Acetazolamide User Reviews & Ratings (Page 3)

• Bob...
• November 20, 2008

Acetazolamide for Glaucoma "In a pretty critical situation after cataract surgery, this drug brought it totally in line. Side effects for me were mild, though annoying. Of all of the side effects, a spacey feeling for about 10 minutes the first two times, and tingling fingers and toes. All in all, worth it for short-term treatment."

• Anonymous
• May 19, 2010

Acetazolamide for Glaucoma "I had cataract surgery 7 days ago. Diamox is very effective to reduce the pressure in the eye, but the problem is side effects. I had no appetite, constipation, and hearing loss. I am hoping it will go away in a few days. Anybody out there had a similar experience, please share with us. Thanks."

• Hen...
• September 23, 2016

For Glaucoma "I was taking Diamox twice daily for two weeks to reduce eye pressure before cataract surgery. Very effective in lowering pressure, but side effects were troublesome. It makes you very tired, constipated, dizzy, lack of appetite, some temporary hearing issues in one ear. A few days after stopping the pills, everything was back to normal."

• nyg...
• Taken for 2 to 5 years
• November 26, 2015

Acetazolamide for Glaucoma "I have congenital glaucoma. This medication was prescribed to me in 2009, the worst medication I've ever had. Tingling of the toes, fingers at times, lips. Worst headache of my life, and it's related to Diamox according to my doctor. The headache becomes so bad I can't think straight. It doesn't lower eye pressure for me in its entirety, but to a certain degree. Also, accompanied with this medication, it falls down horribly on my stomach, unbelievable pain, as well as dizzy symptoms. Doctor stated to me that this medication does produce these side effects."

• Pep...
• Taken for less than 1 month
• January 26, 2020

For Glaucoma "I've been taking acetazolamide for glaucoma for 2 weeks now, and the lightheadedness, weakness, and low energy level are very troublesome. I've been given no other options with regard to my eye pressure condition. The weakness and dizziness are like a very bad flu condition."

• Tor...
• Taken for 1 to 6 months
• January 6, 2020

For Pseudotumor Cerebri "This medication acetazolamide was horrific at first! I had to take off work a month just to take it. I started taking a dose of 125 mg a night for a week, then 125 x 2 a day for a week, then 250 x 2 a day for a week. Now I take 500 mg ER once a day. Next week I go to 500 mg ER 2 x a day. I was so sick I couldn’t get out of bed the first two weeks. Food and drinks still taste strange, still very sick just not as bad, but sadly trying to adjust as my new normal. Still tingling in hands/feet. Sharp headaches, nausea, breathing issues, tired, eyes look weak, dizzy, always in a haze. Eating anything seems to enhance my nausea. I had trouble walking one week and had to have an epidural steroid shot in my back. I have lived with ringing in both ears for over a year now. The medicine has made my ringing worse! I can’t stop the medicine. So I don’t have a choice. I have to take the medicine or risk going blind. However, I am pretty miserable!"

• for...
• Taken for 1 to 6 months
• May 6, 2013

For Pseudotumor Cerebri "The first two weeks, I had general numbness of my whole face, tried to take a sip of soda, and everyone thought I was overreacting to how disgusting it tasted. I also had terrible pins and needles in my feet that woke me up in the middle of the night. That has gone away now, but when they upped my dose, I discovered now that I am having severe joint pain in my knees and have been unable to function regularly at my job, which I was very good at before. I forget stuff very easily, which I didn't know is a side effect, but I saw others here stated the same. I still give it a 10 because, despite the side effects, it beats the alternative because I have not had a headache since I started the medication, and my eyes get better every day."

• Anonymous
• June 6, 2011

Acetazolamide for Pseudotumor Cerebri "This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs, and it gets so bad that at times I retain over 20 lbs of water, which slows me down terribly. The pills helped me greatly and kept me active. However, my doctor decided to take me off them and put me on Topamax because, though the pressures were down, the headaches and pain were still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!"

• bir...
• February 15, 2017

Acetazolamide for Mountain Sickness / Altitude Sickness "After several bird tours flirting with 10,000 - 11,000 ft elevation, I became suspicious that I was susceptible to altitude sickness. A redirected flight to La Paz, Bolivia (and some unscheduled ascents near Cochabamba) convinced me I was. Typically, I serve as a human altimeter, within minutes of reaching 11,000 ft, I'm puking my guts out. Diamox has been a wonder drug in preventing altitude sickness on tours I've been on since Bolivia. I've traveled from 8,000 ft straight to 14,000 ft several times with no altitude sickness symptoms at all. 125 mg before bed is all I need. Tingling and bad-tasting soda symptoms are greatly reduced at that dosage compared to the 250 mg I initially used."

• Dia...
• Taken for 1 to 6 months
• June 1, 2020

For Pseudotumor Cerebri "It made my headaches and vision considerably worse at a low dose (250 mg b.i.d.). Caused a number of other side effects: horrible numbness and tingling in hands, feet, arms, legs, and face; fatigue; loss of appetite; nausea; vomiting; diarrhea; tons of kidney stones; muscle weakness; severe muscle cramping; loss of bladder control; loss of muscle control (unable to move fingers, face twitching); loss of feeling in hands and feet; cyanosis of extremities."

• Ang...
• Taken for 1 to 6 months
• November 28, 2012

Acetazolamide for Glaucoma "I have been recently diagnosed with the disease called BIH, which occurs mostly in women and very young children, and currently taking Diamox with annoying side effects such as pins and needles in feet, hands, and lips, which can last up to 2 hours at a time and be painful. I wake every night with interrupted sleep, with a headache or temperature! I have been turned off a lot of food, but mainly fizzy drinks."

• Lee...
• April 11, 2021

For Pseudotumor Cerebri "I have been diagnosed with IIH (Idiopathic Intracranial Hypertension), they put me on Diamox. I am a rarer case because I am a thin woman compared to most. They hoped the Diamox will help bring down the fluid. I started on 250 mg twice daily. Anything carbonated tasted dull and metallic. My entire body will tingle and go numb, but at different times throughout the day, multiple times. The worst experience for me is I am peeing all the time, and my face is also breaking out, and my hands are numb and tingling for hours throughout the day. Overall, the pins and needles in my feet up to my knees are so painful. It feels like glass or knives, and this is no exaggeration. I am left in tears, and it happens many times a day on each leg, and I wake up out of my sleep several times a night. My neuro said it gets better over a span of 2-3 months, and now it has been 5 months. He upped my dose, and I am absolutely miserable. My neuro says I cannot stop unless surgery because it will lead to permanent vision loss."

• Jas...
• Taken for less than 1 month
• June 7, 2020

For Glaucoma "I was only prescribed this medication for 3 days following an eye procedure. I generally steer away from any prescription meds as much as possible. I experienced horrible tingling hands and feet, mild nausea, a little lightheaded. The worst symptom was extreme fatigue. Very relieved when the 3-day course was up."

• Dej...
• Taken for 2 to 5 years
• July 17, 2017

For Pseudotumor Cerebri "I was diagnosed with Pseudotumor Cerebri in February 2015. When I got pregnant with my son, I gained over 60 lbs. I had him in May 2014 and didn't have any symptoms until October 2014 when my eyesight went out for a second or two, and it didn't happen again. I didn't pay it any mind until January 2015 when it started getting worse. My vision would go in and out for about 2-5 seconds at a time. I finally saw the ophthalmologist, who said my optic nerves were swollen and referred me to a neurologist, who had me do an MRI, one spinal tap (where my pressure was so high at 44, so they relieved some of the spinal fluid down to 20), then they finally decided to put me on Acetazolamide 500 mg ER. The only cons were the metallic taste and tingling."

• Lau...
• May 4, 2020

For Pseudotumor Cerebri "I have dealt with years of intracranial hypertension, which after this lockdown and putting on 'a few pounds' in such a short space of time, I came out of remission. Ended up back in the hospital having a lumbar puncture once again, and my neurologist decided to put me on these tablets. I am on 3x 250mg. It is safe to say I have had nearly all of the side effects (I am on day 6) and so far... lightheadedness, severe fatigue, tingling in my fingers, feet, face, lips... but I tend to giggle them off. I found the energy to go for a walk yesterday and today (not alone, too scared in case I get too lightheaded). The tingling intensifies. I cannot drink anything fizzy, the taste is just awful! I get tiny headaches, but nothing compared to what I had to deal with when going through IIH. I thought about stopping the medication, but I will persevere for now and see how I get on for the next month. It is lucky I am on furlough, or there is no way I would be able to handle taking them and work."

• Anonymous
• August 24, 2011

Acetazolamide for Pseudotumor Cerebri "I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it, and there was no cure, but there is medicine to maintain. Many years later, with three different shunt placements, I now have a shunt that still does not work, but I have my Diamox to help me!"

• Thu...
• Taken for 1 to 6 months
• December 6, 2018

For Hydrocephalus "I have rebound intracranial hypertension (from hypotension). I was originally diagnosed with idiopathic intracranial hypotension (leaking spinal fluid), so I couldn't stand upright without my brain feeling like it was getting crushed. Got a blood patch, was fixed for a while, but now I'm one of the rare cases of now having too much spinal fluid, so my brain feels like it's going to explode. I could've risked either a spinal tap (and possible lead back to the original hypotension) or go on acetazolamide to reduce the amount of fluids in my body and my head. Typical side effects everyone mentions here - soda tastes like garbage, and I get tingling hands/feet. I'm on one tablet of 250 mg per day, and it's been able to stop the exploding headaches. I've been warned to see an optometrist to make sure the pressure isn't enough to cause optical nerve damage, but other than that, this is a working solution for me. Hoping to eventually wean myself off it."

• IIH...
• January 24, 2010

Acetazolamide for Pseudotumor Cerebri "In February of 2008, I was diagnosed with intracranial hypertension due to a rare side effect caused by minocycline prescribed to me by a dermatologist. This medication, along with my lumbar puncture, has stopped my vision loss. The side effects have been very difficult at times. I have experienced all of the common side effects, including loss of appetite (lost 40 pounds), tingling from hands to elbows and toes to knees, and intestinal problems. Brain pressure remains high, but vision is saved. Overall, just glad to be alive and without a shunt. Be well."

• Say...
• Taken for less than 1 month
• July 1, 2015

For Pseudotumor Cerebri "Good. It's only been two days, but I feel much better already. My foggy head feels like it's clearing, my eyes feel clearer, my headaches are minimal, and I feel great. I'll come back and update in a few months, but I just wanted to offer my positive experience because all you ever see here are negative reviews. Yeah, I've had a bit of tingling, but it's really nothing - just like normal pins and needles, which I was getting anyway, so I can't even tell if it's this or not; even if it is, it's not distressing in the least. I think I'm coping well because my neurologist said to me, 'the people that don't do well on this medicine usually misinterpret the side effects as dangerous. They're not.' Now, I feel perfectly safe with the side effects."

• Big...
• October 23, 2015

For Pseudotumor Cerebri "In the ER for the 2nd time with a horrific headache. The first time I was told my migraines escalated. I knew my body well enough to know this was no migraine. I started this medicine in the hospital for two days and can say this is the first time in over 6 months I have not had a headache. I can tolerate the tingling and the weird taste carbon has now, but that is a minor inconvenience compared to head feeling like it's in a world champion soccer game."

• Mar...
• March 2, 2014

Acetazolamide for Glaucoma "I am taking Diamox, this is the 3rd time I have been prescribed this. It definitely works, but the side effects this time are the worst of all. I am dizzy and fell, with pins and needles in my hands, feet, and face. A headache, I don't know if it's from the medication or from the fall. Nausea."

• Bro...
• March 6, 2017

For Pseudotumor Cerebri "I've been taking this medication regularly for the past month and want to cry. I'm 20 years old, a healthy female, and was diagnosed with pseudotumor cerebri. I call my mom nearly every day complaining of a new pain. From the horrible tingly sensation in my hands and feet to the horrible confusion, and now extreme pain in my abdomen, I'm ready for this all to stop. I'm on 500 mg daily and can't even operate my vehicle! I am always so out of it it makes finishing my homework assignments difficult, let alone the constant new pains I always complain about. I am pretty tough, but when it comes to seeing my doctor every week due to the side effects of this medication, it's not worth it."

• Can...
• August 31, 2015

Acetazolamide for Pseudotumor Cerebri "I have been taking this for a month, and my blood sugar keeps dropping out. I feel terrible and weak all the time. I get numbness everywhere. I have three sons to care for, and it's hard. I'm glad most of my symptoms seem to be normal, as I have read yours. The pressure in my head hasn't lessened, though. They gave me migraine medicine, but I'm afraid to take it if it'll put me to sleep during the day. I keep thinking about calling my neurologist. I'd like to know what to do at this point."

• Waf...
• June 16, 2013

For Glaucoma "I was placed on Diamox along with other medications as a means of reducing intraocular pressure after being told of having ocular atrophy. It really works, but had tingling effects in my hands and feet, as well as drowsiness/tiredness."

• Con...
• March 6, 2009

Acetazolamide for Edema "I was diagnosed with pseudotumor cerebri, hypertension in the brain caused by high levels of fluid. I have been on Diamox for several months. It worked, then I needed another spinal tap; they upped my dose to 3 caps a day. Manufacturer and pharmacist both said NO, so now I am back on 2 caps a day, and the fluid is back! I can't take it anymore!"