Nintedanib User Reviews & Ratings (Page 2)

• Joh...
• Taken for 1 to 2 years
• July 12, 2024

For Idiopathic Pulmonary Fibrosis "I have been on nintedanib 150 mg twice a day coming up for 18 months, side effect slight diarrhea on or off, just take anti-poo tabs after loose one. On various other meds: steroids, antibiotics, stomach pill, prostate tabs twice a day, 24hr oxygen. My last CT scan shows a slight increase, but I find the best treatment is getting out for my daily walk on the moors no matter what the weather is. Oh, started turmeric not recommended, got very short of breath, stopped taking, and breathing is back to what it was."

• Mik...
• Taken for 6 months to 1 year
• September 18, 2024

For Idiopathic Pulmonary Fibrosis "I have been using OFEV for 9 months now. I do not notice a decrease in lung capacity nor any increase in breathing endurance. My symptoms include shortness of breath, fast heartbeat, and a markedly reduced physical endurance for walking. The side effect of diarrhea has been bothersome, and I have not been able to get relief from it."

• SKe...
• Taken for 1 to 2 years
• December 20, 2024

Nintedanib for Idiopathic Pulmonary Fibrosis "100 mg 2x daily; easy to use; very difficult, unpredictable diarrhea episodes in spite of strict adherence to suggested dietary plan. Hair loss noted also."

• 4 g...
• Taken for less than 1 month
• December 9, 2023

Nintedanib for Idiopathic Pulmonary Fibrosis "I have the chills, loss of appetite, dry mouth! I just don't feel well. I have no energy at all."

• Ofe...
• Taken for 1 to 6 months
• October 24, 2023

Nintedanib for Idiopathic Pulmonary Fibrosis "I have been taking 100 mg Ofev twice a day since 09/15/23. I have had no side effects until today, 10/24: mild stomach ache and have no energy. Hopefully, this side effect will subside."

• Sk7...
• Taken for less than 1 month
• June 21, 2024

Nintedanib for Idiopathic Pulmonary Fibrosis "Pretty new right now - have experienced lots of diarrhea - not every day though - not sure yet what I should stay away from. Some nausea & a few headaches - low energy some days too."

• Anonymous
• Taken for 1 to 6 months
• October 23, 2022

Nintedanib for Idiopathic Pulmonary Fibrosis "Terrible side effects, debilitating to me. For the price, I would hope that the side effects would be much less."

• Dou...
• Taken for 6 months to 1 year
• October 23, 2024

Nintedanib for Idiopathic Pulmonary Fibrosis "Have asbestosis. Been taking since June 2024. Makes my legs sore. Can’t hardly walk sometimes. Not sure that it’s made a big difference. 150 mg x2. Grant for max out of pocket. Still taking."

• Rom...
• Taken for 1 to 6 months
• November 5, 2024

For Idiopathic Pulmonary Fibrosis "This drug is effectively helping me, also, I've been advised to do gym, keep myself active. It is helping me."

• bil...
• Taken for 1 to 6 months
• October 19, 2024

For Idiopathic Pulmonary Fibrosis "I'm coughing less, have less fluid buildup, and breathing easier. However, I do have loose bowel movements, but very manageable, maybe 2 times in one day. I'm taking 150 mg capsules twice a day."

• Tab...
• Taken for 1 to 6 months
• November 12, 2024

For Idiopathic Pulmonary Fibrosis "Ok, slight nausea, some stomach pain. Recently, after restarting after 2 weeks off due to high liver readings, have developed some joint pain."

• Nig...
• Taken for 6 months to 1 year
• December 18, 2023

For Idiopathic Pulmonary Fibrosis "Been taking for six months. FVC a lot better. I did have diarrhea for a week, but it turned out not to be connected to the drug."