Acetazolamide User Reviews & Ratings (Page 4)

• Mar...
• March 26, 2016

Acetazolamide for Pseudotumor Cerebri "Diamox put me in remission after about six months, but it began to cause tinnitus and hearing problems. My hearing is fine now, but I cannot take Diamox again if my PTC returns. Just something to keep in mind. Tinnitus and hearing issues are considered rare side effects, but they can happen."

• CLe...
• Taken for 1 to 6 months
• March 27, 2015

For Glaucoma "I only had side effects for the first 2 weeks. The most annoying side effect was the tingling in my feet and knees. Luckily, my hands were fine. I also had to go pee at least 20 times a day, and each time I would pee a hell of a lot of water. This was mostly disturbing when I was at work and had to get up every 30 minutes to go to the bathroom. My head also felt pretty light, and I fell asleep easily during the day. Other than that, it isn't as bad as the other comments say. I was pretty scared after reading a couple of those. In all, this medicine does require some getting used to. Luckily for me, it passed after two weeks or so. Except for the tingling in my feet. But I got used to it."

• poa...
• July 14, 2011

Acetazolamide for Pseudotumor Cerebri "While there are some side effects, and it doesn't completely eliminate my condition, Diamox has allowed me to live a normal life. Most people do not even know that I am sick. I also have not had to have a shunt."

• Hol...
• Taken for 1 to 6 months
• September 30, 2015

For Pseudotumor Cerebri "I have had a less than par experience from this drug, but if you have been recently diagnosed with PTC, I would highly encourage you to try this as your course of treatment. Everybody reacts differently to medications and has different limitations in how far they're willing to go to get help. I was diagnosed in April of 2015, but have had it for 4 years. Nothing ever showed on MRIs, so they kept giving me migraine medicines, but nothing ever worked. Once I was diagnosed and took the medicine, the pressure went away, but the side effects started. Tingling and bad-tasting carbonation is something that you can deal with when the bowling ball-sized pressure in your brain is gone. The worst side effect for me was the spacey and drowsy-ness I felt."

• Cin...
• April 25, 2016

For Pseudotumor Cerebri "I have been on Diamox for ten years. Side effects are horrible. And I also have noticed more and more side effects the longer I take the meds. Without this medication, I have seven to eight episodes weekly. It really is a miracle drug! For the tingling sensation, I take EmerNC, it's a vitamin and immune booster. I don't drink any sodas at all or anything that has bubbles. I also found a whole list of medications and food you can't take while taking Diamox on Pinterest, and as long as I stay on top of everything, I feel better."

• tir...
• February 19, 2017

For Pseudotumor Cerebri "I just started acetazolamide a few days ago. 500 mg 2x a day. I had a lumbar puncture 2 days ago and neither has relieved much of the pressure. Every time I take one of these pills, I get a new symptom. My kidney function has been weaker. The pressure in my head continues. My body aches all over. The yucky taste... that is the least of my worries. Pins and needles... check. Extremely tired and feel like I've been beaten. I feel like bricks are laying inside my hips. This stuff sucks!!"

• bas...
• Taken for 1 to 6 months
• October 5, 2018

For Pseudotumor Cerebri "This medicine helped my migraines stop, but it caused me an insane amount of fatigue when I started it and when I stopped it. My hands, legs, feet, and sometimes other body parts tingled nonstop. Sometimes the tingle was so strong, it actually hurt. My hands tingled so much that I couldn’t write, so I had to use my computer to take notes instead. The one good thing from this medicine was the horrible migraines I’ve been suffering through never once occurred."

• Pen...
• Taken for 10 years or more
• July 3, 2015

For Pseudotumor Cerebri "I've been on and off this medicine since 2006, I was told I'd be able to stop, but it has not happened. It helps so much with the IH even with the tingling and taste issue side effects, I don't know what I'd do without it. I've had two spinal taps, and I really do not enjoy that experience."

• Anonymous
• July 17, 2009

For Mountain Sickness / Altitude Sickness "We used the generic form of this medicine for a quick 3-day visit to the Rocky Mountains to prevent altitude sickness since we were time-crunched and unable to acclimate slowly. It helped us both sleep, avoided getting ill, and suppressed our appetites. We did feel some very slight dizziness/lightheadedness when we first started it, but were able to pretty much ignore it. I highly recommend it if you will be unable to acclimate - your trip will not be spoiled by getting sick."

• CHE...
• December 22, 2013

For Pseudotumor Cerebri "I was diagnosed on a Wednesday, and by Thursday, I had started taking this medication. It did not kick in until the third day when I finally woke up without a headache. However, after one day of the pill, I have seen its side effects. All beverages with carbonation are now out of the question, they taste horrible. Pepsi tasted like soapy dishwater with a hint of bleach, and I noticed the tingling in my lips. The tingling in my lips and legs, however, does not bother me. I just find that my legs fall asleep faster if I'm not moving them. When my lips tingle, it kind of makes me laugh, it won't freak you out. Hoping that by the end of the week, the headaches are completely gone!"

• Kei...
• Taken for less than 1 month
• April 7, 2018

For Glaucoma "I was diagnosed with intermediate uveitis 5 weeks ago and recently started on Diamox 2 weeks ago after my eye pressure started increasing from the steroid drops I am on. The first couple of days I was much more tired and almost foggy-minded. Also had to urinate much more often. Then after the first couple of days, my body got very used to it. The only main symptom I have now is light tingling in my feet. My eye pressure was down from 39 to 28 in a week's time."

• Thu...
• February 27, 2016

For Pseudotumor Cerebri "Have been on Diamox for 3 weeks. Started on 250 mg bid for one week, then increased to 750 mg for 1 week, then increased to 500 mg bid for a total complete dose of 1000 mg a day. Numbness and tingling of hands and feet started almost immediately after the 1st dose. With the increase to 750 mg, (500 mg in the am and 250 mg in the afternoon), I started getting horrible knee pain in both knees. I still have a pulsing sound in my right ear. Constant, remains unchanged. Optic disks and papilledema and retinal damage due to IIH. Have not seen any changes or benefits due to this medication at this time. The side effects are rough. I was told by the neurologist my body would automatically adjust over time to the side effects. Not sure how much longer I can continue on the med."

• Anonymous
• January 29, 2009

Acetazolamide for Edema "I have been on this medication since I was 27. They diagnosed me with what you call a fluid tumor on my brain, which causes too much pressure on my brain, which then causes migraine headaches, really bad ones. I lived with them from the age of 17 until they did a spinal tap and found out I had too much pressure. I have been on this medication ever since. I am now 51 years old."

• ohi...
• Taken for 1 to 6 months
• December 27, 2024

Acetazolamide for Pseudotumor Cerebri "Migraine sufferer of 5 years, labeled chronic. Finally got my neurologist to send for MRI, MRA, and LP. Opening pressure was 24 during LP, closed at 19. Started Diamox and built up to 1000 mg daily. 500 mg in the am and 500 in the pm. Symptoms include tingling in feet more than hands, metallic taste lasted the first two weeks. I'm not a huge soda drinker but will have a Coke or Sprite. No issues until I had a Dr. Pepper, tasted like pennies. Yuck! Headache days have decreased from about 20 per month to 2 or 3. Last a couple of hours, then no issues but worse around my cycle. I've also stopped all other medications such as Tylenol, Excedrin, Aleve. My vision has improved as well and not so blurry in the morning. I do still have ringing in the ears occasionally and pulsating in my head, but I give it an A- overall from where I started 2 months ago."

• jlm...
• Taken for 6 months to 1 year
• September 21, 2020

For Pseudotumor Cerebri "I have been on Diamox since July 2019. I take it to treat my idiopathic intracranial hypertension. I was getting really bad headaches, and my vision was blacking out. I started on 250 mg once in the morning and once at night. I noticed almost immediately that my vision wasn’t blacking out anymore. I was still getting headaches, which I didn't think were going to go away because I have been getting migraines since I was 7 years old. At first, the side effects were very prominent. My hands and feet would tingle all the time and go numb. I was always hearing a loud swooshing sound followed by a ringing in my ears. It has been over a year since I started taking Diamox, and now I take 1000 mg once in the morning and once at night. I still deal with migraines, but the pressure in my eyes has decreased significantly. My feet still tingle sometimes, and the ringing in my ears still happens. I would rather deal with those two things than lose my vision multiple times a day."

• Kay...
• Taken for less than 1 month
• September 23, 2016

For Pseudotumor Cerebri "I have been taking this medicine for only two weeks after being diagnosed with pseudotumor cerebri, and it is awful. I feel like everything is getting worse. Before the medication, I already had the ringing in my ears, the terrible headaches, and occasionally I had numbness in my face, hands, and legs, along with many other symptoms. Now, since taking this medication, the ringing and headaches are EXACTLY the same, if not worse, and my feet are killing me, they are constantly 'asleep' with the feeling of tiny thumbtack jabs all over. It's multiple times a day: walking, standing, sitting, lying down. I feel worse now than I did before. I don't know what to do, but I know I cannot continue like this. I know that everyone reacts differently."

• Bab...
• Taken for 1 to 6 months
• August 1, 2019

For Pseudotumor Cerebri "I was diagnosed with pseudotumor cerebri two months ago, and I have been on Diamox for about six weeks. So far, I have a love-hate relationship with this drug. It got rid of my “snow” almost immediately, but the flashing lights and blurriness are still there. Any improvement is great in my opinion. The problem is with the side effects. I have gotten used to the weird food and beverage tastes, and the tingling in my hands and feet is annoying but bearable. I have completely lost my energy. I am tired all the time, and it is very difficult to find the motivation to get through work and do what I need to get done. I feel like garbage a few days a week. I’m really struggling, but I am going to try to learn to deal with it."

• aur...
• Taken for 1 to 6 months
• February 20, 2014

For Glaucoma "I have iritis, so to get rid of the inflammation, I was given Ozurdex, which caused intense pressure to 40%. The Dr. gave me acetazolamide, which got rid of the pressure but caused these insane rashes everywhere on my legs and extreme muscle pain. The loss of appetite is not a big deal to me, as well as the tingly toe thing, but I have those as well. I've been on this medicine for 2 months and just realized my symptoms are as a result. I seem to be the only one with these crazy side effects, so if anyone else has them, please share and tell your Dr."

• Anonymous
• April 28, 2010

Acetazolamide for Pseudotumor Cerebri "I was experiencing blurred vision, fatigue, loss of appetite, lack of concentration, and an increased amount of severe headaches. After being checked for everything under the sun in blood work, I was told I was fine. About a month later, the headaches and the memory and concentration issues came along with more asthma attacks. My neurologist sent me for an MRI, MRA, and EEG, nothing. He then sent me for a spinal tap, which revealed I had pressure in my head double the normal. This happened on Wednesday, April 21st, 2010 (last week). I received a phone call from my neurologist, who said I needed to start taking the medication immediately. I have had no appetite, consistent nausea, and I throw up on a regular basis. So I deal with it or have a shunt."

• Mik...
• June 22, 2018

For Glaucoma "I took this medicine once, and the side effects are horrible. It decreases my potassium to the point that I felt the pressure on my head, and it feels like I was about to collapse. My whole body started to feel numb, and I was shaking and scared. (I was about to panic when I felt that numbness all over my body), but I stayed calm and rested, but I can still feel the tingling sensation. I pee a lot, dizziness, and I feel like it triggers my anxiety. But this medicine helped my eye pressure. I just took this once, and I will never take that again. Earlier, I went to my ophthalmologist, and he is kind of shocked that I said I was about to collapse, and he said that I shouldn't take that medicine because of the side effects. Right now, I can still feel the tingling in my fingers and foot. I just ate a banana, and it helps..."

• Jaz...
• Taken for less than 1 month
• February 4, 2020

"Man, so I just was going to my eye doctor for a check-up about my left eye having pressure, having headaches, but I started a green smoothie diet and started feeling better. But she sent me to the ER to have an emergency cat scan as she had seen something. So I had an MRI of my brain and spinal cord because I had so much pressure on it (Idiopathic intracranial hypertension - IIH). But I feel I could have gone without all of this, including the medication. I hate taking it, sometimes I don't want to take it. I can't eat, & I feel like I will throw up, & I feel spaced out. I don't feel normal."

• Cin...
• December 7, 2015

For Mountain Sickness / Altitude Sickness "I have used Diamox (generic form) at least six times and swear by the medication. Prior to using, I would get headaches and nausea so bad it would ruin the weekend trip. This drug is truly a miracle for people who suffer from the effects of altitude problems. Very few side effects that I experience. Tingling in my fingers and toes on occasion, a little tired, but not extreme. Carbonated drinks are strangely tasting as well."

• Anonymous
• Taken for less than 1 month
• March 30, 2019

Acetazolamide "I just started taking Acetazolamide 1/2 pill of 250 mg tab for my ringing in my left ear, and I'm feeling tired and kind of weak. I feel like going back to bed. My ENT Dr. prescribed this. Does anyone else out there have similar problems?"

• bab...
• April 7, 2011

For Glaucoma "I have a lot of fluid in my optic nerve, blurred vision. I have a couple of days taking this medication twice daily, and it gives me some side effects ...gives me tingling in my fingers and toes, nausea, and I also experienced dizziness, but my doctor says it will go away in two weeks."

• Est...
• Taken for 6 months to 1 year
• December 18, 2017

For Pseudotumor Cerebri "All I have to say is that this pill has made my life so much better. Three years ago, this pseudotumor cerebri started after having my firstborn. I was at my heaviest at 245 lb. Ever since, I've never been the same until now. Although I deal with the side effects (sleepy, muscle weakness, tiredness, tingling), being sleepy has been the worst to cope with because I'm a mother and I have things to do, BUT at least some days I'm able to function well, and that's better than nothing. I also take potassium, which helps a lot for the tingling! I hope one day I no longer have to take these pills and finally have my life back and enjoy it! BTW, I'm 21 years old."