Diamox User Reviews & Ratings (Page 2)

• Mel...
• Taken for 6 months to 1 year
• January 12, 2017

For Pseudotumor Cerebri "Diagnosed with Chiari Type 1 and Pseudotumor Cerebri in 2008. Started Diamox, and it changed my life. Within days, I was feeling so much relief. Over time, my dose went up, and the next move was an LP shunt, which has worked wonders for almost 8 years. It's starting to fail now, so my revision is scheduled, and I'm back on Diamox in the meantime. Yet again, symptoms under control with it. Yes, I have weird tingling in my face, hands, and legs, and I can't drink carbonated beverages. Oh well - I'm thankful to be functioning and not nauseous and dizzy and disoriented all day long. Diamox is the best thing, other than my shunt, for this disease. Very thankful for it."

• And...
• June 11, 2020

For Mountain Sickness / Altitude Sickness "At age 37, I decided to take my 1st ever mountain camping trip. We found a beautiful spot at 12,497 ft. I had been to Denver as a teenager with no reaction to altitude, so I wasn’t expecting to get sick. I hydrated, but evidently not enough. Within 4 hours of making camp, I began feeling nauseous. After 6 hours, diarrhea. By 10 hours, around midnight, I was going in and out of consciousness. We thought I had severe food poisoning. Due to the dangerous location, we could not get down from the mountain. Long story short, when I returned home to Dallas, Texas, I had had a mild edema. My doctor prescribed Diamox and portable oxygen for my next mountain trip. It really gets the job done. I have played around with the dosing, starting at half doses & add more up to the full dose as needed. I begin Diamox 48 hours before ascending over 9.5k. I find smaller dosing decreases the drowsiness. I hope this information helps others. Be safe and well."

• lei...
• Taken for less than 1 month
• April 5, 2018

For Edema "I was given Diamox to treat bilateral ringing in the ears, headaches, and pressure behind my eyes. I am 39 years old, and I have lived with ringing in my ears all of my life. I have tried every available option out there to treat tinnitus, and nothing has worked. I was referred to a new specialist dealing with ear diseases, and he asked me a few questions and then prescribed Diamox. Within 2 hours of taking Diamox, the ringing in my ears stopped completely, and the pressure behind my eyes went away, as well as headaches I've dealt with for years. I was shocked that this medicine is working, as one of the side effects was ringing in the ears, but I am having the opposite effect."

• Anonymous
• November 3, 2010

For Pseudotumor Cerebri "I've been on this medication for 2 weeks because of increased pressure in my spinal fluid due to head injuries. While the medicine works amazingly well on the headaches, my brain basically turns to mush when I'm on it, and I can't function well enough to do my job or understand my schoolwork. I also have really annoying tingling feelings in my hands, feet, and lips that haven't yet gone away. I wish there was a way to get this to keep working for my headaches."

• Anonymous
• August 24, 2010

For Pseudotumor Cerebri "I had been diagnosed with pseudotumor cerebri when I was 10 years old. That was 16 years ago, and I have been taking DIAMOX on and off for that long. I get very bothersome tingling that doesn't go away, often waking at night with extremely painful tingling in my feet that causes me to have to get up. I get crippling headaches that hurt when I even breathe, and the last time I was on the medication, the headaches got worse while I was taking it. I am currently back on the medicine and have to go to the bathroom every 10 minutes. I take 1000 mg a day and can no longer drink pop. Anyway, I have good and bad experiences with the Diamox, but the benefits to my eyes outweigh the inconvenience."

• Sar...
• June 9, 2015

For Pseudotumor Cerebri "I was diagnosed in 2014, and I can honestly say it has been a very difficult disease to handle... though I know there are much worse out there. I was put on Diamox, and my headaches or vision problems did not improve, in fact, they got worse. I have had more migraines since starting this than I ever did before. The side effects are awful... no appetite, foggy head (I am barely able to function day to day), nausea, everything you try to eat tastes awful. I am glad this has worked for some, but I cannot continue taking it."

• Ada...
• August 1, 2016

For Pseudotumor Cerebri "I have only been on this stuff for a couple of weeks now, but it has been a miracle drug for me. I have seen immediate relief. My visual disturbances dropped from a few times per hour to a few times per day. I'm hoping that improves further as my optic nerves have a chance to heal. I didn't think I had too bad of headaches before being diagnosed with PTC, but ever since I've been taking Diamox and the pressure has gone down, my head feels normal again. It was like I had just gotten used to the pressure before treatment and didn't notice how bad it was until it was gone. As far as side effects, I have had some. I do get the tingles in my feet at times, but it isn't too bad. And like others, I can no longer drink carbonated beverages. Worth it."

• Vet...
• February 19, 2017

For Pseudotumor Cerebri "I am 18, and I have been diagnosed with idiopathic intracranial hypertension (IIH) since December of 2016. As we all thought, I had a concussion because I played volleyball, but it didn't quite flow with the big blind spot in my left eye and the perfect MRI and MRE scan results. Well, as my opening pressure from an LP was 49.7, more than half for my age, and being the first patient for my pediatrician, I have pseudotumor cerebri. My new neurologist put me on 2,000 mg a day. Yes, this caused severe abdominal and GI upset for almost the first month I was taking it and a little bit here and there. My ophthalmologist has seen an improvement. My second LP as of 1/30/17 had an opening pressure of 28.7. They drained me to normal and took 10 cc instead of 8. I hope it keeps working."

• Sar...
• September 18, 2020

For Pseudotumor Cerebri "I was diagnosed with pseudotumor cerebri. Let's start off with for about 3 years I have had the worst pressure headache every single day. One day I noticed I had a new pulsating whooshing sound with my headache. I was vomiting. The next day I went to the store and noticed I couldn't see anything around me. It slowly started to get worse. One day I woke up and could not see at all. They immediately did exams, CT scans, and an MRI. I also saw a specialist ophthalmologist who instantly saw how swollen my optic nerves were and suggested I be admitted for a lumbar puncture. My opening pressure was 54. They drained it to 15. It's almost been a month and I have only had 1 headache. My vision came back but still is not 100% at all. Right now I am on 1,000 MG of Diamox twice a day. I have no complaints about it yet other than tingling in my feet and constant urination. Just make sure you drink lots of water and take a potassium supplement. I'm being seen by neuro-ophthalmology once a week."

• Anonymous
• February 6, 2012

For Pseudotumor Cerebri "I have only been taking the medication for a week. 500 mg/day. I have lost 11 pounds in that week due to the loss of appetite. When I do eat, I get sick. Nothing tastes good to me anymore. I'm having some crazy dreams at night. I urinate every 2 hours minimum. I get a tingling feeling in my fingers, face, and legs. I'm having a spinal tap this Friday to relieve some pressure. I'm hoping after that happens I won't have to take this medication anymore. It has alleviated the headaches, though!"

• Sus...
• Taken for less than 1 month
• June 23, 2017

For Mountain Sickness / Altitude Sickness "Anyone planning to take this medication for altitude sickness prophylaxis, I recommend you do a trial run at home first. I took this medication to hike the Inca Trail and started it the day before flying to Cusco. I developed a rare side effect of blurred vision/myopia, which came on about an hour after the second dose of Diamox. The myopia lasted for 72 hours after ceasing the medication. It almost ruined my trip, but fortunately, vision returned just in time to start the hike. I went on dexamethasone after that for prophylaxis. No side effects, but unfortunately, the Dex didn't work as I got altitude sickness... but that's another story!"

• Woo...
• November 21, 2008

For Epilepsy "I have used Diamox for over 20 years as a 'seizure control drug' for epilepsy. In this time, I have found it a very effective drug. One side effect I did experience was that the drug Tegretol, in tandem with Diamox, did not allow the Diamox to work effectively. This was soon discovered, and Tegretol was stopped."

• Not...
• October 19, 2018

For Mountain Sickness / Altitude Sickness "Do not if you have panic disorder. Had the worst panic attack of my life hours after taking it and thought I was gonna pass out and/or die. Guess I’ll just have to face the altitude sickness because you couldn’t pay me ten trillion dollars to take this again. FYI, I think most people do not have this experience, just warning those who have bad anxiety!"

• mik...
• Taken for 10 years or more
• August 30, 2020

For Mountain Sickness / Altitude Sickness "Diamox is freaking MAGIC. I used to get horrible, debilitating headaches at altitude in Breckenridge and Crested Butte. And if I had a beer, well, it was so much worse. I told my doctor, an avid skier, about it, and he prescribed Diamox/acetazolamide. Game changer. Not that I condone this, but I could hang with the 20-somethings in the bar 'til closing and wake in the AM feeling great and ready to go. Since then, I don't go about 8000 feet without following the protocol."

• Pet...
• Taken for less than 1 month
• December 10, 2019

For Glaucoma "Reduced my eye pressure after a vitrectomy. Initially made me spacey and sleepy with pins and needles, but hey, small price to pay to protect my vision and lower my eye pressure from 50 to 40 and so on. Used in conjunction with eye drops. I’ve only used short term. I’ve read several other side effects and have experienced the need to go urinate often."

• Jen...
• Taken for 6 months to 1 year
• June 21, 2020

For Pseudotumor Cerebri "So I just found out I have IH due to there being a golf ball-sized tumor in the vascular sinus of my brain. From the MRV, it shows stretching and scarring on the opposite side they believe in December/January when the headaches got so bad is when that happened. I received the results two Fridays ago. This Diamox is killing me, my kidneys hurt, my urine is coffee-colored, and smells weird. I know TMI. The neurologist nurse practitioner keeps telling me it's normal side effects, however, I haven't eaten in 5 days, and if I take a drink, I better be VERY near to the potty. This drug is killing me, I'm sure. And I'm still in pain, still hear things, cry, always going crazy, but my vision does not have black stripes and no peripheral vision."

• Bob...
• November 20, 2008

For Glaucoma "In a pretty critical situation after cataract surgery, this drug brought it totally in line. Side effects for me were mild, though annoying. Of all of the side effects, a spacey feeling for about 10 minutes the first two times, and tingling fingers and toes. All in all, worth it for short-term treatment."

• Anonymous
• May 19, 2010

For Glaucoma "I had cataract surgery 7 days ago. Diamox is very effective to reduce the pressure in the eye, but the problem is side effects. I had no appetite, constipation, and hearing loss. I am hoping it will go away in a few days. Anybody out there had a similar experience, please share with us. Thanks."

• nyg...
• Taken for 2 to 5 years
• November 26, 2015

For Glaucoma "I have congenital glaucoma. This medication was prescribed to me in 2009, the worst medication I've ever had. Tingling of the toes, fingers at times, lips. Worst headache of my life, and it's related to Diamox according to my doctor. The headache becomes so bad I can't think straight. It doesn't lower eye pressure for me in its entirety, but to a certain degree. Also, accompanied with this medication, it falls down horribly on my stomach, unbelievable pain, as well as dizzy symptoms. Doctor stated to me that this medication does produce these side effects."

• Anonymous
• June 6, 2011

For Pseudotumor Cerebri "This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs, and it gets so bad that at times I retain over 20 lbs of water, which slows me down terribly. The pills helped me greatly and kept me active. However, my doctor decided to take me off them and put me on Topamax because, though the pressures were down, the headaches and pain were still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!"

• bir...
• February 15, 2017

For Mountain Sickness / Altitude Sickness "After several bird tours flirting with 10,000 - 11,000 ft elevation, I became suspicious that I was susceptible to altitude sickness. A redirected flight to La Paz, Bolivia (and some unscheduled ascents near Cochabamba) convinced me I was. Typically, I serve as a human altimeter, within minutes of reaching 11,000 ft, I'm puking my guts out. Diamox has been a wonder drug in preventing altitude sickness on tours I've been on since Bolivia. I've traveled from 8,000 ft straight to 14,000 ft several times with no altitude sickness symptoms at all. 125 mg before bed is all I need. Tingling and bad-tasting soda symptoms are greatly reduced at that dosage compared to the 250 mg I initially used."

• Ang...
• Taken for 1 to 6 months
• November 28, 2012

For Glaucoma "I have been recently diagnosed with the disease called BIH, which occurs mostly in women and very young children, and currently taking Diamox with annoying side effects such as pins and needles in feet, hands, and lips, which can last up to 2 hours at a time and be painful. I wake every night with interrupted sleep, with a headache or temperature! I have been turned off a lot of food, but mainly fizzy drinks."

• Anonymous
• August 24, 2011

For Pseudotumor Cerebri "I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it, and there was no cure, but there is medicine to maintain. Many years later, with three different shunt placements, I now have a shunt that still does not work, but I have my Diamox to help me!"

• Mar...
• March 2, 2014

For Glaucoma "I am taking Diamox, this is the 3rd time I have been prescribed this. It definitely works, but the side effects this time are the worst of all. I am dizzy and fell, with pins and needles in my hands, feet, and face. A headache, I don't know if it's from the medication or from the fall. Nausea."

• Can...
• August 31, 2015

For Pseudotumor Cerebri "I have been taking this for a month, and my blood sugar keeps dropping out. I feel terrible and weak all the time. I get numbness everywhere. I have three sons to care for, and it's hard. I'm glad most of my symptoms seem to be normal, as I have read yours. The pressure in my head hasn't lessened, though. They gave me migraine medicine, but I'm afraid to take it if it'll put me to sleep during the day. I keep thinking about calling my neurologist. I'd like to know what to do at this point."