Immune globulin intravenous for Immune Thrombocytopenia User Reviews

• Anonymous
• Taken for 1 to 2 years
• December 17, 2021

"I have Susac's or unknown vasculitis. During the first year receiving IVIG Gammagard infusions monthly for 3 days, my only side effects were headaches a day or 2 following, with mildly elevated BP for a week. My BP was excellent otherwise, around 110/75. After 1 year, I requested to reduce my schedule from 3 to 2 days, receiving the same amount of infusion with only an extra half hour each day, which meant receiving the infusion at a faster rate than over 3 days. After this change, my BP began wildly fluctuating, skyrocketing to 160/100 and higher sometimes. Four months later, I am still struggling to stabilize my BP and had to finally take medication, with BP still not under control. It still skyrockets during infusions and afterward throughout the month. The doctors and nurses won't acknowledge any long-lasting connection between IVIG and BP, though I've read studies on it. IVIG otherwise seems to be effective in preventing sudden hearing losses I was experiencing."