Idelalisib User Reviews & Ratings

• Pee...
• December 25, 2018

For Follicular Lymphoma "After 6-1/2 years (2/2011-9/2017) on Rituxan-based therapy, I became refractory to it. I took 6 months off from all treatment, then started on Zydelig (3/2018). After 2-1/2 months, I experienced increasingly painful stomach and intestinal cramps, then diarrhea, which landed me in the local V.A. hospital (6/30/2018-7/15/2018) with 'ballistic diarrhea' and experienced several atrial fibrillation events. A month after discharge, I was diagnosed (8/2018) with Type 2 diabetes. In November 2018, I was diagnosed with myelodysplastic syndrome after a bone marrow biopsy and am now monitored with monthly blood draws and physical exams. [My follicular lymphoma is presumptive evidence of Agent Orange exposure in 1968 in the Mekong Delta, and that is why I pay -0- for my treatments, Rxs, and medications.]"

• Mat...
• Taken for 5 to 10 years
• October 2, 2022

For Follicular Lymphoma "When I had a relapse after other treatments, I was able to join the research study for this drug. It does work for my follicular small cell lymphoma. I have been showing no signs of disease for 7+ years, however, the side effects have not been fun. Intestinal cramping, diarrhea symptoms, skin rashes and itching, tiredness, paper-thin skin with constant bruising and bleeding. There is also a chance of developing autoimmune system issues and intestine perforations. For that reason and the fact that maybe I don't currently need meds, I'm stopping - but it did work. Took 2x 100 mg a day. To offset diarrhea, I had Budesonide 1x a day and Imodium 2x."