Elmiron and Tiredness: What Users Say

• Chy...
• September 12, 2013

For Interstitial Cystitis "For 4 years, I was in and out of doctors' offices explaining to them that I was having severe bladder pain (the kind that makes you nauseous, sweaty, and feverish). Finally, I went to this one doctor and told her I had symptoms of urinary tract infections 12 times in less than 6 months. I had tried changing my diet, and nothing had helped. She put me on Elmiron, 3, 100 mg pills 3 times a day, and within 2 weeks, I could finally pee. It has been amazing, although I do suffer from frequent headaches (even when we have lowered the dose as low as 3 pills a week) and exhaustion (I had this before the Elmiron, but it has been increased while on it). I still recommend trying it, it is better than nothing."

• Fla...
• Taken for 1 to 6 months
• January 2, 2019

For Interstitial Cystitis "The drug does work, which is awesome, but the price is out of hand, and the side effects finally caused me to have to stop taking it. Dry eyes (so bad I was contemplating getting stents in my tear ducts), exhaustion, some hair loss, achy muscles, and again, the exhaustion. I took Elmiron for 4 months (the brutal side effects started up about a month in. I could only handle those for 3 months). I'm okay now, but I'm on a pretty limited diet, NOTHING acidic. No alcohol, no soda or anything fizzy, tea, coffee, and I check ingredients... no citric anything, vinegar, or spicy or heavily salted... basically, I've radically modified my diet. If I can't pronounce it, I don't eat it. It's boring, but better than the bladder spasms or the Elmiron side effects. I also take aloe vera supplements, collagen, fish oil, magnesium, and drink marshmallow tea."

• Shy...
• Taken for less than 1 month
• July 23, 2019

For Interstitial Cystitis "I've been on Elmiron for 2 weeks and feeling very, very tired all the time. I can barely wake up and get out of bed, I'll fall asleep in the morning and in the afternoon and then go to bed early. I can't seem to stay awake. And the nausea is starting to get pretty bad now already, and my doctor wants me to be on this medication for 3 months to see if it's going to help... so I guess we will find out if it works or not. I'm pretty skeptical about it."

• KEL...
• Taken for 1 to 2 years
• July 29, 2018

For Interstitial Cystitis "I’ve had ICU for almost 2 years now. I’ve been taking Elmiron for about a year and three months. It has helped my bladder tremendously. I still can’t eat or drink acidic foods, but the pain is gone. The side effects of the Elmiron are pretty hard to live with, but it’s definitely better than the pain in my bladder that I suffered before the pills. My bladder feels good most of the time. The side effects experienced from the Elmiron are tiredness, aching in my body, and some hair loss for sure. But I will keep taking it because the bladder pain is much worse if I don’t. The medicine definitely has not cured it, but it does relieve it a lot. My doctor said there’s no cure for it, but this is definitely the best road to relieve the pain."

• Mom...
• Taken for less than 1 month
• August 2, 2014

For Interstitial Cystitis "I've had pelvic pain and problems for the past 4 years. Had TVT mesh surgery in 2010. Countless Dr. visits for what I felt like a really bad yeast infection. Dr. just kept putting me on different medications. After following the Interstitial Cystitis diet for 3 months, went to the urologist and was told I have overactive bladder, not IC, added Oxybutynin. Finally found a pelvic specialist OBGYN/URO 3 months ago. Had 5 Rimso 50/heparin instillations, 1 to go. Added Valium suppositories, Tramadol, and urostym therapy. IC symptoms are better as long as I stick to the diet. I have been on the Elmiron for 3 days, with 176 days to go. Migraines for the first 2 days. I am exhausted all the time, my body aches. I'm really hoping this goes away. All I want to do is sleep."