OnabotulinumtoxinA for Urinary Frequency User Reviews (Page 4)

• Kon...
• August 22, 2016

"Botox Bladder Beware. I agree with that person who wished they had not let Botox anywhere near them. I had the Botox bladder procedure 8 (yes, eight) weeks ago, and I haven't peed yet (on my own). Four semi-permanent catheters the first 6 weeks and then self-catheters since. Now I don't dare go out more than 3 hours after I cath, or I'll be stranded. No hike or other lengthy activities, etc. Picture cathing behind a tree? Another problem is that I'm getting very little info from my doctor; maybe she's never done this before. PS- for males, it's very expensive; generally, they need to put you out and require a surgery room. Very bad decision. Males, don't do it; carry a bottle and look for restrooms."

• Lee...
• January 13, 2020

"Worst experience I have ever had. It's been bad since day one. First of all, the procedure hurt. Then I could not pee at all. I went to the doctor and was informed this was a side effect, and now I should be able to pee on my own. Well, I still could not. The spasms almost drove me crazy. She prescribed me some meds, and they stopped. I am still unable to urinate on my own, just a few drops come out, and I know my bladder is full. I hope this stops soon. I hope I don't have to self-catheter until this wears off... never again...."

• Gec...
• July 26, 2017

"I too had the sling surgery. It took care of the laughing, coughing, etc. accidents. I had difficulty emptying my bladder. I couldn't sit to urinate, I had to squat like a linebacker. I had to go pee every 30 minutes. And when I had to go, I went from no urge to running and barely getting my pants down. My urologist said that I could a. have the injection, b. have my bladder snipped to 'undo' the surgery, or c. go to a doctor in Pittsburgh (close to me) and have a pacemaker-type device put in. I got the injection a little over a week ago. The first day I was really crampy. Now, I can't fully empty, and it's getting worse every day. I thought it was a UTI, but now I have to self-cath. I also go (trickle) every 15 minutes. Grrr! Hope this helps!"

• Bla...
• Taken for 1 to 6 months
• January 2, 2019

"I had this done in December 2018 due to an overactive bladder. I regret having this done. Now I can't fully empty my bladder, which brings on cramps. I'd rather deal with the overactive bladder. At least I felt relief when I passed urine. Now, constant cramps, fullness, and discomfort."

• Hai...
• May 11, 2017

"I just had my third Botox treatment. The first was great. It was painful but worth it. I did not retain urine or have an infection. What a relief. The second one was 7 months later, and I had good results. This third one was nine months later, and after 6 weeks, I have not had any positive results. I have an appointment with my urologist to see what we can do, but it is very disappointing to go through this with no results. I thought I could control this urge incontinence for life."

• blu...
• February 7, 2016

"I had this treatment in January 2015, and it worked for me almost immediately. I will say that I was already doing catheters, and I still do them twice a day. If I didn't, I would probably never pass urine, so something to think about. I wish that I had this years ago when I was scared to leave the house or was always trying to think of where I could get to a public toilet. I have secondary multiple sclerosis and would like to ask if anyone has had problems with their legs since this procedure? I am falling at least once a day, and this had started since the Botox."

• Sha...
• Taken for less than 1 month
• December 22, 2018

"So I’ve been taking medicine for overactive bladder for a long time, and I’ve had some undesirable side effects from those medications. I’m only 27, and when my doctor told me about the Botox injection into the bladder, I was skeptical, but I told myself I would give it a try, and at least then I would know. So, when I went into the doctor to get the procedure done, it was pretty uncomfortable, but here I am three days later, and I can feel definite relief for me. I wasn’t having any problems with leaking or peeing on myself, it was just the urgency I was having to get up during the night, up to 10 or even more. Anyways, like I said, I’m on day three, and I definitely feel a lot of relief from the sense of urgency, and my doctor said that it could take up to two weeks for the full effects to work, so I am super hopeful that it will get even better than it already has. Overall, I’m really glad I got this treatment. I hope this helps."

• SBa...
• Taken for 6 months to 1 year
• April 13, 2019

"Had my second set of Botox today for overactive bladder problems, the first one lasted 8 months. Could have gone longer, but going on a trip in June and wanted to make sure I did not have to pack a suitcase full of pads. Best decision I ever made. After five years of wetting all the time, not getting any sleep, and quality of life awful, this has been a miracle. Yes, it is a little painful during the injections, but well worth the pain."

• hel...
• Taken for 1 to 6 months
• March 8, 2019

"I had a Botox injection in my bladder in December, and I had trouble peeing. My bladder was in a lot of pain before I had this done too. The severe pain did stop, but still had some pain with my bladder. By February, I was having severe pain again and infections again. So that Botox injection doesn't really work. It causes problems. It is not good that you can't pee, and that is what it does. I much rather run to the bathroom several times than not be able to pee at all. And my pain issue with my bladder is back so soon. So I wouldn't recommend it to anyone."

• Mic...
• Taken for less than 1 month
• November 29, 2019

"I am 70 years old and have severe OAB since I was 35. Medications were of little help. In March 2019, I had Botox injections of 200 units. It was not unpleasant but of no use. Three weeks ago, I got 300 units and it was a much worse experience. I have to pee every 10-30 minutes and urine just flows out between bathroom visits. I am extremely discouraged and disappointed. I give up."

• lrz...
• August 31, 2017

"Let's just say LIFE CHANGING!! Goodbye pads - hello active lifestyle! I've had this procedure twice and am excited to be going for the third time tomorrow! I have a great doctor who has been with me every step of the way since I asked him about it in 2015. It sounds like I'm one of the lucky ones - besides pain/cramping during urination that first day (which Ibuprofen helps!), and a couple of UTIs shortly after each procedure, I've suffered no ill effects but have experienced a dramatic improvement in all issues I've had with painful urges, frequency, and leakage. Mine lasted a full year each time before I noticed any degradation, and it was almost 18 months before I was 100% back to the old symptoms."

• Yve...
• Taken for 1 to 6 months
• August 29, 2018

"I had an overactive bladder before the Botox treatment. I had to urinate very often, especially after drinking coffee or alcohol. Five weeks after the injection, my condition has worsened. I urinate more often, in smaller amounts, and the urge comes on very rapidly. I do not recommend this treatment."

• KMa...
• Taken for 1 to 6 months
• August 15, 2019

"Had Botox done on March 19 under local anesthetic. Told this was the all-singing and dancing cure, total rubbish. Not only was it extremely painful (according to clinicians, only going to feel a slight scratch), it didn't work. I was worse off than when I started after this useless treatment. I would never have this treatment again, and it is extremely painful under local."

• buz...
• Taken for 1 to 6 months
• July 12, 2016

"I had Botox March 21st, 2016. When I haven't got a UTI, it works a treat, since having it done, I have had a UTI just about every other week. It's sad because it does make a massive difference. Awaiting water test results, just getting over another UTI as I write. I have become immune to certain antibiotics. Not sure if I'm gonna have it again."

• Gra...
• October 8, 2017

"I had Botox for an OAB. Before, I had a terrible urge to go, but I could not fully empty, but I could go! The date is October, in April, it would have been three years since I had this done. At the beginning, I was reluctant, but my urologist recommended this. I was told I was going to have to be totally reliant on self-catheterization, which I was okay with. She did, however, say there are instances where the Botox would get rid of the urge, but you would still be able to pee. A week after having Botox, I have been 100% reliant on catheters. Without them, I have urinary retention, I cannot go at all. I feel totally let down by the medical profession and the company that makes this drug, as they have washed their hands of me, and the only suggestion is to have more Botox!"

• Sue...
• Taken for less than 1 month
• June 12, 2019

"I have MS, and unfortunately, for months, I was suffering with overactive bladder issues and urine leakage. A urologist told me about the procedure. I had this done under anesthesia. It's nearly day 4, and so far, I feel amazing. I remember the day after waking up with not a full bladder at all. I don’t have to cath myself, but I do have to strain a bit to make it come out. But no pain or discomfort at all."

• Don...
• Taken for 2 to 5 years
• March 8, 2017

"I've been having bladder Botox injections for 12 years at the hospital. I have had urge double incontinence for about 15 years, caused by multiple sclerosis (primary progressive). I am nearly 70. I was tried on different treatments for about 3 years. Nothing worked. I had to wear thicker and thicker incontinence pads (very embarrassing)! Eventually, I was given flexible cystoscopy and Botox. Has to be done every 9 months, first it was with 20 injections, later increased to 30 injections. It was worth every jab! Takes about 15 minutes under local. They always do FC and test your urine first. Discomfort during the procedure and sore for a few days. No other side effects. Time to find a loo and dry pants."

• Lul...
• February 20, 2019

"I had Botox for the second time on 23rd Jan, and a week later I had to go to A&E as I couldn’t wee. They tried to put a catheter in, but I was screaming and crying as it was so painful. They eventually got it in, and I had retained 518 mls. I don’t use catheters now, but the sensation I get when I need to go is painful, and I’m finding I have to squeeze the last drop out. I also get a shivering/shuddering sensation as I start to wee. The first time I had Botox was brilliant, no problems at all, that’s why I agreed to a second treatment. I’m never having it done again. All I think about is my bladder. I’d rather wet myself than go through that again. Can’t wait for it to wear off."

• Nan...
• Taken for 5 to 10 years
• October 16, 2017

"I've had Botox injections 5 times and would definitely recommend it. They say it lasts for 6 to 8 months, but mine have lasted the longest, being 2 years. I'm very pleased with the outcome of it, it has made a massive improvement in my life."

• DDS...
• Taken for 2 to 5 years
• January 25, 2017

"I just recently had my 4th Botox injection. For the first time, other than needing to use catheters due to retention (just 1 1/2 weeks now), I feel normal. Every 4 hours, and my bladder is actually full! Over the next couple of weeks that will get better, but I still might have to cath. (knowledge from past experience) after intercourse and 1st thing in the AM. I'm okay with that. Forgot what that was like since my hysterectomy 10 years ago. For those who are frustrated after two weeks: patience...give it time. It takes a few times for things to begin to be better, and each Botox brings better relief. The pain during the injections, although quite powerful, is well worth the results! At least for me."

• Tap...
• March 14, 2019

"I had Botox last Nov 2018 for my bladder, and I hate it - it has changed my life. I go through more pads now and had to change to the bigger ones. I can't go anywhere for any length of time. I walk around the block, have to come in and change a pad. Other than my surgery, it was the worst thing I did. BUT I had to try, I was desperate to get my life back. But I realize now that the life I had was okay, and now it's gone. Good luck."

• CAB...
• Taken for 1 to 6 months
• March 12, 2016

"I have tried numerous medications, and everything has failed. I got Botox in January of 2016, and it wore off three months later. My bladder has reverted back to how severe it was. I do not recommend Botox to anyone."

• Ton...
• Taken for 1 to 6 months
• July 17, 2018

"I had Botox injection on June 12, 2018. The doctor never told me about urinary retention possibilities beforehand, or I would never have agreed to this procedure. I have had urinary retention since June 12 and still have to self-catheterize 6 weeks later with no letup in sight. I am constantly sick, like I have the flu. I have a terrible urge to urinate constantly. This is living hell for me between trips to the ER and doctor's office. I have lost over 20 pounds in 6 weeks. DO NOT HAVE THIS PROCEDURE DONE. I DO NOT RECOMMEND IT."

• Rpo...
• Taken for less than 1 month
• May 17, 2017

"So I just had the Botox done yesterday. I was really hoping for a possible reaction, but within a few hours, I couldn't urinate, called the doctor on call, and pissed (pun!) me off, for he never called me. I had to go to my own hospital for 3 hours, which was way too far. The hospital drained my bladder, although not much in it, and had me begging him, please, there is still more in there. He said nothing, I'm sorry. I went to their bathroom 5 more times. I have one of the worst cases, and next is getting the box implanted."

• Vic...
• Taken for less than 1 month
• September 21, 2018

"Had it done today. Worked for me right away. For once, I feel normal again. That being said, I was given a Percocet and Valium one hour before the procedure. Still felt half the needle sticks in my bladder. Scale 1 to 10, it was a 5, but it was quick. Results almost immediate. I feel like my old self! I'm a 58-year-old woman that had to double up on pads just to walk my dogs. Can't wait to walk them now."