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User Reviews for Exemestane

Also known as: Aromasin

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Exemestane.

Condition Avg. Ratings Reviews Compare
Breast Cancer
4.7
   
43 reviews 59 medications
Summary of Exemestane reviews 4.7 43 reviews

Reviews for Exemestane

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For Breast Cancer: "Hot flushes and sweating are the worst aspects, especially as I have thyroid issues. Otherwise not as bad as I thought and what really helped with joint pain is taking Omega-3 fish/krill oil, calcium, Vitamin D and Biotin for hair thinning. Biotin stopped the thinning completely. If I forget to take it for a day or two the hairs start shedding. I was told quitting caffeine might help with the sweating, but that's not happening so I guess I'll have to deal with it:) Exercising regularly also helped a lot with the joints."

   
8.0

Chowder shouter September 19, 2017

3 users found this comment helpful.
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Aromasin (exemestane) for Breast Cancer: "Breast cancer I --- began & continued Aromasin for 4 years plus-shrunk tumor to be non-detectable on mammogram or high resolution scan!! Aromosin brand no longer covered by my insurance--mandating use of generic instead. Can only pray that the generic will work as well as brand and with the zero side effects (except for hair thinning) that brand Aromasin provided! A true MIRACLE drug!!"

   
10

Anonymous (taken for 2 to 5 years) August 22, 2017

3 users found this comment helpful.
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For Breast Cancer: "After trying Arrimidex and Femara I tried Aromasin. I had mild hot flashes, shooting pains in my legs in bed at night, my hands went numbs several times at night, stiff in morning and night, and very achy. I had read of someone who took it every other day for a few months , so I did that for 11 weeks. Now I am taking it daily and have mild hot flashes at night, some fatigue, hands are achy in the morning. My quality of life is much better. My oncologist was not aware of every other day, but it certainly has helped me be able to take this drug. I have never written on a blog but if my experience helps others I'm glad. I was at the point of taking no drugs for my estrogen positive breast cancer. 11/15/16. JW"

jfweiner (taken for 1 to 6 months) August 13, 2017

4 users found this comment helpful.
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For Breast Cancer: "I have been on this for 2 years now. I have recently noticed that I have been very tired. In addition, last week I noticed that my hair was falling out. My hair is so thin and weak and has been shedding. I tried to search if anyone else had hair loss with this medication. I am so not going back on this."

Anonymous (taken for 2 to 5 years) July 18, 2017

3 users found this comment helpful.
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For Breast Cancer: "Terrible Side Effects"

   
1.0

Lindylpb (taken for 1 to 6 months) May 30, 2017

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For Breast Cancer: "I've been on exemestane for 3 months now. After the first couple of weeks the joints in my feet hurt so much I couldn't walk. I now take vitamins that help out immensely- fish oil, calcium, vitamin D and joint mix in the morning and mega red at night when the pain flares up again. I get hot flashes but my oncologist put me on a serotonin booster to help with them and it also helps with my mood. I wake up at night, throughout the night. Ibuprofen P.M. helps. Lately I've been very fatigued through the day. Other than coffee in the morning I don't know how to fix that. So far it's not too bad once I got my vitamin regimen figured out."

   
5.0

M Such May 15, 2017

6 users found this comment helpful.
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For Breast Cancer: "I thought I was going crazy. Taking aromosin for 11 mos. I fall asleep in the middle of the day, even nod off when I'm with friends. Terrible sleeplessness, hand joint pain in middle of night, thinning hair (after losing hair after chemo), The fatigue makes me lack motivation, no interest in anything, poor eating habits, can't exercise, don't want to do anything. This is worse than Arimidex!"

   
1.0

Birdie13 April 26, 2017

9 users found this comment helpful.
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For Breast Cancer: "My OC switched me from letrozole to exemestane because I was having some bone loss. I was a little more tired and achey on the Letrozole so assumed the same from exemesterane but oh my gosh what a difference. I gained 6Lbs in a month, horrible headaches, pins and needles in hands, back pain, fatigue, waking up in the middle of the night, hot flashes, ring in my ears and blurry vision. I'm switching back to Lettozole at least the s/e are tolerable. I guess everyone is different if it works for others awesome but not for me. These reviews are so needed in our for-profit health-care system. Doctors won't tell you or don't know about all the side effects and who even knows about long term ones....."

   
1.0

LilyDuncan (taken for less than 1 month) April 20, 2017

11 users found this comment helpful.
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For Breast Cancer: "I have been taking 25 mg of Exemesane for 22 days now. After the first week I started having a cough with clear phlegm everyday. I recently had bad headaches that lasted 3 days. I had to lay in bed with lights off. I also have been having diarrhea and nausea with some vomiting the past week. Two nights ago I had very uncomfortable heartburn, I had to sleep sitting up. I have also had increased bone/joint pain and fatigue. I hope the medicine is working because I really don't like feeling ill on a daily basis. I will discuss these side effects with my doctor next week."

   
6.0

Fightbreastcancer (taken for less than 1 month) February 24, 2017

12 users found this comment helpful.
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For Breast Cancer: "This drug was the worst by far. Diagnosed almost 9 years ago in 2008. On tamoxifen for two years-had a hysterectomy-on Arimidex for five years. I thought after seven years I would not have to take anything. Dr said new research and I should take a drug for 10 years. Didn't want to go back on Arimidex because of the horrible side effects. On tamoxifen again for one year and developed a vetreous detachment in my eye-after research on my part could've been linked to the tamoxifen. I went off that and started taking Exemestane. On for three weeks and had terrible backache, nausea, acid reflux, cracking bones, and horrible depression. I won't take it again for only a 2% increase in survival"

   
1.0

Bcsurvivor January 26, 2017

16 users found this comment helpful.
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For Breast Cancer: "This is the second inhibitor that I have tried. Started off great, but now after 3 months am wondering if it is all worth it. The tiredness, insomnia and swollen hands and feet are bad enough. The worst part is the confusion. I go to appointments at the wrong times, can't remember some of the grandchildrens names! Along with the hot flushes and nausea, not fun. Then the doctor tells me that I need it for 10 years and just work through the side effects!"

   
3.0

marianne rodders December 6, 2016

20 users found this comment helpful.
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For Breast Cancer: "Have been on this medication about 4 months I was wondering why I couldn't sleep and have gained and excessive amount of weight. I read the reviews which helped me considerably. I wake up with headaches in the morning. I take Excedrin it helps, my skin breaks out weekly. My right arm is numb and feels like no circulation. I believe I am going to take my self off this medication. I can't afford to keep buying clothes. Oh by the way my sugar has gone up. I've never had this problem before. I believe this medication is the common denominator for most if not all my issues."

   
1.0

Mz. V November 21, 2016

15 users found this comment helpful.
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For Breast Cancer: "The most significant side effect is the the non stop sweating. Not just a glow! LOL Having reade about side affects I do experience some of the others but not significantly. I was off it for awhile and now back on and am experiencinge loss of pigment in my genital area and lower stomach. Have not seen anything about this on the internet/ Has anyone else experienced this/"

Brevegal (taken for 6 months to 1 year) October 12, 2016

3 users found this comment helpful.
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For Breast Cancer: "Exemestane is the 3rd anti estrogen medication I have taken. I was not able to take Tamoxifen due to a bad interaction with another medicationI take. The first 2other aromatase inhibitors I took gave me severe side effects. Exemestane has been the best so far, but it does give me insomnia and then fatigue, and headaches. My main problem is the expense! Although it is generic it is much more costly than the other medications I was on and I can't understand why!"

   
7.0

Joanie B (taken for 2 to 5 years) August 26, 2016

7 users found this comment helpful.
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For Breast Cancer: "This drug is perhaps saving my life, but who knows - and at what cost? Right now I seriously question the value of treatment that has such violent side effects. I'm experiencing: bone pain, extreme hot flushes /cold shivers, chronic constipation, vaginal dryness and discomfort, cognitive impairment, inability to concentrate, insomnia, significant weight gain (18bs in 8 weeks), rapid aging, facial hair growth, irritability, depression (big surprise there). It really angers me to see the glib way doctors document their research on this drug, claiming it is 'well tolerated'. I'm sure there are exceptions but in my personal experience so far, every woman I have met who's taking it complains of similar symptoms."

   
1.0

Shikasta August 18, 2016

57 users found this comment helpful.
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For Breast Cancer: "I started taking exemestane after trying Tamoxifen and Femara. Unfortunately, these medicines have been hard on me. I do not have quality of life. Constantly tired plus the joint pain is unbearable. Hands are swollen, trigger finger and cists in the wrist. I have also gained a lot of weight and developed bad acne."

   
1.0

Shary Girl June 7, 2016

39 users found this comment helpful.
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For Breast Cancer: "I was put on Femara after my radiation and had terrible debilitating side effects. My bones and joints were in constant pain, the headaches and hot flashes were frequent. My oncologist took me off and put me on Aromasin. What a difference! I occasionally get ringing in my ears and an upset stomach but thank goodness nothing like the Fenara."

   
9.0

Lizzie K (taken for 1 to 6 months) May 31, 2016

11 users found this comment helpful.
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For Breast Cancer: "After 2 years I finally realized why my elbow joints were in such pain. I was also waking up frequently throughout the night, but then would fall asleep at 6 am, and not want to get out of bed. By 10 or 11 am, I would force myself to get up! And I couldn't even think about exercising or taking my walks. My onc. took me off for a month to see how I feel, and after 3 weeks, the difference is remarkable. I'm sleeping a full 8 hours, my joints stopped aching, and I'm often getting out of bed early, which I haven't done in 2 years. Now I realize that on this drug, I wasn't just tired, I was depressed. Most days I felt like crying (in spite of having a fantastic happy life) and didn't want to get out of bed."

   
1.0

Deligrrrl (taken for 2 to 5 years) May 29, 2016

42 users found this comment helpful.
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For Breast Cancer: "This medication was not good for me. I had a lot of severe joint pain and I was sad all of the time. I cried at the drop of a hat and this is not my normal personality at all. I always felt as though I just wanted to curl up in a ball and stay under the covers. I lasted 2.5 years. All of my joints hurt. So, now I am trying letrozole. So far, it seems more of the same...sigh."

   
2.0

april485 March 21, 2016

24 users found this comment helpful.
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Aromasin (exemestane) for Breast Cancer: "Have taken three different drugs of the same nature and purpose. This has the mildest side effects. Nausea, sweats, insomnia, headache, joint pain, increased appetite, lethargy, dizziness are some of the side effects I am experiencing."

   
1.0

Anonymous (taken for 1 to 6 months) March 5, 2016

30 users found this comment helpful.
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For Breast Cancer: "I took for 60 days and had horrible joint and bone pain. At times, I could not make a fist, snap my fingers, or get out of bed. I was tired all the time. My face broke out with acne and seb.dermatitis. I stopped for a week and already feel so much better (more energy, much less joint pain). I am meeting with the Onc. in a couple weeks to discuss a new drug... hopefully without the awful side effects."

   
1.0

Anonymous (taken for 1 to 6 months) January 28, 2016

30 users found this comment helpful.
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Aromasin (exemestane) for Breast Cancer: "i have been on aromasin for about 70 days just had a short holiday came back hardly able to walk joints were aching from first taking it but thought this might be because I'm not getting any younger but now I wonder also my sleep patterns have altered I wake quite early and am a lot more tired also at times I seem quite breathless although I'm asthmatic it has always been well controlled will see my doctor to see what he suggests this was my last resort for drugs as most of the others I have tried with side effects."

   
1.0

Golden oldie (taken for 1 to 6 months) August 21, 2015

37 users found this comment helpful.
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For Breast Cancer: "Very active and fit- 37 yrs old and have been on Aromasin for almost 3mo. I was on Tamoxifen for 5 years previously. It was a cake walk compared to Aromasin. I haven't slept through the night a single night since starting A. My hands are swollen and weak and they ache all the time. I have joint pain all over and am terribly stuff when I sit in the same position for long. I'm tired and have a hard time working out (I used to live for this) My vision is blurry sometimes. This blows but I'm hoping the SEs will improve soon."

   
5.0

Stefg (taken for 1 to 6 months) July 20, 2015

41 users found this comment helpful.
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For Breast Cancer: "Kidney problems? Carpel Tunnel Numbness? Insomnia? (Hot flashes are a given, I take gabapentin and venafaxalene which helps.) I just started Exemastine after taking Tamoxifen for three years. I started the new drug about a month and a half ago. I had similar side effects when I started Tamaxifen but never had Kidney Pain. I am in a lot of pain which is covering about a 6 inch radius on my side. I am not 100% sure if it is pulled muscles since it came on overnight, but I don't recall any injury. Has anyone had this issue?"

Sherrydampier July 5, 2015

29 users found this comment helpful.
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For Breast Cancer: "I have been on Aromasin (Exemestane) 25 mg for three years. I tried the other two Inhibitors but had severe bone pain so this one is the best of the bunch. I do have some joint pain, low stamina, no libido, waking throughout the night, swollen fingers, toes and abdomen, severe hot flashes that feel like I'm being burned at the stake and the worse one is the weight gain. I've gained 50 pounds in the last two years and still have two years to go. My doctor put me on Clonidin every 6 hours because my skin was allergic to the 24 hour patch. It helps ease the hot flashes for about 4 hours. He doesn't have any advice for my inability to lose weight and the fact that I keep gaining even though I exercise and eat the same as before. Ugghhh!"

   
5.0

Mic9497 April 16, 2015

44 users found this comment helpful.
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