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User Reviews for Erlotinib to treat Non-Small Cell Lung Cancer

Also known as: Tarceva

Erlotinib has an average rating of 8.8 out of 10 from a total of 33 ratings for the treatment of Non-Small Cell Lung Cancer. 88% of those users who reviewed Erlotinib reported a positive effect, while 6% reported a negative effect.

Erlotinib Rating Summary

8.8/10 average rating

33 ratings from 36 user reviews.

Compare all 72 medications used in the treatment of Non-Small Cell Lung Cancer.

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Reviews for Erlotinib

Barb · Taken for 1 to 6 months June 12, 2020

Tarceva (erlotinib): “Was diagnosed with stage 4 lung cancer in Feb 2019, just days before my 68th birthday. Tumors in both lungs with Mets to brain consisting of 9 smallish tumours. I was given 1 session of radiation for the brain tumors and started on a course of 150 Tarceva. Various side effects - intermittent diarrhoea, dry skin, hair thinning and hair growth very slow, nail bed infection around 2 toes, eye irritation. None of these side effects have been debilitating and I can certainly put up with them after my first series of scans since beginning the medication 3 months ago have shown a significant regression of all tumours, with one tumour in my brain disappearing completely.”

9 / 10
VenKa · Taken for 1 to 6 months July 17, 2018

Tarceva (erlotinib): “My husband (non-smoker) 66 years old, diagnosed with NSCLC Adenocarcinoma stage four with Mets to bones liver and brain His life expectancy was estimated to max 5 months. First was treated with a round of 8 radiations and had Gamma Knife for his brain lesion. After tests found EGFR mutation gene and he was prescribed Tarceva. His oncologist mentioned he was the perfect patient for this prescription, as he looked strong and healthy even at stage four. He convinced him that Tarceva will extend his life for at least a couple of years so he decided to try his luck. He started Tarceva monotherapy and continued for five months. Unfortunately, he lived 3 months more than his original life expectancy. Total 8 months after he was diagnosed. His last 6 months were a real nightmare. He was under severe pain 24/7 even with morphine painkillers. Skin rash was unbearable! The quality of his life during his last months was below zero. In my husband's case, Tarceva was a disaster!”

1 / 10
Natural heal August 26, 2017

Tarceva (erlotinib): “I am 59, non smoker, confirmed NSCLC. Found EGFR mutation gene, prescribed Tarceva. Skin rash and fatigue started within a week, and continue to worsen. Have to stop after a month. I feel the drug is making me sick and causes a lot of pain, and lower quality of life.”

1 / 10
Parham radmanesh April 30, 2014

Tarceva (erlotinib): “I have cancer after years of smoking. Chemotherapy did not work for me. Then when almost no hope I got erlotinib (Tarceva). Immediately after my scans it shows that cancer is going into remission. My doctors were very encouraging and slowly I started feeling better. I would feel like I have more energy. I go on walks every day and after 1 year and six months there are no traces of cancer. This made me feel so lucky to live. I started living a very healthy life after my diagnosis. I eat and drink healthy and after 1 year of Tarceva I begin jogging and living a normal life. I am very grateful that God has given me another chance. It is 8 years now that I am now cancer free. ”

10 / 10
Anonymous February 2, 2012

Tarceva (erlotinib): “I have taken Tarceva for over 6 years! Yes, I have a few side effects but nothing major or that I can't deal with. I am stage 4 with a small tumor and other cancer throughout my two lungs. I am most fortunate and blessed to be alive and leading a very normal life at the age of 74. My friends call me a miracle!”

10 / 10
Anonymous February 6, 2009

Tarceva (erlotinib): “Mom was diagnosed with lung cancer in 2003 and went through treatment. In 2004 developed metastatic bone cancer in her back which was non treatable by chemo or radiation. Her doctor put her on Tarceva in 2005 and did a PET scan base line. We repeated the PET scan in Jan 2009 and her cancer has not progressed AT ALL! There are even a couple spots in her back that showed cancer in 2005 that did not appear in her 2009 PET scan. Mom has had no side effects from this medication. The doctors in 2005 thought Mom would only live 6 months, I am extreamly pleased to have her for 4 years and still counting. ”

10 / 10
Anonymous June 23, 2010

Tarceva (erlotinib): “In September of 2009 I was diagnosed with Adeno Carcinoma that originated in the lung and had spread to my spine and 9 lesions in my brain. The mass in my lung was 4.8 cm by 3.1 cm. My initial outlook was quite grim, however, after one round or radiation and 30 days of Tarceva, the cancer in the lung had shrunk 30%. In April of 2010 the cancer had shrunk 99% and the lesions in my brain were down to 1. I have been able to return to work full-time with my only limitations being to avoid sun contact with my skin as much as possible. Since I am a police officer, I have a power test I take yearly, which includes a 1 1/2 mile run, which I was able to complete with 29 seconds to spare. The medication is GREAT, even with the rash!”

9 / 10
FDC9991 · Taken for 1 to 6 months February 16, 2017

Tarceva (erlotinib): “My wife was diagnosed with stage 4 lung cancer in July, 2016. She has the EGFR gene. She had two tumors in her right lung, tumors in her liver, one adrenal gland, brain and bones. She was in severe pain. Since her brain was affected, it was decided she should have 10 days of brain radiation. The radiation did nothing for the pain. In mid-August, 2016 she started taking 150 mg of Tarceva, once daily. Within a few days, the pain subsided. After about a week, it was gone. By November the tumors had shrunk in all affected areas by at least 80%. By February, 2017 the tumors in her liver, brain, bones and adrenal gland were gone. She now has two tiny tumors in her lung. Still taking it. No big side effects. We are very thankful!”

10 / 10
hnawaz · Taken for 6 months to 1 year June 7, 2013

Tarceva (erlotinib): “My mother was diagnosed with lung Cancer May 2012. Due to her cancer she got a disability in her left leg she had one dose of radiation and since November she has been on the Tarceva tablet, since then she has been doing really well. Her reports have shown that the cancer has reduced and apart from rash she doesn't get any other side effects. Hope all you cancer suffers get well and God give you the power to fight it.”

10 / 10
Shanky January 18, 2012

Tarceva (erlotinib): “My mother was diagnosed with stage IV non-small cell lung cancer in Mar 2011. Although she tested negative for the EGFR gene mutation, her oncologist started her on the Tarceva this past November. Two months later (yesterday, 1/17/12), we received her latest CT scan results. My mom's primary lung tumor has shrunk 80-90% and her lymph nodes have also markedly decreased in size! It is truly a miracle! The oncologist thinks my mom had a false negative on the EGFR to get these fantastic results. My mother never got the rash, but did have some diarrhea at first. The hardest part is avoiding dairy while trying to maintain her weight (Tarceva can cause some weight loss). The pharmacy that sends my mom the Tarceva has been so helpful to her also.”

10 / 10
BrenMT · Taken for 1 to 6 months June 14, 2014

Tarceva (erlotinib): “My boyfriend has Stage IV Adenocarcinoma mets to lymph nodes and chest bones. Within 2 months of starting Tarceva (started with 150 mg, reduced to 100 mg) his scans showed 90% improvement! It is incredible. The only reason I do not give it a 10 rating is that one of the common side-effects is a very bad rash. After 3 months, the rash has not subsided. It looks like a cross between measles, poison ivy and bad acne. It itches & burns too. We have tried all kinds of treatments, OTC and prescription, and nothing seems to touch it.”

9 / 10
Anonymous November 1, 2015

Tarceva (erlotinib): “My mom, non smoker, age 54. Stage4 NCLC, Diagnosed Nov 2014. This weeks (Oct 20, 2015) CT scan showed NO active cancer on her lungs. Praise Jesus! Face rash was really bad, took meds for that. Changed diet to no sugar, no meat- mostly Raw, tons of juicing, veggie smoothies, vitamins. Going back to work. 150mg dose taken every day.”

10 / 10
Anonymous October 13, 2011

Tarceva (erlotinib): “My 63 year old mom was diagnosed with the EGFR gene mutation, stage iv lung cancer 4 months ago. The cancer was also in her brain , lung and bone. Since Tarceva started she has done extremely well. Her recent scan showed a 70% decrease of tumor size on the lung, the spot on the liver is gone and the ones on her brain are slowly getting smaller, even with a direct hit of full brain radiation. She has had some side effects such as rash, which she was very annoyed with but went away, diarrhea which she still has and recently stomach pain. Hoping it subsides.”

9 / 10
still fighting July 8, 2016

Tarceva (erlotinib): “Stage 4 lung cancer that had got into my bones from my shoulders to my hips and spine and liver was found 5/6/2015. After 6 rounds of radiation on my spine to defer some of the pain and 2 months in the hospital I started taking Tarceva as the only option to chemo or dying within 5-6 months. Here I am 14 months later getting ready to start a new pill because of the Tarceva has showed signs of not working as well. The cancer has showed signs of regenerating in the lung and liver again. The bones are staying about the same. Side affects in the beginning were very bad rash on my face and not quite as bad on my torso and the runs. All treated with antibiotics and other meds as per doctors orders. After a month face and body began to clear.”

7 / 10
ldoman April 18, 2011

Tarceva (erlotinib): “In March 11, 2011 I was diagnosed with stage 4 lung cancer. My oncologist prescribed Tarceva one a day 150 mg. I had the normal side effects; diarrhea and rash. Both were controlled, the rash was treated with antibiotics and the diarrhea just went away by itself. I understand this pill is a maintenance therapy pill. It seems to work well on me. Tomorrow, April 18 is my appointment, had an X-ray yesterday. I still have to know the outcome, but I am already feeling well. I had toracentesis before my diagnosis due to pleural effusion. Reading the posts here in this site gives me positive hope that Tarceva works well for patient's with NSCLC.”

9 / 10
Anonymous August 23, 2011

Tarceva (erlotinib): “This is a follow up after my diagnosis of stage 4 NSCLC last March. My X-ray after one month of taking Tarceva was good. I went back and have a CT scan in June and my tumor shrunk. I was responding well to Tarceva pill.”

10 / 10
Anonymous January 17, 2013

Tarceva (erlotinib): “My mother was dignoised with stage 4lung cancer that spread to her kidney. She was put on Carbo plation/Taxol. That didn't help at all. They took her off that and put her on Tarceva and that worked wonders. The kidney disappeared and also shrunk the lung mass. 3months later it started to grow in her lung. So she was put on Alimta for 3 rounds and that didn't work at all and her cough got worse. They still kept her on Tarceva since that seems to be the only thing that has worked. Now she's on Gemzar that has helped her cough a little/breathing. There's plans the doc said for a clinical trail that is for Tarceva patients that the drug has helped that's suppose to be a step up from Tarceva. So we are waiting and praying that gets approved soon”

Daughter of cancer patient · Taken for 1 to 6 months April 2, 2014

Tarceva (erlotinib): “My 83 year old mother has been on Tarceva since early December 2013. She had a chest CT scan in late February and it revealed only decreases in the size of her tumor and effected lymph nodes. There were no new developments and still no matastasis to her left lung. Prior to Tarceva she had two rounds of chemo and had less positive effects. She has a lot of itchy, dry skin with some burning/pain. We have managed to get a foot-hold on the dry skin but the itching/burning is becoming a concern. We will try a dermatologist to see if they can recommend something more effective than topical creams and lotions since she says that the burning/pain is more subcutaneous. Don't want her to have to stop taking Tarceva it seems to be working!”

Mon Thu · Taken for 6 months to 1 year March 17, 2015

Tarceva (erlotinib): “My mom was diagnosed with stage IV NSCLC in June 2014. He couldn't move her left side very well and like a stroke because her cancer was spread to brain, she got radiation treatment (10 sessions), then she could walk herself. Her oncologist prescribed Tarceva 150 mg. She is still taking Tarceva until today, almost 9 months, she has the common side effects, rashes, loss appetite, so that she lose weight a lot. But her tumor size is decreased a lot. I'm very worried her, because she is coughing on these days when she drink water or mid of conversation. But she improved a lot her condition. I hope she get well soon like a normal healthy life. Thanks for Tarceva.”

9 / 10
Catker · Taken for 2 to 5 years June 10, 2017

Tarceva (erlotinib): “My husband, never smoker, diagnosed May, 2014, with Stage IV cancer in both lungs, was found to have a mutation and started Tarceva immediately. Still going strong after 3 years! Able to do all activities he did before. We feel extremely fortunate.”

10 / 10
CyndyH · Taken for 6 months to 1 year February 5, 2016

Tarceva (erlotinib): “My husband (75) non-smoker was diagnosed with Stage IV NSLC in December, 2014 with Mets to the bones. Fluid around the lungs had to be drained every 3 days. Chemotherapy did not help as the cancer continued to spread rapidly. Radiation done on his spine in early May, 2015 to help wth the pain from the cancer in his spine. This was a disaster due to burns on his esophagus. New mutation testing in May showed that Tarceva may help. June 5th my husband began Tarceva. It has been such a gift. We asked for time for him finish his life well. (He had not retired from banking yet.) His last scan (September, 2015) showed that the cancer in the lungs had slowed with no new lesions. Bone lesions increasing at a slow rate.”

9 / 10
Daddybob 123 October 1, 2015

Tarceva (erlotinib): “I was diagnosed with stage 4 nsclc , in Oct. 2014 it had metastasized into my right humerous, after radiation and chemo the cancer went into remission, so I was put on Tarceva 150 it's been typical side effects, face rash ,diarrhea, tired all the time,, but I have had 3 pet scans at 3 months apart all negative. I am a 52 year old man, non smoker”

10 / 10
Anonymous March 9, 2009

Tarceva (erlotinib): “My mother started taking Tarceva after being diagnosed with stage 4 lung cancer. So far she is doing okay - very chilled and developed a rash on her face which they say is not uncommon. Took her off of it for a few days to clear up the rash and hopefully she can continue. Her cancer travelled to her brain so we had a few more set backs but they tell us Tarceva has been known to help the brain in some cases just praying for the best.”

9 / 10
Gsy · Taken for 6 months to 1 year August 13, 2017

Tarceva (erlotinib): “My dad was given Tarceva in 2008 after having radiation treatment and I guess he was part of a clinical trial. It shrank his lung cancer mass and his current x rays show that his lungs are clear (He's 93).”

10 / 10
BassamAlharbi January 4, 2010

Tarceva (erlotinib): “As I said in my previous writing, I'll write about the status of my mother-in-law after the first visit to the doctor after start using Tarceva. Now it's 1 month since my mother-in-law started using Tarceva, she improved a lot. Now she can walk with no help from others while she was using wheelchair all the time before. The doctor when he saw her was very happy to see her walking. The side effect is mostly is blisters in the skin, the doctor said it's a good sign, he said when the you have a blisters in the skin this means the drug is performing well. Thank you and I'll write more after she do the scan in 2 weeks from now.”

Scots lass · Taken for 6 months to 1 year September 14, 2015

Tarceva (erlotinib): “Our 88 year mother, a non smoker, was diagnosed in November 2014 after having been breathless for 3 months. Tests showed Tarceva should be prescribed. She had a chest drain in place for 4 months while her 'magic pill' started working. Her side effects were a nasty red itchy rash on her face, broken skin on her finger tips, hair and on going weight loss. Numerous body scans, MRI and bone scans have shown no cancer anywhere else, just a vast reduction in size of the original tumor within the lining of her left lung.”

10 / 10
mura January 29, 2016

Tarceva (erlotinib): “My mother was diagnosed in 2007 and started Tarceva treatment in 2008. At 150 mg dose, she had a lot of side affects. At 100 mg she is doing excellent with no sign of growth. She was a never smoker and had 4 months of Chemo and radiation before her surgery. It seems as if that course of treatment in women responds well to Tarceva.”

9 / 10
Scott Michael December 18, 2016

Tarceva (erlotinib): “My Mom was diagnosed with Stage IV Non-Small Cell, Adenocarcinoma with EGFR Mutation, on December 26, 2013. She had a 8x5cm RUL mass and a 6x7cm L Adrenal mass. At the time of staging, her life expectancy was estimated to be around 2-4 months. She began Tarceva monotherapy within 2 weeks. Her next CT showed 25% tumor shrinkage. Her 6 month CT showed no new growth and 75% tumor shrinkage and necrosis of the RUL mass. The next two CT's were stable. Unfortunately, as the oncologist had warned us, the cancer no longer responded to Tarceva. She was started on Gilotrif and, over the next 4 months, it had further mets to her ribs and liver. She died April 30, 2015. Tarceva gave me 14 precious months with my Mother. Tarceva was a miracle.”

10 / 10

This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

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