Amivantamab for Non Small Cell Lung Cancer User Reviews

• fms...
• Taken for 6 months to 1 year
• July 9, 2023

"I've had quite a good result so far with initial shrinking, then stabilizing, of the NSCLC. I've had one reduction in dose since starting 10 months ago. The side effects are at times difficult to cope with, including a severe infected facial rash, painful paronychia, and edema. The meds I have been given for these conditions have little effect, including many courses of antibiotics, steroid creams, etc. I think if the side effects were better controlled, it would be easier to deal with the illness itself."

• tim...
• Taken for 1 to 6 months
• April 6, 2024

"I have had all of the side effects since starting Rybrevant on March 24. In fact, they tried Keytruda for my first course of treatment, and after 3 treatments, a CT scan was taken, and it was not working. Hence, the reason for starting Rybrevant. It'll kick your butt! Like I said, I've had all the side effects. The skin issues are the worst, and the edema of my right foot. BUT, after 2 treatments then a CT scan, my tumor in my lung has shrunk to less than half its size. So, I will continue the treatments and deal with the side effects for now. We'll see, after the next scan, if it's still working. Hang in there."

• Bub...
• Taken for 2 to 5 years
• November 3, 2024

"I've had many of the side effects listed, but none of them serious. I have been on this med for over two years. Side effects began with mouth sores, making it hard to eat. That went away after a few treatments. I feel like a teenager with acne as pimples on my face were next. I have had problems with the skin around my toenails growing into the nail. I have had four toenails removed, and that helped tremendously. The worst problem I have had is no energy, tiredness, and lightheadedness. But I have been told that my cancer has been very slow-growing and the Rybrevant has been helping that. I consider myself very lucky to have been on this medication."

• Bub...
• Taken for 2 to 5 years
• November 3, 2024

"I've had many of the side effects listed, but none of them serious. I have been on this med for over two years. Side effects began with mouth sores, making it hard to eat. That went away after a few treatments. I feel like a teenager with acne as pimples on my face were next. I have had problems with the skin around my toenails growing into the nail. I have had four toenails removed, and that helped tremendously. The worst problem I have had is no energy, tiredness, and lightheadedness. But I have been told that my cancer has been very slow growing and the Rybrevant has been helping that. I consider myself very lucky to have been on this medication."