Immune globulin intravenous User Reviews & Ratings

• Anonymous
• Taken for 2 to 5 years
• March 9, 2025

Immune globulin intravenous "It has greatly improved the quality of my life by reducing my skin sores and muscle deterioration. It also improves my level of energy. I have infusions for two consecutive days every four weeks in a hospital clinic. I drink lots of water before, during, and after the infusions, and rarely have headaches. I am injected with fluids first. Then the infusion starts very slowly at 19 ml/hour (for 30 mins), increasing slowly every 30 mins until a maximum of 125 ml/hour. One session takes between 4-5 hours."

• 104...
• Taken for less than 1 month
• May 15, 2023

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "Three days after completing the first three-day treatment, seem to have very modest improvement in balance. Have had very mild headache helped by drinking plenty of water and have experienced some fatigue. So far, benefits outweigh the side effects."

• Ano...
• Taken for 5 to 10 years
• May 7, 2025

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I get 800 ml 10% IVIG intravenously every 2 weeks for about 6 or 7 years. Supervision by Cornell Weil in NYC. I do not feel any difference before or after the infusion. Yearly EMG tests indicate the progression has stopped at about 50% motor/sensory loss. I have thankfully minimal pain with Prednisone 20 mg daily and 25 mg Methotrexate weekly."

• Ano...
• Taken for 1 to 2 years
• November 14, 2020

For Polymyositis/Dermatomyositis "I got the IVIG infusions for 5 hours a day, 4 or 5 days a week, every 3 months. I did 2 rounds, and I felt so energetic the week after treatment was over. It also helped rid me of the muscle pain and a lot of the weakness. It was exhausting having to get through the week of infusions, but when it was over, I felt really good. Unfortunately, my rheumatologist retired and moved, so I’m waiting to see if my new doctor is going to have me back on the treatment. I highly recommend trying this if you haven’t already!"

• San...
• Taken for 1 to 6 months
• March 23, 2022

Immune globulin intravenous "Octagam 10 for Myasthenia Gravis, #1 I had a headache and chills the next day. #2-5 were just headache. I have more strength. I'm starting a one 90g once a month. Will come back after a couple of month’s."

• Anonymous
• February 2, 2012

For Myasthenia Gravis "I have had Gammagard for 5 months and suffered flu-like symptoms for at least 2 days after infusions. I had Octagam yesterday and today and have no symptoms except I feel very tired. It seemed to be less irritating to the veins also. The fluid amount was doubled, so it put less stress on my kidneys."

• LBN...
• Taken for 2 to 5 years
• October 28, 2023

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Privigen has been the only IVIG drug I can infuse at the recommended rates. Instead of an eight-hour 40 gram day, I'm down to 4.5 hours and 35 grams. Privigen has less fillers and preservatives which has made it a better infusion for me. Only one headache in two years and I was dehydrated as evidenced by my bloodwork results. And I knew I had not had enough water the day before."

• KW2...
• Taken for 6 months to 1 year
• December 7, 2017

Immune globulin intravenous for Primary Immunodeficiency Syndrome "First dose, I had a hemolytic reaction with severe back pain, headache, hypertension. BP was 200/120. Changed to Octogam for the next infusion and slowed the rate down to a max of 50 cc/hr. Have tolerated well. Have had a lot less infections since starting IVIG."

• Anonymous
• Taken for 1 to 2 years
• December 17, 2021

Immune globulin intravenous for Immune Thrombocytopenia "I have Susac's or unknown vasculitis. During the first year receiving IVIG Gammagard infusions monthly for 3 days, my only side effects were headaches a day or 2 following, with mildly elevated BP for a week. My BP was excellent otherwise, around 110/75. After 1 year, I requested to reduce my schedule from 3 to 2 days, receiving the same amount of infusion with only an extra half hour each day, which meant receiving the infusion at a faster rate than over 3 days. After this change, my BP began wildly fluctuating, skyrocketing to 160/100 and higher sometimes. Four months later, I am still struggling to stabilize my BP and had to finally take medication, with BP still not under control. It still skyrockets during infusions and afterward throughout the month. The doctors and nurses won't acknowledge any long-lasting connection between IVIG and BP, though I've read studies on it. IVIG otherwise seems to be effective in preventing sudden hearing losses I was experiencing."

• INV...
• Taken for 6 months to 1 year
• April 28, 2018

For Myasthenia Gravis "IVIG literally saved my life... and enabled me to transition off considerably more problematic drugs such as corticosteroids and immunosuppressives (which, in all fairness, under certain circumstances, controlled symptoms completely-but frequently presented both acute severely lifestyle-limiting side effects and long-term high-probability severe side effects and sometimes for short terms completely failed to control any symptoms acceptably). For maintenance purposes, however, the dosages currently specified as reduced 'maintenance' do not work for me yet to provide complete replacement for the otherwise less noxious and reasonably effective drug, Pyridostigmine. I know other patients for which it does, however, and am inclined to recommend it as the standard treatment of choice, which of course it is not because it is an expensive human distilled substance rather than a chemically formulated item, thus affecting both availability and distribution."

• Ajk...
• Taken for less than 1 month
• February 15, 2014

For Anti NMDA Receptor Encephalitis "I was diagnosed with ANMDARE early 2013. I had a reasonably quick diagnosis and was started on a course of Octagam and prednisone and had a very fast recovery. I can't tell doses, etc., because I don't remember much from that time. I'm currently laying in the hospital being treated for a relapse on a dosage of 30g per day over 5 days and 1g per day prednisone for 3 days. I'm in day 2 and already feel much better."

• Ano...
• Taken for 5 to 10 years
• May 7, 2025

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I get 800 ml 10% IVIg intravenously every 2 weeks for about 6 or 7 years. Supervision by Cornell Weil in NYC. I do not feel any difference before or after infusion. Yearly EMG tests indicate the progression has stopped at about 50% motor/sensory loss. I have thankfully minimal pain with Prednisone 20 mg daily and 25 mg Methotrexate weekly."

• Ano...
• Taken for 1 to 2 years
• May 12, 2025

Immune globulin intravenous "It does seem to raise blood levels showing immunity after my session. I do experience many of the common side effects, though. Sleeplessness, coughing, runny nose, diarrhea, etc. Ivermectin works better at raising immunity and keeping it there."

• Car...
• Taken for 1 to 6 months
• May 18, 2025

Immune globulin intravenous "I have had 3 infusions, and each time I get a migraine-type headache during the evening of the infusion day. The following day, I have deep muscle and joint pain and just can’t get comfortable. After the second infusion and increasing since my 3rd, 2 days ago, I have eczema-type scaly skin on my hands and chest and splitting skin on my hands. There has been no change yet in my chronic sinusitis infections, which I have had for over 2 years. I have felt stronger generally and have more energy for the first 2-3 weeks, then there’s a drop-off, and I have to rest. I will contact the hospital tomorrow for advice."

• Car...
• Taken for 1 to 6 months
• June 15, 2025

Immune globulin intravenous "After each infusion, I develop joint and muscle pain throughout the body, especially in the back and neck. It’s very difficult to get comfortable. Sudden onset of tiredness, I sleep for 1-2 hours when this hits. After the 2nd, I started to feel stronger, with more stamina. After my 3rd, I developed eczema-type split and scaly skin on my hands and chest, with the skin of my palms peeling off and debilitating back pain for the whole 4 weeks. Treated skin with Piriton, steroid cream, and neutral body wash. After the 4th, I have diarrhea. I have 7 infusions approved. The last mid-cycle blood test showed an improvement in my IgG, but the others are still negligible."

• Art...
• Taken for 6 months to 1 year
• March 13, 2025

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "It helps with my dizziness, balance problems, and tremors. I just wish the doctor knew how to prescribe it. He prescribes it for five days every three months. Panzyga starts wearing off at two weeks. The medication itself only lasts 25 days. I was on IVIG from age 10-18. It worked really well. I took it every two weeks for two days. Side effects: headache and nausea last about 8-9 days. I am a really hard stick, and it’s hard to keep an IV in me."

• Dor...
• February 11, 2025

Immune globulin intravenous "Constantly tired, sleep till lunchtime, boils on rear, headaches, weight loss, easy to infuse, no issues."

• Cat...
• Taken for less than 1 month
• October 24, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Feel great. Need fewer infusions. Based on research, seems like a good immunoglobulin option."

• Imm...
• Taken for less than 1 month
• December 2, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Previous drug gave me pressure in my head and chest. They lowered the rate to 50. Still having it, and my heart rate was high. Switched to here, much better experience. Let's keep it up, woot woot!"

• Ori...
• Taken for 1 to 6 months
• August 3, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "The only medication out of 6 IVIG I tried that gave me anaphylactic shock."

• D1D...
• Taken for 6 months to 1 year
• January 30, 2022

For Dermatomyositis "Game changer. Nothing compares. (I am on PANZYGA)."

• Im ...
• Taken for 1 to 6 months
• April 8, 2014

Immune globulin intravenous for Primary Immunodeficiency Syndrome "While I have only been on this medication, I feel so much better. I didn't become ill at all through the winter."

• Anonymous
• December 23, 2010

Immune globulin intravenous for Primary Immunodeficiency Syndrome "After having 20 g of Octagam, I felt a little dizzy and a minor headache."

• Anonymous
• Taken for 1 to 2 years
• July 17, 2020

Immune globulin intravenous "Occasionally experienced a mild headache, but mostly a very tolerable infusion."

• Nic...
• Taken for less than 1 month
• March 3, 2020

Immune globulin intravenous "At 10 gms, only a mild headache the day after."