Immune globulin intravenous for Myasthenia Gravis User Reviews

Brand names: Privigen, Octagam, Panzyga, Gammagard S/D, Gammaplex, Asceniv, Bivigam, Alyglo, Flebogamma, Yimmugo, Carimune NF …show all brand names

Rating: 5.3

Immune globulin intravenous has an average rating of 5.3 out of 10 from a total of 3 reviews for the off-label treatment of myasthenia gravis. 33% of reviewers reported a positive experience, while 33% reported a negative experience.

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1		33%

Anonymous
February 2, 2012

"I have had Gammagard for 5 months and suffered flu-like symptoms for at least 2 days after infusions. I had Octagam yesterday and today and have no symptoms except I feel very tired. It seemed to be less irritating to the veins also. The fluid amount was doubled, so it put less stress on my kidneys."

7 / 10

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13 Report

INV...
Taken for 6 months to 1 year
April 28, 2018

"IVIG literally saved my life... and enabled me to transition off considerably more problematic drugs such as corticosteroids and immunosuppressives (which, in all fairness, under certain circumstances, controlled symptoms completely-but frequently presented both acute severely lifestyle-limiting side effects and long-term high-probability severe side effects and sometimes for short terms completely failed to control any symptoms acceptably). For maintenance purposes, however, the dosages currently specified as reduced 'maintenance' do not work for me yet to provide complete replacement for the otherwise less noxious and reasonably effective drug, Pyridostigmine. I know other patients for which it does, however, and am inclined to recommend it as the standard treatment of choice, which of course it is not because it is an expensive human distilled substance rather than a chemically formulated item, thus affecting both availability and distribution."

8 / 10

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2 Report

Fly...
Taken for less than 1 month
March 22, 2019

"73 y.o. male. Affected 2 years ago with Myasthenia Gravis, full-blown within a few weeks. On Celcept & Mestinon. Approx. a year in, I went through a course of treatments. No effect."

1 / 10

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3 Report

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