Immune globulin intravenous User Reviews & Ratings

Brand names: Privigen, Octagam, Panzyga, Gammagard S/D, Gammaplex, Asceniv, Bivigam, Alyglo, Flebogamma, Yimmugo, Carimune NF …show all brand names

Immune globulin intravenous has an average rating of 7.8 out of 10 from a total of 23 reviews on Drugs.com. 70% of reviewers reported a positive experience, while 9% reported a negative experience.

Condition	Avg. Rating	Reviews	Compare
Primary Immunodeficiency Syndrome	7.7	7 reviews for Primary Immunodeficiency Syndrome	32 medications
Chronic Inflammatory Demyelinating Polyradiculoneuropathy	7.3	3 reviews for Chronic Inflammatory Demyelinating Polyradiculoneuropathy	11 medications
Myasthenia Gravis Off-label	5.3	3 reviews for Myasthenia Gravis	14 medications
Dermatomyositis	10.0	2 reviews for Dermatomyositis	16 medications
Anti NMDA Receptor Encephalitis Off-label	10.0	1 reviews for Anti NMDA Receptor Encephalitis	1 medications
Immune Thrombocytopenia	9.0	1 reviews for Immune Thrombocytopenia	76 medications

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Reviews for Immune globulin intravenous

Anonymous
Taken for 2 to 5 years
March 9, 2025

Immune globulin intravenous "It has greatly improved the quality of my life by reducing my skin sores and muscle deterioration. It also improves my level of energy. I have infusions for two consecutive days every four weeks in a hospital clinic. I drink lots of water before, during, and after the infusions, and rarely have headaches. I am injected with fluids first. Then the infusion starts very slowly at 19 ml/hour (for 30 mins), increasing slowly every 30 mins until a maximum of 125 ml/hour. One session takes between 4-5 hours."

9 / 10

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1 Report

104...
Taken for less than 1 month
May 15, 2023

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "Three days after completing the first three-day treatment, seem to have very modest improvement in balance. Have had very mild headache helped by drinking plenty of water and have experienced some fatigue. So far, benefits outweigh the side effects."

7 / 10

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6 Report

Ano...
Taken for 1 to 2 years
November 14, 2020

For Polymyositis/Dermatomyositis "I got the IVIG infusions for 5 hours a day, 4 or 5 days a week, every 3 months. I did 2 rounds, and I felt so energetic the week after treatment was over. It also helped rid me of the muscle pain and a lot of the weakness. It was exhausting having to get through the week of infusions, but when it was over, I felt really good. Unfortunately, my rheumatologist retired and moved, so I’m waiting to see if my new doctor is going to have me back on the treatment. I highly recommend trying this if you haven’t already!"

10 / 10

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9 Report

San...
Taken for 1 to 6 months
March 23, 2022

Immune globulin intravenous "Octagam 10 for Myasthenia Gravis, #1 I had a headache and chills the next day. #2-5 were just headache. I have more strength. I'm starting a one 90g once a month. Will come back after a couple of month’s."

8 / 10

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4 Report

Anonymous
February 2, 2012

For Myasthenia Gravis "I have had Gammagard for 5 months and suffered flu-like symptoms for at least 2 days after infusions. I had Octagam yesterday and today and have no symptoms except I feel very tired. It seemed to be less irritating to the veins also. The fluid amount was doubled, so it put less stress on my kidneys."

7 / 10

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13 Report

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KW2...
Taken for 6 months to 1 year
December 7, 2017

Immune globulin intravenous for Primary Immunodeficiency Syndrome "First dose, I had a hemolytic reaction with severe back pain, headache, hypertension. BP was 200/120. Changed to Octogam for the next infusion and slowed the rate down to a max of 50 cc/hr. Have tolerated well. Have had a lot less infections since starting IVIG."

5 / 10

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6 Report

Anonymous
Taken for 1 to 2 years
December 17, 2021

Immune globulin intravenous for Immune Thrombocytopenia "I have Susac's or unknown vasculitis. During the first year receiving IVIG Gammagard infusions monthly for 3 days, my only side effects were headaches a day or 2 following, with mildly elevated BP for a week. My BP was excellent otherwise, around 110/75. After 1 year, I requested to reduce my schedule from 3 to 2 days, receiving the same amount of infusion with only an extra half hour each day, which meant receiving the infusion at a faster rate than over 3 days. After this change, my BP began wildly fluctuating, skyrocketing to 160/100 and higher sometimes. Four months later, I am still struggling to stabilize my BP and had to finally take medication, with BP still not under control. It still skyrockets during infusions and afterward throughout the month. The doctors and nurses won't acknowledge any long-lasting connection between IVIG and BP, though I've read studies on it. IVIG otherwise seems to be effective in preventing sudden hearing losses I was experiencing."

9 / 10

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2 Report

LBN...
Taken for 2 to 5 years
October 28, 2023

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Privigen has been the only IVIG drug I can infuse at the recommended rates. Instead of an eight-hour 40 gram day, I'm down to 4.5 hours and 35 grams. Privigen has less fillers and preservatives which has made it a better infusion for me. Only one headache in two years and I was dehydrated as evidenced by my bloodwork results. And I knew I had not had enough water the day before."

10 / 10

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2 Report

INV...
Taken for 6 months to 1 year
April 28, 2018

For Myasthenia Gravis "IVIG literally saved my life... and enabled me to transition off considerably more problematic drugs such as corticosteroids and immunosuppressives (which, in all fairness, under certain circumstances, controlled symptoms completely-but frequently presented both acute severely lifestyle-limiting side effects and long-term high-probability severe side effects and sometimes for short terms completely failed to control any symptoms acceptably). For maintenance purposes, however, the dosages currently specified as reduced 'maintenance' do not work for me yet to provide complete replacement for the otherwise less noxious and reasonably effective drug, Pyridostigmine. I know other patients for which it does, however, and am inclined to recommend it as the standard treatment of choice, which of course it is not because it is an expensive human distilled substance rather than a chemically formulated item, thus affecting both availability and distribution."

8 / 10

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2 Report

Ajk...
Taken for less than 1 month
February 15, 2014

For Anti NMDA Receptor Encephalitis "I was diagnosed with ANMDARE early 2013. I had a reasonably quick diagnosis and was started on a course of Octagam and prednisone and had a very fast recovery. I can't tell doses, etc., because I don't remember much from that time. I'm currently laying in the hospital being treated for a relapse on a dosage of 30g per day over 5 days and 1g per day prednisone for 3 days. I'm in day 2 and already feel much better."

10 / 10

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2 Report

Art...
Taken for 6 months to 1 year
March 13, 2025

Immune globulin intravenous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "It helps with my dizziness, balance problems, and tremors. I just wish the doctor knew how to prescribe it. He prescribes it for five days every three months. Panzyga starts wearing off at two weeks. The medication itself only lasts 25 days. I was on IVIG from age 10-18. It worked really well. I took it every two weeks for two days. Side effects: headache and nausea last about 8-9 days. I am a really hard stick, and it’s hard to keep an IV in me."

9 / 10

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0 Report

Dor...
February 11, 2025

Immune globulin intravenous "Constantly tired, sleep till lunchtime, boils on rear, headaches, weight loss, easy to infuse, no issues."

5 / 10

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1 Report

Cat...
Taken for less than 1 month
October 24, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Feel great. Need fewer infusions. Based on research, seems like a good immunoglobulin option."

10 / 10

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10 Report

D1D...
Taken for 6 months to 1 year
January 30, 2022

For Dermatomyositis "Game changer. Nothing compares. (I am on PANZYGA)."

10 / 10

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6 Report

Imm...
Taken for less than 1 month
December 2, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "Previous drug gave me pressure in my head and chest. They lowered the rate to 50. Still having it, and my heart rate was high. Switched to here, much better experience. Let's keep it up, woot woot!"

10 / 10

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8 Report

Ori...
Taken for 1 to 6 months
August 3, 2019

Immune globulin intravenous for Primary Immunodeficiency Syndrome "The only medication out of 6 IVIG I tried that gave me anaphylactic shock."

1 / 10

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11 Report

Anonymous
December 23, 2010

Immune globulin intravenous for Primary Immunodeficiency Syndrome "After having 20 g of Octagam, I felt a little dizzy and a minor headache."

8 / 10

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21 Report

Im ...
Taken for 1 to 6 months
April 8, 2014

Immune globulin intravenous for Primary Immunodeficiency Syndrome "While I have only been on this medication, I feel so much better. I didn't become ill at all through the winter."

10 / 10

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15 Report

Anonymous
Taken for 1 to 2 years
July 17, 2020

Immune globulin intravenous "Occasionally experienced a mild headache, but mostly a very tolerable infusion."

8 / 10

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5 Report

Nic...
Taken for less than 1 month
March 3, 2020

Immune globulin intravenous "At 10 gms, only a mild headache the day after."

9 / 10

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4 Report

Fly...
Taken for less than 1 month
March 22, 2019

For Myasthenia Gravis "73 y.o. male. Affected 2 years ago with Myasthenia Gravis, full-blown within a few weeks. On Celcept & Mestinon. Approx. a year in, I went through a course of treatments. No effect."

1 / 10

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3 Report

Dis...
Taken for 1 to 6 months
October 14, 2023

For Dermatomyositis "I started Gamagard on July 12, 2023. It made a huge difference in my condition. I have had 6 hours of infusions two days a month, back-to-back days."

10 / 10

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1 Report

Ali...
Taken for 2 to 5 years
September 2, 2022

For Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I’m receiving 45g every 3 weeks, but the Panzega only lasts a short time well before the next treatment."

6 / 10

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1 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.