Zanubrutinib User Reviews & Ratings (Page 2)
Brand names: Brukinsa
Zanubrutinib has an average rating of 8.7 out of 10 from a total of 50 reviews on Drugs.com. 80% of reviewers reported a positive experience, while 0% reported a negative experience.
Reviews for Zanubrutinib
- Gra...
- Taken for 1 to 2 years
- January 11, 2025
Zanubrutinib for Waldenström Macroglobulinemia "My dose is currently 160 mg once per day. I have few side effects. Some muscle and joint issues, which are resolved pretty well by stretching, exercise, and relaxation techniques. It has given me my life back. I was using a walker when first diagnosed with lymphoma. Now I can walk, hike, and bike for an hour. Fatigue is definitely an issue, so I need to rest in between activities. While I can't just take off for a day like I used to, I am still living a good life. It is crazy expensive, but between Medicare, my supplemental insurance, and help from the manufacturer, I haven't had any copay. I'm so grateful."
- Fra...
- Taken for 1 to 2 years
- February 16, 2025
Zanubrutinib for Waldenström Macroglobulinemia "With TE thrombocytémie essentielle after 18 years (Hydréa). No longer supported, Hydréa replaced by Anagrelide. Plus MGUS (IgM) => Lymphome B with small cell CD5 négatif (Small B-cell lymphoma) = WM. Anemia. At the same time, change Hydréa to Anagrelide and Brukinsa started 8 months after. No problems, just reduce the Anagrelide dose from 2/day to 1-2-1-2 ... /day (pellets too low with 2/d)). So no problem after 2 years and IgM ~0.0 now. It works very well for my Waldenström disease. Regards."
Frequently asked questions
- Ano...
- Taken for 1 to 6 months
- April 16, 2025
Zanubrutinib for Chronic Lymphocytic Leukemia "Dosage: 160 mg b.i.d. Significantly improved labs. Side effects have been manageable and include nausea, bruising, cough, musculoskeletal pain, constipation, and headaches."
- Bru...
- Taken for 1 to 6 months
- February 3, 2024
Zanubrutinib for Chronic Lymphocytic Leukemia "Already 4 months on Brukinsa. All enlarged lymph nodes have disappeared. Very minor side effect - upper right foot skin sensitivity. So far, it has worked very well for me."
Are you taking this medicine?
Your review helps others make informed decisions.- Ste...
- Taken for less than 1 month
- March 3, 2024
Zanubrutinib for Chronic Lymphocytic Leukemia "4 weeks so far so good. No side effects. Lymphs have gone down."
- Ton...
- Taken for 1 to 6 months
- March 19, 2025
Zanubrutinib for Chronic Lymphocytic Leukemia "I've been on this treatment plan since December 28, 2024, and so far, well tolerated. Haven't had any side effects from it and was diagnosed with CLL!"
- joh...
- Taken for less than 1 month
- March 15, 2025
Zanubrutinib for Chronic Lymphocytic Leukemia "Been 3 weeks now. So far, pretty good, just a bit of nausea. Goes away after an hour or two."
- Ana...
- April 19, 2024
Zanubrutinib for Waldenström Macroglobulinemia "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"
- Sim...
- Taken for 1 to 6 months
- May 20, 2024
Zanubrutinib for Chronic Lymphocytic Leukemia "Rash on face after 1st month; I started to cough out blood after 8 weeks"
- Bud...
- Taken for 1 to 2 years
- May 10, 2024
Zanubrutinib for Waldenström Macroglobulinemia "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."
- Anonymous
- Taken for less than 1 month
- June 3, 2024
Zanubrutinib for Chronic Lymphocytic Leukemia "At times, after taking Brukinsa, seem to feel tired."
- Mon...
- Taken for less than 1 month
- November 20, 2024
Zanubrutinib for Chronic Lymphocytic Leukemia "I have just started my journey. (Second day on the drug.) I look forward to seeing the results as time moves along. I also look forward to hearing others' comments."
- rob...
- Taken for 1 to 6 months
- February 27, 2025
Zanubrutinib for Chronic Lymphocytic Leukemia "After 1 month, still very weak, dizzy, and shortness of breath. That's about the worst of it. White blood count still going up."
- Owe...
- Taken for 1 to 6 months
- December 5, 2022
For Mantle Cell Lymphoma "So far I have little side effects, and waiting for a PET test to see if I have good results. I am only in week 9 yet, but I feel good."
- jus...
- Taken for 1 to 6 months
- March 17, 2024
For Chronic Lymphocytic Leukemia "Bruising. Lethargy. More skin cancer. I think it's working, but I hate it. I've thrown up a few times after taking it. I'm tired all the time and it makes me grumpy."
- Nan...
- Taken for 1 to 2 years
- March 10, 2024
For Marginal Zone Lymphoma "I have had good experiences with this drug. It has gotten my spleen to the size it should be. I have not had any side effects and have been taking it for 2 years. It is easy to take."
- Anonymous
- Taken for 1 to 6 months
- April 13, 2024
Zanubrutinib "Light headaches in the evenings, gas. Nothing major for the moment. Shrinking lymph nodes, shrinking spleen."
- Est...
- Taken for 1 to 6 months
- September 22, 2024
Zanubrutinib for Waldenström Macroglobulinemia "After 4 months, blood work improving, m protein levels dropping from 5000 down to 1700, with a hemoglobin rise. No appreciable side effects so far. 2 80 mg twice daily."
- Bru...
- Taken for 6 months to 1 year
- August 23, 2024
For Chronic Lymphocytic Leukemia "Effective, results were noted within a couple of days. My issue was swelling around the eyes, which progressed over 5 months to a state where I could barely open my eyes."
- Ste...
- Taken for 6 months to 1 year
- December 16, 2024
Zanubrutinib for Waldenström Macroglobulinemia "Started 160 mg twice daily 8 months ago, IgM down to under 1000 from 5000. Hemoglobin from 8.5 to 15... minimal side effects. So far, so good."
- Kay...
- Taken for 6 months to 1 year
- June 29, 2024
For Waldenström Macroglobulinemia "Very few side effects. Minor if any most days. Easy to take and simple to maintain correct dosage daily. IGM and viscosity going down. Pleased."
- raf...
- Taken for 1 to 6 months
- January 27, 2024
Zanubrutinib for Mantle Cell Lymphoma "Other than tingling of skin in my arms and occasional red spots that go away in about a week, I feel good."
- LFD...
- Taken for 1 to 6 months
- March 9, 2025
For Mantle Cell Lymphoma "Used over 4 months as monotherapy. Regular scans confirm complete remission of node cancer. Minor skeletal ache and blurred vision, most notable side effects."
- bru...
- Taken for 1 to 6 months
- April 17, 2025
Zanubrutinib for Chronic Lymphocytic Leukemia "Slowed down and maybe improved energy levels after approx. 90 tablets and six weeks. Recently had plastic surgery and the wound will not heal. Leaking blood still after 40 hours."
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- Drug class: BTK inhibitors
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Zanubrutinib for Waldenström Macroglobulinemia "After 6 B&R chemo sessions, chemo wasabi stopped due to a mutant cell that was blocking its effectiveness. After nearly 2 months, I was put on Brukinsa and have had little or no side effects. Slight runny nose, occasional minor back pain. I feel like myself again. Looking forward to my first lab since starting. I hope it’s working!"