Zanubrutinib and Rash: What Users Say

• DrM...
• Taken for less than 1 month
• August 25, 2024

For Mantle Cell Lymphoma "Started 3 weeks ago for MCL. 160 mg BID. Palpable adenopathy essentially already resolved (!) Side effects = bruising, rash, mild purpura on arms, mild petechiae on face and legs, occasional nausea. Interesting side effects = 1.) voice change (much lower, sound like Yoda with a cold) which begins about 2 hours after taking a dose and lasts for about an hour. Very repeatable. 2.) eyelashes appear to be getting longer."

• Tho...
• Taken for 1 to 2 years
• June 30, 2025

Zanubrutinib for Chronic Lymphocytic Leukemia "A few months after starting Brukinsa, I began to break out in rashes and sores on my arms and scalp. My skin started itching, especially on my head. Hydrocortisone cream and medicated shampoo and medicated skin cream took care of all that. I also take a buttload of supplements - Vitamin C, Vitamin E, multivitamins, selenium, Vitamin D3, etc. - along with four doses of iron every day to keep my red blood cell levels up. It will be two years in November since I started on it, and so far it works like a charm. Unfortunately, it also increases my joint pain. But I exercise regularly and eat right most of the time. Lots of walking, playing drums and going to the gym, so that, as well as a dose of Tramadol 2-3 times a week, keeps my pain at bay. I don't take any other prescription drugs. I'm 63 years old and still have some living to do, so thank God for Brukinsa!"

• Sim...
• Taken for 1 to 6 months
• May 20, 2024

Zanubrutinib for Chronic Lymphocytic Leukemia "Rash on face after 1st month; I started to cough out blood after 8 weeks"