Daratumumab User Reviews & Ratings

• Andy
• Taken for 6 months to 1 year
• November 16, 2019

Darzalex (daratumumab) for Multiple Myeloma "I was diagnosed with MM Sept 04, had BMT Sept 05. Burned through all the Proteasome Inhibitors by the summer of 2016. We started Darzalex 6 days after it was approved by FDA, treated for about 9 months. My last dose was January 2017, and I've been in full remission ever since. All counts normal, M Spike minimal. This protocol is a miracle for me. I hope it can be for you too. God bless."

• JerryDV
• Taken for 1 to 2 years
• April 13, 2021

Darzalex (daratumumab) for Multiple Myeloma "Diagnosed with MM eight years ago. On IV Darzalex for almost two years and it's the best treatment I've had. My hemoglobin is 13 and it never was higher than 11 on Velcade. I've had no ill effects. Revlimed gave me a DVT in right thigh and doctor put me on Xarelto. Xarelto caused me to have bleeders and hemoglobin crashed into the 7 to 8 area. After off Xarelto for two weeks hemoglobin back in 12 to 13 area."

• Dontm...
• Taken for 1 to 2 years
• January 25, 2019

For Multiple Myeloma "I am writing this because the only other rating was very negative and it could influence others with multiple myeloma without hearing another experience. I have been on Darzalex for 1-1/2 yrs and it still has my myeloma at trace amount . My cancer was raging when I started. It is a miracle for me. After the first few months the infusion is once a month and no other weekly drugs. If your Dr. puts you in it , be positive. Be patient. The infusion takes longer at first and weekly is a bit hard but worked for me and now once a month is a gift!"

• Stevie
• Taken for 1 to 6 months
• July 19, 2019

For Multiple Myeloma "We are all different. After being treated with various drugs including Cytoxin, Revlimed, and Velcade the winner for me is daratumumab. After 3 weeks of weekly IV my blood ratios were normal. I had very minimal side effects. I gained back 5 pounds. I have gone through the initial every week IV which includes Velcade and Dexi. I am now on the every third week treatment and will eventually get to once a month."

• Edmund
• Taken for 1 to 6 months
• July 30, 2019

For Multiple Myeloma "After nearly 6 months of Rev/Dex, sleeplessness, blood clot in knees, neuropathy, I began Daratumamab once a week, every two weeks and now once a month. I have my life back. Not sure what next but it has been great."

• strong
• Taken for 6 months to 1 year
• June 24, 2018

For Multiple Myeloma "Worthless. This drug does nothing. I assume the drug company sells to hospitals. We will see how long this stays here. It simply does zero. Don't let the doc sell you on this for this hospital. It is all just for the big bucks.."

• Douglas
• Taken for 6 months to 1 year
• June 17, 2023

For Multiple Myeloma "I think it's a life-saver in my case. I had a relapse four years ago while on another type of chemotherapy, and it was questionable whether I would make it through. I have no side effects to report while on daratumumab, and my consultant is happy with my progress."

• Jack-...
• Taken for 6 months to 1 year
• June 6, 2023

For Multiple Myeloma "Good, except side effects are greater than explained: fluid retention days after infusion are greater; nausea is greater; fatigue is greater. I usually sleep 6-10 hours straight after infusion (even now with monthly injections). I have fever and aches (back especially) after infusion, despite pre-meds. It keeps my M-Spike low and my disease progression slow. This is my fourth chemo/CD-38 drug used. I now have to undergo IG-IV infusions as my immune system is shot. I'm still alive, but the side effects are starting to take a toll on me. The prices are ridiculous! People cannot believe injections via a turkey baster syringe into the abdomen. It is not an exaggeration. Cancer is a weird disease."

• Muriel
• Taken for 6 months to 1 year
• August 12, 2023

For Multiple Myeloma "I believe it is working, but with no input from the doctor, I cannot actually say for certain if it is working. I find that I am having it subcutaneously after having it intravenously, which I find much better because it is much quicker administration. I don't know why I was put on this medication, because I was having chemotherapy, but it is much better because it is much simpler. I don't appear to have any real side effects, so as far as I am concerned, I am quite happy with Daratumumab. I have 1800 milligrams every four weeks."

• Kiwi
• July 9, 2023

For Multiple Myeloma "I've been taking Daratumumab for over 18 months, expecting to take it going forward. I've experienced no side effects at all. The MM responded well, I achieved a negative MRD, verified by bone marrow biopsy after 12 months."

• Bano
• Taken for less than 1 month
• April 25, 2019

Darzalex (daratumumab) for Multiple Myeloma "3 days after the first infusion of Darzalex I was hospitalized for Aseptic Meningitis. Why is this adverse side effect not mentioned in patient education literature ?"

• Mary
• Taken for less than 1 month
• October 22, 2022

For Multiple Myeloma "Started once a week in October . Had flu like symptoms severe back pain. Getting shooting pain all over. Hope this helps control Multiple Myeloma. Will need to wait and see."

• William...
• Taken for 1 to 6 months
• December 1, 2023

Darzalex (daratumumab) for Multiple Myeloma "I’m getting my 9 th infusion next week. Biggest problem so is fatigue and once a week night sweats"

• pam
• November 14, 2023

For Multiple Myeloma "Has worked very well for me. I have taken it for over 4 years and have been in complete remission for that time. I still feel very well. I have no side effects. It is quite amazing."

• pam
• November 14, 2023

For Multiple Myeloma "Has worked very well for me. Taken it for over 4 years. In complete remission for that time, still very well. Have no side effects. Quite amazing."