Carbidopa / levodopa and Confusion: What Users Say

• Dot...
• July 18, 2013

Carbidopa / levodopa for Parkinson's Disease "I wanted to share an update on my mom's status with the hope this information helps others. My mom's been on the Sinemet now for five months. She's still taking 3 tablets a day (25/100) -- one in the morning upon rising; one early afternoon and one in the evening. She's had no side effects that we are aware of, and up until the last three weeks has been really doing well. Now she's starting to have increased fatigue and some confusion -- not terrible, but noticeable. I'm talking to her neurologist in two weeks to see if she needs a small increase in her dose. He said her current dose (1 pill three times a day) is low, and there is room to increase gradually. Mobility is still excellent and tremors are barely there."

• Dav...
• Taken for 1 to 6 months
• August 4, 2015

Carbidopa / levodopa for Parkinson's Disease "Been taking Rytary for 5 months. First, was on 3 pills 3 times a day and did really well. The last 2 months, it has been 3 pills 4 times a day. I have been feeling agitated, nervous, seeing things that are not there, and thinking my home is the place I used to work. I am afraid of hurting my wife and have terrible night dreams. I feel I have nowhere to turn for help. I only see a PA when I go to the doctor, and she just gives me more medicine, some of which has very serious side effects, and has recommended DBS. These symptoms are a daily occurrence, and I hope it is not the drug."

• Hor...
• Taken for 1 to 6 months
• March 1, 2023

For Parkinson's Disease "My husband was on carbidopa/levodopa for about 3 months. Last month, he experienced anger, depression, and much confusion. This has set him back. He was taken off this medication, and I am unsure if he will get back to where he was before starting this medication—terrible experience."