OnabotulinumtoxinA for Urinary Frequency User Reviews (Page 2)

• Sab...
• Taken for less than 1 month
• February 11, 2020

"I had the procedure today at the hospital, and the doctor that was doing my procedure said it would be just a little pinch. Well, she lied, it hurt and burned like I don't know what. Never felt anything like it. I told her many times to stop, she continued to torture me. Whoever said this procedure isn't painful is extremely lucky or under anesthesia. This procedure is very painful. I will not complete any follow-up treatments."

• Kic...
• Taken for 1 to 6 months
• July 23, 2016

"I had Botox for overactive bladder six weeks ago, and it's been nothing more than a nightmare for me. My main issues were frequency and bladder spasms, and the Botox has only worsened these issues. I initially experienced a great deal of bleeding with large clots for 12 hours, which I was unaware could occur - only slight spotting had been mentioned. Within a week, I could no longer urinate, and a Foley catheter was inserted. Six weeks on, my bladder remains seized, and despite a number of attempts to remove the catheter, my bladder hasn't improved. I have had two UTIs and been admitted to the emergency department for severe bladder trauma, urine retention, and UTI. I have suffered extreme anxiety as a result of all of this. It's not for everyone!"

• Aro...
• June 21, 2016

"I had my injections last Wed. I had to go to the ER last night for major acute water retention (can't pee). I have to wear a catheter with the bag. I'm pretty sure I will have to self-catheterize until the Botox wears off. I wish I never did it, it paralyzed my bladder. I will never have it done again. On the other hand, I'm glad I'm not the only one that suffers from OAB. I'm 36. Very disappointed why this had to happen to me, quality of life is worse with the Botox. At this point, I'd rather wear Depends. Please do not do this procedure. PLEASE, the possible side effects are not worth it at all."

• rqm...
• Taken for 1 to 2 years
• August 25, 2015

"I agreed to a Botox injection to treat frequent urination when all other treatments failed. Since the Botox injection, I have the urge to urinate almost all the time. When I can pass small amounts of urine, the pressure is often still present, and urgency sometimes returns in as little as 20 minutes. Sometimes I cannot pass any urine. Even when I can pass urine, about 150 to 200 cc remains in the bladder, and I have to use catheters. I have to stay close to a restroom all the time. I was told the Botox would wear off after a year, but here I am about a year after the Botox injection, and I'm still using catheters to empty my bladder as often as needed. There has not been any noticeable change. I'm beginning to think that my bladder functions will never return to at least as good as before the Botox injections. What a huge mistake. What a gullible victim I've been."

• Anonymous
• April 9, 2017

"Ok, an update on my Botox treatment. Close to 3 weeks since I had this done, it kicked in faster than expected, and what a relief to not wear pads for the first time in years. The urge to go has basically gone, and now I can sleep all night, a huge, huge plus. Now, what many call the downside to the Botox is the self-cathing. For me, I don't see this as a real downside. It takes just seconds to cath, and it's no big deal to me. It is such a small price to pay for the huge benefits, but that's just my opinion. Cath 5 or 6 times a day, or tinkle every 30 minutes and constant leaking, I'll take cathing hands down."

• CAN...
• Taken for less than 1 month
• October 5, 2015

"I was a basket case. Had the sling (we all know how THAT went - grew into my uterine wall and had a full hysterectomy with some still left inside), Detroit LA, Vesicare - first 5mg then 10mg then doubled up on the 10mg (THAT got my GP's attention. Referring me to urogynaecologists where I FINALLY had a concrete diagnosis of a spastic bladder (was always told I had a prolapsed bladder!). Botox or permanent catheter were my only two options. Botox it was! Besides an excruciating experience with the injections (the doctor RINSED out the lidocaine halfway through the process because she saw 'debris' in my bladder and didn't reapply), it's been 6 days since my injections and I literally feel THE BEST I've felt in years!"

• Hav...
• Taken for 6 months to 1 year
• January 30, 2017

"For years, I've had to deal with my overactive bladder. I went on various prescription drugs only to have bad reactions, the worst being severely dry eyes causing a tear in my cornea, it did not put me in my happy place. In 2007, I had a bladder suspension, which stopped the peeing when I laughed, coughed, sneezed, or cried. That changed my life, but I still had that 'key in the door' peeing sensation. I still had to find the bathroom every time I entered a mall or grocery store. I found the best urologist. We tried the InterStim. Unfortunately, I herniated a few discs in my back due to a car accident. The InterStim had to come out in order to have an MRI. I have had Botox five times now. It's amazing. Now I even get injections in his office and awake."

• Ann...
• Taken for less than 1 month
• August 21, 2016

"Just had this done 5 days ago, finally something that works, after trying various medications for nearly 20 years, no more incontinence pads during the day, and had the first night's sleep without getting up 3 or four times to go to the toilet. I would recommend this. Only wish it had been done years ago. I know it's early days yet for me, but great improvement so far."

• M G...
• Taken for 1 to 2 years
• February 17, 2017

"I've had Botox injections 3 times. The 1st time, I developed symptoms after a week, which made me go to the ER. My bladder was on fire! The Botox only lasted 4 months. The second time, I had zero symptoms, and it kicked in right away. The Botox lasted 8 months. The third time, which was yesterday, hasn't kicked in yet, but I've been having bladder pains, which are relieved after emptying. But I wrote this to say that everyone is different, so you can't really go by our reviews - try it out, and if you don't like it, don't get it anymore, simple as that. Also, I've found it to last longer while also taking Ditropan 10 mg once a day. P.S. Someone said it's more expensive for males, which isn't true, it all depends on your insurance."

• Wea...
• Taken for 6 months to 1 year
• February 11, 2016

"This has been a nightmare. When the Botox started working, I was barely able to urinate at all, and my partner had to rush me to the hospital emergency to get a catheter put in. My bladder was completely paralyzed from the Botox. This treatment is really brutal! I had to then self-catheterize 3 times per day for about 2 months until the Botox wore off enough that I could urinate, and I've had multiple UTIs since then, which is another side effect of this treatment. If a doctor offers you this treatment, run a mile! It's not worth the pain and suffering that you will go through. Now, after 7 months, the Botox has mostly worn off, but it's still difficult to empty the last bit out of my bladder because the bladder muscle is still partially paralyzed."

• RB2...
• May 28, 2017

"An update from my post on March 7: I still cannot empty my bladder and have to self-cath. The Botox treatment was December 21, so now it has been five months! I am beyond frustrated! I have no idea when and if my bladder will ever be normal again."

• Jen...
• Taken for less than 1 month
• December 17, 2016

"I had the procedure done just a few days ago, and it has been wonderful. I've had a few minor side effects, like a UTI and some burning, but other than that, I'm doing well. I know it takes a few weeks to kick in, so I will update accordingly. If I have to complain about anything, it's that my insurance requires that this is done in the surgery center, so I lose a day of work. I planned for this, so it was fine. I went to the mall last night and realized that I had been there for hours and didn't need to run to the bathroom every 10 minutes. I have to go for a check-up in 2 weeks. I am urinating on my own, so that's good. I think this was a good decision. Again, I will update next week with any side effects."

• Sop...
• Taken for 6 months to 1 year
• April 27, 2016

"I think it depends on if you really suffer with this condition or you just wee a lot as to whether you will appreciate it. I'm 30 years old, and for the last 5 years, I've had to wear adult nappies to bed (which more often than not leak), this is humiliating. I already suffer with borderline personality disorder, depression, fibromyalgia, IBS, stomach ulcer, and now this! It was making my life hell. I had my first injection last year, which did decrease the frequency I had to wee and stopped the leaking a bit, unfortunately, it didn't stop having to wear adult nappies at night, BUT this changed my life!! I will be having my second injection on the 9th of May, a higher dose this time. If you don't appreciate what this does, you didn't suffer beforehand."

• Gal...
• July 3, 2016

"One week after Botox treatment, I was and still am miserable. I have had UTIs and urinary retention. Following a trip to the ER, I was fitted with a catheter, which was pretty uncomfortable. Next came self-catheterization, which has been nearly impossible, due to my bulging bladder. I would rather wear Depends than go through this ongoing nightmare. I resent the fact that my doctor only mentioned retention casually and did not explain the consequences."

• Maz...
• October 11, 2016

"Had Botox for overactive bladder 12 days ago. Been miserable ever since, pain is as bad as ever, and I have gone into retention, so now having to self-catheterize up to 4 times a day. Will now need to wait for the Botox to wear off to see if I can pass urine normally again. 6 months of pain, throbbing, pulsating sensation, and the constant feeling of needing the toilet, and I thought Botox was the answer, instead, it's made matters worse!"

• Gua...
• Taken for 1 to 2 years
• April 15, 2016

"I got my second round of Botox yesterday. The first one was in 2014. I think that depending on your doctor's experience and knowledge with this medication is how you will get better. If your doctor puts too much medication, it will not be good for you. Thanks to my doctor, I feel better."

• Chr...
• Taken for less than 1 month
• November 4, 2019

"I got Botox October 1st, 2019, for urinary problems, and they said it takes anywhere from 2 weeks to 4 weeks to 6 weeks to work. The procedure is very painful and takes about 1 hour. The aftermath this has caused, I would never wish on anyone. I'm peeing every 15 minutes to 5 minutes, the procedure weakened the bladder and made me worse. Don't have it done."

• owl...
• Taken for 2 to 5 years
• July 27, 2016

"I have had Botox injections often over the past three years. For me, they last about six months. My doctor performs the injections under general anesthesia, so I don't feel a thing except for the IV, that is the worst part for me. I have only gotten one UTI from the injections. I have multiple sclerosis, the doctor I have is knowledgeable about MS. We tried four different meds, which didn't work. I have good luck with the injections, so I plan on sticking with them."

• Esm...
• Taken for 10 years or more
• March 1, 2017

"I've been receiving Botox every 4 months for severe OAB for the past 10 years. Without it, I need heavy incontinence pads or adult diapers. With it, I only experience an occasional small accident about 2 weeks before treatment and need no pads at all. It completely changed my quality of life for the better."

• jil...
• August 4, 2016

"I had Botox bladder injections just over a week ago and wished I'd never let them anywhere near me. I suffer from severe overactive bladder disorder, interstitial cystitis, and have done all of my adult life. I thought, prayed this would be the answer. A week on and I'm in so much distress and discomfort and at my wit's end. God only knows if it's such early days what else is to come. I'm being treated for UTI even though the test showed negative, but it was worth a try. On reading the posts on here, it seems I'm not alone. I'm hopefully seeing my doctor tomorrow but not really sure what they're going to do. I am so fed up, but it is reassuring to know I'm not the only one. This condition is a curse that no one can understand unless they've lived with it."

• GHC...
• April 6, 2015

"My brother had Botox done last year for bladder problems with MS. It has been the worst year since being diagnosed 20 years ago. He wasn't told he would need to use a catheter, and he has severe vision problems. He has had constant UTIs, terrible pain from using catheters, and developed hemorrhoids after having Botox done. Now Botox has worn off, and he still needs catheters and is in pain. He has been told he'll need to have more Botox so he won't feel the pain. Complete disaster and very costly trips to specialists."

• Fin...
• Taken for 1 to 2 years
• April 10, 2016

"I just had another round of Botox injections three days ago. While I did get a UTI from the procedure and it was a bit difficult to void the first two days, I am 100% now. I even went to work the following day. I also had this procedure in March of 2015. That one didn't go so well in the beginning, but I think it was because I was in an interstitial cystitis flare. If you have it, I feel your pain. After my flare calmed down, I noticed the Botox actually worked really well. This time I made sure I was not in a flare before Botox, and all is good. This is a last line of treatment for me, and at just 31 years old, I'm so glad I have found it. It is not a lifelong fix, it will most likely require treatment every three months to a year. Everyone is different."

• Don...
• January 16, 2019

"I had the Botox in October 2018 for an overactive bladder. I got told I could go into retention for a few days. This was the worst decision of my life. Three days after the procedure, I couldn’t pee, I was in agony, so I got taken to A&E. I was admitted and was in for 13 days. I had an infection and was in retention fully, had a fullness feeling, and was in chronic pain. I got discharged with catheters, and I was so sore using the catheters I couldn’t use them. So, I ended up back to A&E, admitted again another 5 days with an indwelling catheter in this time. Then came home, and 3 days later the catheter got blocked, the pain was that bad I couldn’t walk, sit, stand, or anything. I was sick, so back again to A&E, admitted again. It’s now the middle of January, and I’m no better. I’m still using catheters. I've got the fullness feeling and can’t get on with my life. I don’t get any feeling of needing a wee. All I can say is please look into it properly before deciding to have this. It is not worth it at all!!!!"

• BKa...
• May 20, 2017

"First had Botox injections in March of 2016. Doctor stated it would last six to nine months. Lasted 13 months and no side effects. Last week had my second injection as an outpatient. Took about five days to have me back to normal. Best choice I made for my OAB. No problems at this time and hoping it lasts at least nine months."

• Hap...
• January 25, 2021

"I used to pee about hourly and about 5-6 times a night. Botox suggested. Had Botox and ended on the toilet every 5-10 minutes. Warned to expect frequency. Hours later, crippled in pain from continual peeing, then had blood in urine. Had an ultrasound of the bladder to measure residual urine, which showed 60 ml residual after peeing. My bladder holds 50-70 ml. Needed a catheter to give me some rest. Went home with an indwelling catheter. No antibiotics before or after Botox. Two weeks later, now 2-3 bags of blood each day in the bag. No visibility in the bag due to blood and stringy clots for 4 days in a row. Told nothing to worry about at the local hospital, antibiotics injected and got tablets for bladder infection. Wishing I was never pushed to try Botox by the urologist. Returning to remove the catheter for 1 day in a few days, to see if successful and teach self-cathing. This means toileting 15 minutes - 1/2 hour and 1-2 hours at night with self-cathing. Would not recommend Botox for bladder issues requiring bladder surgery."