Sarilumab User Reviews & Ratings
Brand names: Kevzara
Sarilumab has an average rating of 6.7 out of 10 from a total of 29 reviews on Drugs.com. 54% of reviewers reported a positive experience, while 33% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Polymyalgia Rheumatica | 6 reviews for Polymyalgia Rheumatica | 5 medications | |
| Rheumatoid Arthritis | 23 reviews for Rheumatoid Arthritis | 372 medications | |
| Add your review | |||
Reviews for Sarilumab
- Lisa
- Taken for 1 to 6 months
- June 13, 2019
Kevzara (sarilumab) for Rheumatoid Arthritis "I've only taken three injections so far. But I felt a little better with each injection... to the point that I actually look forward to my injections (which don't burn like Enbrel and Humira!! Almost no pain. ) After the third injection, the worse of my RA symptoms (tingling, burning and numbness in my hands) were gone and I just had what I think of as my normal RA ache and pains that I don't expect to go away after nearly 30 years with the disease. However... I was diagnosed with pneumonia last week (something I've never had before. I rarely even get colds.) so my Kevzara is on hold. I believe Kevzara is to blame for for the pneumonia but it's a risk I'm willing to take because it really works for my RA. But please be careful and call you doctor immediately at any sign of infection or illness."
- Wilmi...
- Taken for 1 to 6 months
- November 23, 2023
Kevzara (sarilumab) for Polymyalgia Rheumatica "Have been on Kevzara for 6 weeks with absolutely no side effects. Prednisone was at 20 mg at first injection, 15 mg at second injection and now 10 mg at third injection. Plan is to go to 5 mg in two weeks after 4th injection, provided that Sed rate and CRP improve. Goal is to come off prednisone entirely shortly after Jan 1, 2024. Extremely easy to use pen injector, no pain, no redness, no itching. Diagnosed with PMR in January 2023. Dosage is 200 mg per injector pen. Rate this a 10"
Frequently asked questions
- What are the new drugs for rheumatoid arthritis (RA)?
- Does Kevzara cause weight gain?
- How long does it take for Kevzara to work?
- How do you use Kevzara (sarilumab) for the treatment of rheumatoid arthritis?
- Liz
- Taken for 1 to 6 months
- August 21, 2020
Kevzara (sarilumab) for Rheumatoid Arthritis "I have been diagnosed with RA for one and a half years. I started with Oral methotrexate but it stopped working and had side effects. I have had 4 injections of the Kevzara and feel wonderful! Still taking 4 pills of methotrexate but hopefully I will be able to get off. The only side effect is a slight cough for a day after the injection. But I am not going to stop taking it. I wish everyone would benefit from this medication like I have. I feel like me again. Prayers answered."
- Pat
- Taken for 6 months to 1 year
- January 10, 2024
Kevzara (sarilumab) for Polymyalgia Rheumatica "I was unable to wean off Prednisone after 2 1/2 years. Kevzara helped me right away. I have been taking injections every two weeks for 6 months now and I finally feel like a normal person. What a relief!"
Are you taking this medicine?
- Living...
- Taken for 1 to 6 months
- February 12, 2019
Kevzara (sarilumab) for Rheumatoid Arthritis "My doc put me on Kevzara and it really made such a difference in my condition. I feel better than I have felt in years, and my CRP levels are finally in control. After stopping methotrexate I was worried, but finally feel like my life is finally back on track."
- Grand...
- June 22, 2019
Kevzara (sarilumab) for Rheumatoid Arthritis "I've been taking Kevzara injections for a few months now. It seems to be helping the pain of RA, but I've been having chronic UTI issues for over a year now. After this last injection today, I'll be darned if I'll ever take it again! About an hour and a half after my injection I had the worst urinary pain ever. I took a Uribel (Rx) which usually kicks in quickly, but not this time. I see that one of the side effects is urinary pain, and boy, it is pain!!"
- MHano
- Taken for 10 years or more
- April 13, 2021
Kevzara (sarilumab) for Rheumatoid Arthritis "I was in the original clinical trial for Kevzara after being diagnosed with severe RA. I had finger disfigurement and had severe challenges getting dressed and walking. The first injection reversed my finger gnarls. I’ve been in remission for 10 years now thanks to this drug. It saved my life."
- Side...
- Taken for 6 months to 1 year
- April 10, 2023
Kevzara (sarilumab) for Rheumatoid Arthritis "While there is no pain, I am very weak and tired. I also have bladder issues, to the point that I am wearing a pad, which I change constantly. I can no longer drive as I fall asleep. The bottom of my feet feels like I have no feeling and I am always cold."
- Shes
- Taken for 1 to 2 years
- March 21, 2020
Kevzara (sarilumab) for Rheumatoid Arthritis "I’ve been taking Kevzara for over a year and it’s working great. I’ve had no flair ups, no pain and no problem at the injection site. I also take methotrexate so giving myself two shots is no fun but it beats the alternative."
- Anonymous
- Taken for less than 1 month
- September 27, 2017
Kevzara (sarilumab) for Rheumatoid Arthritis "It really helped me but a 4 inch rash appeared on my The calf of my leg, I also had really bad stomach pains and had black tarry stools. MyDdr took me off of Kevzara because of the latter (possibly a gastric bleed)"
- DHS
- Taken for 1 to 6 months
- November 21, 2019
Kevzara (sarilumab) for Rheumatoid Arthritis "This med Kevzara did a wonderful job lowering my inflammation—better than Humira and even Cimzia. However, I was only able to stay on it about 2 months as I had horrible injection site reactions. Each injection site who become a large, red itchy and raised patch for about 2-4 wks before turning dry and scaly (and still itchy). Since I was doing a injection every 2 weeks, I had irritation all over my belly and sometimes I would just feel itchy all over with a faint rash (arms, etc). I had to stop. This med also didn’t seem to relieve pain in my hands and feet although all of my other joints felts good overall."
- Dano
- Taken for 1 to 6 months
- August 21, 2018
Kevzara (sarilumab) for Rheumatoid Arthritis "My doctor put me on KEVZARA 10 weeks ago and took me off of 23.5 of mtx. (Not weened off, cold turkey) The KEVZARA nurse says to be patient that it could take up to 3 months to take effect. I am in the worst pain I’ve had since 1997 when I was diagnosed. Prior to KEVZARA I was on ORENCIA but it stopped working. Don’t know how to convince the doctor to put me back on mtx. He is not receptive to you telling him what you need."
- dorko
- Taken for 1 to 6 months
- January 14, 2018
Kevzara (sarilumab) for Rheumatoid Arthritis "I've been on Kevzara for 10 weeks now and show little to no improvement. I take 20 mg of methotrexate by injection as well.The methotrexate makes me really sick every weekend so I tried to go a week on the Kevzara by itself. Huge mistake. The pain and swelling went through the roof. I've already tried Inflectra and Xeljanz with no success. Not too sure what I'll get next. Can't go on like this."
- LFer
- Taken for 1 to 6 months
- June 20, 2018
Kevzara (sarilumab) for Rheumatoid Arthritis ""I've been on Kevzara for 16 week now and show little to no improvement. I’ll give it another month then I’m not too sure what I'll get next. I tried all medications for RA. This one is my last hope, but no improvement yet!"
- Irene
- Taken for 1 to 6 months
- September 8, 2018
Kevzara (sarilumab) for Rheumatoid Arthritis "I have taken two injections of kevzara and refuse to take another. After both injections it has felt like I had the flu. The lethargy and pain has been the worst it’s ever been. I have had to go in for a Toradol shot each time to cope with the pain. Before Kevzara I have only had to have the toradol shots twice in over five years. I can’t afford to be unable to function for a week every two weeks."
- Aggra...
- December 31, 2017
Kevzara (sarilumab) for Rheumatoid Arthritis "I have tried this in my shoulder (in office physician injection), thigh, belly, and butt. Every time I get a huge (4 to 6) wheal/rash that literally hurts and itches for over a week. I can't see any effects because honestly I don't think it's absorbing and I'm still having flare ups. It's just not worth the pain and suffering that I have to endure."
- RA re...
- Taken for 1 to 6 months
- May 3, 2022
Kevzara (sarilumab) for Rheumatoid Arthritis "I am 54 years old and have had RA for 31 years. I have been on all the traditional meds as well as several biologics and was losing hope because I had a life threatening experience last year on one that put me in the hospital. In spite of this I began taking Kevzara 4 months ago and it has made a tremendous difference. I can do many things now that were impossible for years. My blood work is the best it has been since taking Enbrel. I have had so much relief from the fatigue and inflammation I have suffered for so long. I do have site reactions from the injections and use cortisone cream to help with the itching and redness. It lasts a few days and then dissipates. All in all, Kevzara has been very effective for treating RA in my case, almost as good as Enbrel was for the 12 years I was able to take it."
- Anonymous
- Taken for 1 to 6 months
- September 14, 2019
Kevzara (sarilumab) for Rheumatoid Arthritis "I've taken three Kevzara injections so far. My doctor wants me off steroids and Arava. With each injections, I had a worsening cough, sinus congestion, and now mouth ulcers and a sore throat. It's tolerable and only a minor nuisance so far. I'm willing to tolerate all this if I'm told that these minor side effects will go away with continued use. The internet doesn't say- anyone know?"
- panca...
- Taken for 2 to 5 years
- January 19, 2023
Kevzara (sarilumab) for Rheumatoid Arthritis "I’ve been on this drug for over 2 years and I cannot be more grateful. Many other drugs were given to me intravenously and I could not be happier to be taking something that works from the privacy of my own home. I take it in combination with mtx, hydroxy and leflunomide. I hope this continues to work as it is the best drug I’ve had since I was diagnosed with RA in 2009. I can finally exercise, my husband and I even go rock climbing once a week together now. There is a little pain at the injection site but otherwise Kevzara is a dream."
- Dee
- Taken for 6 months to 1 year
- September 7, 2023
Kevzara (sarilumab) for Rheumatoid Arthritis "When first taking Kevzara, I had pins and needles throughout my body after day one of injecting. It resolved in a day or two. This went on for about 4 months and then resolved. It’s been a year now and I’m suddenly having the exact symptoms - pins and needles everywhere - but it has lasted 2.5 weeks now. I’m concerned it’s related. And nowhere in the literature do I see this as an adverse side effect. I’m a nurse and I believe there’s a correlation."
- Dizzy
- Taken for 1 to 6 months
- January 21, 2020
Kevzara (sarilumab) for Rheumatoid Arthritis "I just stopped taking Kevzara last week as the last 2 injections malfunctioned and the plunger did not move so I couldn't get the medicine out. I did get some relief at first but not as much as I had in the past with Enbrel (morning but it stopped working about 2 years ago and I've been looking for one that works like Enbrel. I didn't get enough relief from the Kevzara to have to worry if it's going to malfunction again"
- LKano
- Taken for 1 to 2 years
- October 2, 2020
Kevzara (sarilumab) for Rheumatoid Arthritis "I have been on Kevzara for about a year now. I have RA for about 25 years. Everything I have taken in the past stops working after a year or so. Kevzara was my last hope. I still have many flare ups. Two days after my injection I get very bad mouth ulcers. I have been using mouth rinses and medication to lesson the severity but 6 or more a month is a lot and they are painful. Not sure how much longer I can deal with this."
- Scorpio
- Taken for 1 to 6 months
- February 21, 2024
Kevzara (sarilumab) for Polymyalgia Rheumatica "I'd been on prednisone for 4 years since 2019 and every time I decreased dosage to wean off of it, inflammation would return. I've been on Kevzara for six months, and I have gotten relief from the pain and stiffness. I have been weaning off of prednisone and will be done with it by the end of March. Kevzara is working for me, and I am able to walk again without the debilitating pain in my knees. I hope I can continue to take it with no side effects. P.S. It took me over 15 years to get a proper diagnosis of PMR - years of suffering before getting any relief!"
- Swamp...
- Taken for 1 to 6 months
- January 28, 2022
Kevzara (sarilumab) for Rheumatoid Arthritis "I tried methotrexate, arava, embrel, and Humira with no relief. My hands and feet started deteriorating rapidly. None of those drugs helped at all. Kevzara has been a game changer. The pain and inflammation are manageable. I can open bottles again. I’m no longer sleeping in wrist splints. I’m able to lift weights a few days a week."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Kevzara (sarilumab) for Polymyalgia Rheumatica "Reported earlier that I hoped to be off prednisone shortly after Jan 1. I came off prednisone entirely on Jan 9, 2024. I had my 7th injection of Kevzara yesterday and I feel just fine. If Kevzara becomes my maintenance drug, so be it. Hope never to need prednisone again. A lot of credit to my PCP for advocating using Kevzara as soon as it was approved for PMR."