%. I'm back on O2 again 24/7. I'm not kidding. You all can have it, more power to you. My life of living for the now is far more important than grasping everything that might possibly give hope. I love my life, but I'm not gonna sit around and wait for someone to die so that I can have a lung or heart transplant or just be downright miserable from the meds."

1 / 10
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10 Report
  • Car...
  • Taken for 5 to 10 years
  • January 17, 2020

Macitentan for Pulmonary Arterial Hypertension "Have been on Opsumit and Adcirca for 5 years. Best combo ever! My PH was and still is mild! Opsumit has kept me stable and praying it will stay this way for many years. Fantastic med and no side effects from it. I’m so grateful to be on this amazing med."

10 / 10
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10 Report
  • Ann...
  • Taken for 1 to 2 years
  • September 9, 2023

Macitentan for Pulmonary Arterial Hypertension "Opsumit and tadalafil saved my life. However, Opsumit is extremely hard to get, even with a prescription. Insurance keeps delaying, denying or requiring prior authorizations (monthly). I'm assuming the constant battle is because of its cost. I still highly recommend this drug if your Pulmonary Hypertension doctor recommends it."

10 / 10
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4 Report
  • Tex...
  • Taken for less than 1 month
  • January 20, 2023

Macitentan for Pulmonary Arterial Hypertension "I took this medication for about a week and started to experience fever-like symptoms. I had bad headaches, my nose was running constantly or I was congested, and I was shivering despite not feeling cold. The medication is also expensive and costs me $11,000 a month."

1 / 10
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3 Report

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  • Nic...
  • Taken for 2 to 5 years
  • September 11, 2023

Macitentan for Pulmonary Arterial Hypertension "Opsumit has been a staple in my PAH meds since the start. No side effects that I could separate from the disease as a whole to relate to this medication. Heart failure no more and everything is working well. When I first got to the hospital, I could not walk 2 feet."

10 / 10
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2 Report
  • Mad...
  • Taken for less than 1 month
  • January 19, 2022

For Pulmonary Arterial Hypertension "My sister died after taking this for only 6 weeks. She was stable on Sildanafil, and her new doctor put her on this. The problem was she had liver issues, and DO NOT TAKE IT WITH LIVER ISSUES! She died after 6 weeks!"

1 / 10
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2 Report
  • jaz...
  • Taken for 1 to 6 months
  • November 3, 2015

Macitentan for Pulmonary Arterial Hypertension "Was able to get around without shortness of breath and start exercising again. Waiting for the insurance company to approve it. Very good med."

10 / 10
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31 Report
  • Dan...
  • December 9, 2016

Macitentan for Pulmonary Arterial Hypertension "My PAH was 130 mmHg, and after 5 months of using Macitentan, my PAH is 70 mmHg. I'm feeling much better."

10 / 10
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16 Report
  • EEE...
  • Taken for 2 to 5 years
  • January 2, 2021

Macitentan for Pulmonary Arterial Hypertension "WOW I can walk from the driveway to the front door again without being out of breath. I TOTALLY recommend this medicine!"

10 / 10
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7 Report
  • Lis...
  • Taken for 2 to 5 years
  • October 28, 2019

Macitentan for Pulmonary Arterial Hypertension "I'm very satisfied with Opsumit, I'm able to walk more than before taking Opsumit 2 years ago."

10 / 10
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7 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.